Connie B

http://www.abreathofhope.org/ A Breath of Hope Lung Foundation. I believe they have been around for about 3 years now. Janet went to there first walk about 3 years ago and said she was very impressed. We tried to get members to go last year but no one wanted to go, they all had things going on.

I put them down they day I had my lung removed, I was done....... I support those that quit!

Well, I am doing as well as I can be doing under the circumstances. I just had a Borhochsopy done about 4 weeks ago to see if these new nodules in my lung are cancer. The report came back saying they are NOT cancer at this time. No No No No cancer! I've had some bumpy roads, but all concidered, I am doing well Thank for Your Asking. Moving much slower, but non the less, moving! Hugs, Conni

Katie, Just wanted to let you know your in my thoughts today. As this day, 6 years ago, when you lost your dear dad will pass softely and with warm loving memories for you. ((((((((((((((Katie & Jesse)))))))))))))

I'm not sure if they are on the road yet, but I did see her on the board this early afternoon.

Best wishes to you Lilly. Your in my prayers each and everyday. I'll be looking for you update post. Good Luck, and God Bless.

NancyB is the person that Ginny is talking about you might want to do a search on her past posts. NancyB has since passed away. I have heard of a few over the years with both, but I have to say, I think they were dx.d WITH BOTH and not like your dads. I would like to suggest talking this over with Dr. West. Good luck to your dad, you and your family.

Hey Dana, After reading over your profile info, I just have to ask, are you sure you have SMALL CELL LUNG CANCER and not Non Small Cell Lung cancer? Chemo is number one treatment in treating small cell , even after sugeries. What you discribe sounds more like non small cell then small cell. All those that I know who did PCI did it maybe a month or two or three maybe even 4 months after completing chemo. Do you get a copy of your reports after you meet with your doc's? It might be worth your while to look into doing this is you don't already. If you don't have a copy of your dx's report, I would ask for one. I would get all my reports from the day you were dx'd.

Hi Tami, Sorry to hear your having all these problems. Are you SURE it's not your heart? Have you had a CT scan at all for rule out cancer? How is your blood pressure? Are you taking any meds and if so, what? God girl, this could be so many things. Okay, sorry to have to ask questions but I don't remember did you have any chemo and/or radiation done? The numbness and lung pain is a mystery to me. It almost sounds like fluid in the lung. It's nothing I would take lightly, as I'm sure your not, but someone needs to check you over girl. I have been a 14 year pnuemonectomy survivor if you remember and the problems I had were all heart problems over the last 6 years. I had severe SOB and I too could not walk across the room without damn near passing out. This was my heart problems that caused that. I also had problems from some of my heart meds I was on, and it caused me to be very weak and tired and just felt like crap all the time. It was my heart medication that caused all that, but I thought I was dying, it was horrible. You do know this could be cancer related? I don't think I have to tell you that. Your PCP doesn't sound like he/she is pushing very hard to find an answer for you. You might want to try going to the ER? I don't know what to tell you with all these problems. None of them sound fun or good to have. I remember how horrible I felt with all my heart problems. Another things that comes to mind is MOLD, you mention you work in a basement. Could this be something MOLD related. I'm just grasping as straws for you here. If I were you, I really would get pushy and start doing some serious screaming at your doctor. My organs have shifts some too, and being a one lunger, but I have never had any problems like you have, and I can say that some of my In Person LC Support Group members (long term survivors) who are also one lungers have never shared these kinds of pains years after there pneumonectomy either. Most of us have had aches and pains of sort, but nothing as serious as you are having. Please get checked out and maybe go to the ER. Keep us posted. Best wishes to you.

Hey Dana, Oh Kiddo, it's hard to be opened minded when you don't have a clue on what the heck to expect. I just want to share with you that many people in my In Person Lung Cancer Support Group have done PCI and are very happy they did and to top it all off, they are doing just fine today and this would be 5+ years after having it. One of my dear friends who had PCI works for the school district as an Assnt Teacher. I try to always remember the early days of this journey. To often we (long term survivors) sound like things are NO BIG DEAL, but when we go through them, they are HUGE and should be treated as such.

