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ginnyde

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Everything posted by ginnyde

  1. Well Judy, there in lies your problem. If you drink you think you can say them. As you know, I used to sell computers and I always had a hard time saying 'fixed disk'.
  2. Irish wristwatch Once is tough enough
  3. Muriel, I have a friend that had breast cancer, and then cervical cancer and then colon cancer and now breast cancer again. When she asked her doctor why so many, he said "You just have a lousy immune system". The good news is she is still here to talk about it.
  4. Most on my mind = missing. My Father My Mother My 2 sisters and mostly my dear husband. Only Earl served in the service - Air Force. He served during the early part of Vietnam but never left the states. I think the saddest part of today is remembering that so many of those killed in war are young, way too young. We had fireworks last night, bang, bang, bang for what seemed like hours. Earl used to laugh at me when we went to fireworks. I said WOW at each boomer. I am like a little kid with fireworky holidays. Enjoy the rest of the day.
  5. I have been around here forever. The love of my life died in 2004 and yet here I stay with nothing to offer except compassion and a tiny amount of understanding. I joined here prior to the date that shows, but lost my first sign on. It is very sad to see this site get less attention, it offered me so much during Earl's journey. I follow each of you like you are my long lost relative. I revel in your triumphs and hurt in your losses. My wish is only for some loud recognition of this horrendous disease, and some incredible funding to help research a cure. Wish I knew how to get more people to come here, to share their stories, to offer support, to bring forward new information. It is 10:30 on Sunday night. It was a wonderful day with golf and food and friends. I hope you all had a wonderful day with your family and friends. Good night and bless you all.
  6. Diane, that is funny and typically a guy thing. I think I would just learn to love them.
  7. Hot as hell and very humid here. BUT I am playing 27 holes of golf tomorrow. No 'you are an idiot' remarks. Went to the local farmers market today. Bought a great hanging basket, purple, yellow and white, really pretty. Also, got a sinful brown sugar pound cake. Ate one slice and wrapped the rest in slices and froze it. I have no will power. As I am typing, the sky has gotten very dark and noisy. I hope you are all enjoying this holiday weekend. Susan, you are one smart lady to tell The Man that you don't work on holidays. Judy, keep posting.
  8. Janet, I have had what they used to call 'opthamalic(sp) cluster migraines' for years. I get what looks like a lighting flash that has been cut with pinking shears. It starts out small and then gets bigger and bigger and disappears after about 15 minutes. Years ago, I would get a mild headache after the 'light' disappeared. No headache for many a year now. I can get them a couple of times a day or not get any for a few months or anywhere in between. They are very common. They have new name but I can't remember it. When I get them, my close vision is more affected than my distance. Had an episode on the golf course on Sat. Doctor told me they could be due to stress. Hope this helps.
  9. Hi First Airer, It is supposed to rain here this afternoon and we need it alot. Dry as punk in these here woods. But after today the weather looks perfect, for golf that is. Judy KW, please let us know how you are, we care about you. Looks like a lot of folks are going to the Hope Summit. It is a great thing to get together and share. My Easter was wonderful. Most of my family were at my house and everyone got along, we laughed, we ate and we were merry. Life is good. Great news for Jamie. Judy MI has had a rough road, many prayers that it smooths out. Andrea, many hearts and hugs are out there for you. I really believe that losing your Mother is very hard, no one every thinks you are as smart, beautiful and funny as one's Mother. Enjoy spring.
  10. ginnyde

    The Lioness

    Andrea, I am so very sorry. I know that she was your very best friend and you will miss her so very much. You are in my prayers and thoughts for the days and years ahead. You had such a special relationship with your Mother. Always remember this. Hugs and more hugs to you dear Andrea.
  11. I am so sorry. He was way too young, just tragic.
  12. Happy 2 days after April Fool's Day everyone. Little bird - big hawk. I was on the tee box on the golf course (where else would I be) when I was attacked by a hissing goose that was protecting her out of site nest. We had to chase mommy or daddy away with my Calaway Diablo club. They are fearsome. Last year there was this hawk that thought golf balls were her eggs, is all we can guess. She kept swooping down and trying to pick up her 'eggs'. Took a lot of convincing that they were not her babies. The only other bird story I have is that the geese leave a lot behind on the course. Enough said. It does improve your dance steps however. Judys, we all hope that these latest hiccups are only a nudge and that your body adjusts to this assault and is easy on you both.
  13. Judy, I have no advice, so wish I did. But I wish I could climb thru this wire and encourage, encourage, encourage. Please try and think of this as a bump in this journey which will get you to a successful destination. I know, easy for me to say. My only suggestion is on the phone to your dr. asap and get some high tech medicine to ease the discomfort of these sores. You can do this Judy, just keep the goal in site. ((((HUGS)))))
  14. I am going to stop your run Judy, hehe. Glad the arm is on the right road. I admire your attitude about the rotten journey that you are on right now, but keep in mind that you will reach your destination and your life will return to a new normal. Many people are routing you on. I love global warming, more golf, lower heating bills. What's to complain about. I hope Judy KW begins to feel better.
  15. ginnyde