Alexander, Bucky View/Sign Guest Book GREENSBORO — Bucky Alexander, our darling mother and wife, of Greensboro, N.C., passed away peacefully early Monday morning, August 3, 2009, at Wesley Long Hospital, surrounded by the family. Bucky was born on August 6, 1954, in Buenos Aires, Argentina. She fell in love with a young man from Greensboro and had four wonderful children, all now living in Greensboro. She and her example will be missed like crazy by her children and husband, and by hundreds of others whose lives she touched throughout her life. She was very actively involved as a volunteer and on the staff at Our Lady of Grace church for some 20 years. But Bucky's job was not to organize, build, analyze or even to clean and cook; she nurtured her family and her friends and brought extraordinary happiness everywhere she went, and this quality and her enormous zest for life was unique, and was enough; in fact it was everything to us. It is her legacy to her children and all who had the privilege to know her. Bucky is survived by her children, Paz, Alanna, Carolina and Will, who always came first; by her grandchildren, Cristian and Isabella; her brother, Juan and her husband Bob, who all desperately miss her. A memorial service will be held at 11 a.m. on Saturday, August 8, at Our Lady of Grace church, followed by a reception at the Proximity Hotel. The family asks that memorials for Bucky should be made to the North Carolina Cancer Partnership, P.O. Box 14305, Research Triangle Park, NC 27709. Offer condolences at www. news-record.com/obituaries Published in the News Record from 8/6/2009 - 8/7/2009 Notice • Guest Book • Send sympathy flowers • Visit the gift shop • Make a memorial contribution Share photos, videos and more with Legacy Memorial Websites. Find out more.

My Dear Friends, With a heavy heart I pass along that our dear and wonderful friend Bucky (Brunilda Alexander) has left this world and has entered Heaven. I spoke with her wonderful husband Bob who said she pass Aug 3, 2009. They were on vacation in Flordia when she started to have serious pain in her back. She suffered in serious pain her last days here on earth. Her poor husband is so heartbroken. Please keep her husband, children and grandchildren in your prayers as they mourn her loss. My heart breaks over the loss of our friend Bucky. Bucky and I had become friends over the last few years and I will miss her dearly as I know many of you will as well. That was a very hard phone call to make.

So sorry to hear you were in the Hospital Renate, I'm glad your donig better. This lung cancer ride holds all sorts of surprises and some days the road gets a little bumpy. Stay strong and keep in mind, this to shall pass and you can do this and you can beat this. When I did my radiation I too had some radiation burn in my throat area after about the 4th session it started to bother me. A little tough to swallow. My suggestion to you is KEEP YOUR DOCTOR in TUNE of how your feeling throughout your treatments. Don't hold anything back. If your throat burns BAD then tell them. But there are things they give us to help with that discomfort. Mine wasn't all that bad, and only lasted about a week. But I also know others that have said the same things. Yes there are the horror stories of radiation, but there are also the stories that aren't of horror. I'll just send up a prayer for you that our on the good side. If you get SOB (short of breath) Let your doctor know right away. I just have a feeling your going to be very tired from this, and if your body is tired, then listen to it and rest, rest, rest. When this is all over the hopes are you will be cancer free and on your way to becoming cancer free and/or in remsission. Find the Silver lining in all this, your going to make it and your going to be a long term Lung Cancer Survivor.

This is AWESOME NEWS! Congratulations! Keep on doing what your doing, it's working!

Hi Joy, So sorry you had to find us, but I am glad you did. Everytime I hear a new member come here and talk of being scared, or worried or overwehelmed, I go back to day one (14 Years ago) when I was dx.d with adenocarcinoma stage IIIB. You can click on below my signature and read my story. Your not alone in this journey. At least not anymore. (((Joy))) We'll do our best to get you through this step by step. Take a deep breath in and blow it out, this is a bumpy ride, but it's very doable, treatable and beatable. Your in good hands here. I look forward to getting to know you.

Hi Richard, Sorry you had the need to find us, but I'm sure you'll find a lot of information and support here. I have a friend (from my In Person Lung Cancer Support Group) who also was diagnosed with Non Small Cell Large Cell Cancer. She did radiation and VP-16 & Cisplatin as her chemo. This was 9-1/2 years ago and she is still going strong today and is over 70 years young. She hasn't had chemo or radiation for over 8 years now and the tumors have all shurnk and are not active. She gets checkups every 6 months, but so far she's still Stable. The kind of cancer you have is treated like most of the non-small cell types of cancer. It's just what the doctor may feel you can handle or what you can't. It's kind of a crap shoot for all of us as to what will work and what may not. Some chemo's are more toxic then others and with you having had a stroke, I am sure they are very careful as to how they will treat you. Just remember this can be treated, but as for a cure.....well, those of us living with lung cancer, never say never but we know stable and NED (no evidence of disease) is a good thing in the world of lung cancer. Stay positive, and I hope you'll beable to golf again one day soon. Just never give up hope and never say never. Lung cancer is not an easy fight, but it's doable.

Dear Renate, Well aren't you just a BRIGHT FLOWER in the garden of lung cancer to see. Wow, so the Fentanyl was doing all that too you??? WOW, I believe it! These meds can play havoc on our bodies and sometimes we figure it out and sometimes we don't. I am SOOO HAPPY to see your up and about and doing so better! It's been a long time that I did my radiation but, fatigue is one of the common side effects of it. It also depends where they are radiating you on your chest area. I am just so happy to see you back. You go Girl! (((((((((((((((Renate))))))))))))))))))))

I'm not shocked. This is gotten so OUT OF HAND and all of us are paying a huge price and our care in the mean time is going down the tubes. It's all about greed. Tests, Tests, Tests, Money, Money, Money....... I did a urine test, (peed in a bottle) and they charged me $180.00 just to do that. They also told me they would do what they called the short version check on my sample, and it costs $180.00 for a short version? What in God's name would it cost otherwise? Wow, I have to say I am in shock with you over your $11,000.00+ bill. Holy Cows! Oh, I have to say, I have had a lot of blood work done for my heart issues and now for cancer issues again, and I haven't had a bill near that large. My heart stuff has been costing me around $1,100.00. Haven't got the bill yet for the cancer blood work. I'll let you know. We ALL have to start checking this stuff when we get it. Or ask up front what these things will cost. Oh boy, what a mess this has all become. Good luck Barb.

HAPPY BIRTHDAY DONNA! Happy birthday to Jay too. For those that don't know, it's her hubbies birthday today too. You have a wonderful 62nd Birthday Girlfriend!

Vicks on the bottom of your feet. One of my dear friends who had a horrible cough during her journey with lung cancer had coughing fits. She tried just about everything and anything and one of the things she tried and was shocked it worked was Vicks on the bottom of her feet. One of her tumors were growing in her lung causing her to cough unstopped. She really did try just about everything even for short term comfort. I have another friend who has radiation damage in her right lung causing her to cough all the time too. She's had this cough ever since she completed radiation treatments 8+ years ago. She's still here and still cancer free but still has her cough. Some days are worse then others, and some days are pretty darn good too. She too takes whatever will give her comfort. The hard thing with all this is, it could be sinus related or it could be a tumor in the wrong spot related, or it could be medication or treatment related. Hard to say what it is, but use whatever makes you comfy. Drinking warm water helps sometimes for me. I can't remember if you had radiation or not, but it could be caused from radiation too. Hound your doctor's. Good luck to you.

Giants Owner Sue Burns age 58 died from complications from lung cancer. http://www.fanhouse.com/news/mlb/giants ... 8%2F578174

SOB can also be heart related. Chemos can be hard on the heart too. I think it's worth getting it checked out or at least call your doctor and them him or her your sob is getting worse. This is nothing to second guess. Best wishes.

Dana, You need to try and learn how to put the cancer issues to rest for about one hour a day, and then 2 hours a day, and then 3 hours a day, and so on and so on and so on. And yes it honestly can be done. HOWEVER, I understand your fears and how this monster takes control of our lives. It's sucks! I do wish to share with you that I have a few friends also who are long term SCLC Survivors. They aren't on this board, but they are alive and doing just fine today and I might add are completly NED from head to toe. Wendy and Donna G on this board know who I am talking about, because they know them too. One is a 10 year SCLC Survivor, another is a 9 year SCLC Survivor, and I know another who is a 5 year SCLC Survivor, and I know there are many more in this world just like them. They just don't post to this board is all, but they DO LIVE and they DO EXIST! You HAVE to know you can be a long term survivor too. None of us knows what lies ahead, but today is what counts. Go and enjoy life. Todays a Gift! Go live it.

Yes Kasey I hear it laughing, and I know exactly what your saying and how your feeling. ((((((((((((((((Kasey))))))))))))))))))) I am sitting here being sad with you. There are No words, just know I understand.

God is Great, God is Good! Happy to hear this Great and Good news! Congratulations and keep on keepin on.