    Joe B

    For the old timers that remember, Ry posted on FB that Joe B has died. Too young, too sad.
  16. Judy, you continue to amaze me. Yes, live your life with joy each and every day. Scream and yell and curse as required to get rid of the cra* and bring the joy back. You are my hero.
  17. Kelly, my friend was dx'd with ext. small cell probably 4 to 5 years ago. She is doing very well and has be moved from 3 month scans to 6 months scans. Only problem is some neuropathy in her feet. She considers this a small problem. She is living life to its fullest. I wish your Mother the same success.
  18. Hi everybody. Judy, if the last chemo worked on that tumor, I would sure go with it again, just sayin'. Also, I don't want to scare you, but you are older this time around, maybe that's one of the reasons healing is taking longer, just sayin'. Went out with my highschool friends on Sunday. A gal that doesn't join us often came this time. She has been dx'd with lc for over a year and was very quiet about it. She has had brain surgery and I think she said cyberknife on her lung. The brain tumor caused her to be totally paralyzed on her left side. With much pt and great effort on her part she can now walk with a cane. Her attitude is amazing. We have been unbelievably blessed this winter with great weather. Today, tomorrow and friday will be 60 or above. Got tee times for thurs and friday. Thurs will be interesting since I have 8 neighborhood ladies coming for dinner that night. Hopefully I have it planned right and can do golf and then be the 'perfect' hostess. hahaha. Well back to work.
  19. Oh do I have to respond. Earl's lc was first dx'd after having a seizure and the occurence of a brain tumor. The pathology from the brain surgery indicated that it was lc and at that time another tumor was discovered in his upper right lobe. Another surgery to remove that lobe. We then met with the onc. and the radiation onc. who both said no more treatment was necessary. Although, since he had had a medianoscopy and cancer cells were found in his lymph nodes and we knew it had metastized to his brain, why the he** was the thoracic surgery done????? On our 3rd follow up with the surgeon, he asked Earl how his chemo and radiation were going. WHAT, they said he didn't need it. He said, well I was in there, and he needs it. He ended up getting it, a lot of it. And BTW, Fox Chase Cancer Center advertised itself as having a 'committee' that reviewed each patient's treatment. Guess Earl was not committee worthy. I don't believe that a better level of care would have resulted in a cure. It just bothered me that Earl was almost considered a throw away. I am still angry.
  20. I am so sorry. No words, just not fair. Stay with us, we really do help.
  21. Maria, I was the wife of a lc patient. I really doubt that your Mother is finding this inconvenient as much as she is totally scared. Her love has been dx'd with a very serious disease, she has just been moved, her financial situation has changed, etc. etc. Give her some time, recognize that while she is not the patient, her life has just done a 180. Maybe she could come here. I hope your Dad's treatments are successful.
  22. ginnyde

    Stephanie

    There are certain souls that you do not need to know but you will grieve when they die. Stephanie you are one of those souls. Peace.
  23. Hi Jessica, I live right outside Philadelphia. My husband died in August of 2004 of NSCLC, after a 23 month battle. He was treated at Fox Chase. Where are your doctors? We have many good cancer centers in this area. Wish you didn't have to be here. Don't know why it seems that so many young women are getting lc. I have heard some suggestion of it being hormonal. I, too, like Kasey, read your entire blog. Hope this is helping you manage this journey. And you are right, there are so many new things coming out for the treatment of lc. I fight very hard to get awareness of lc to the public and to try and eliminate the smoking stigma. Stay with us.
  24. Oh Judy. I am so glad you are in your own bed, what a great feeling. I totally understand sleeping on your tummy. When I broke my femur it was almost 3 months until I could do that. Over 3 years later I still appreciate it. Don't be a big brave girl, take the pain meds whenever you need them. What's the next step? Will someone be with you tomorrow morning while Randy is on the radio? Keep us posted. We care.
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