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meeshy

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  1. meeshy

    Taking a break

    Has anyone stopped Tarceva for a "break" if so how long did they stop for, what was the outcome?
  2. Recently I wrote in about my mother who is now "stable" on Tarceva;( Diagnosed with NSCLC in Dec. 2006, status post chemo/rad, at MDA). I was aking for help with the side effects of Tarceva, namely the rash. Thanks to some of you who wrote we have found relief in the low dose Doxycycline antibiotic and especially the cream which my mom can't say enough about as she was really depressed and exhausted from the pain and itching ith the rash the cream is/was clobetasol propionate [/i]and it cleared her up in three days! Thank you all very much for this reprieve. When I was discussing with her the commonalities of peoples reaction to Tarvceva she asked me to post this helpful hint for those who experience diarrhea, she has found that coconut as in coconut macaroons helps to stop it, she does warn that it can cause constipation if too much coconut is ingested but it is a tasty way to maybe help with that problem.
  3. To all of you who have written, I give my heartfelt thanks. You have taught me about this connection and have given me strength to approach my Mom and have something to offer her. I printed your replies and suggestions/experiences and I brought her some of the items that I read about. It spurned thought and hope and a much needed lift of spirits. I continue to learn something everyday about people and Cancer, about me and my family and how to be. You have all made today a "good" day for us and I send my most positive vibes out to you. Today was great. Thank You. By the way the 1% hydrocortisone with 12 moisturizers and aloe did appear to help her itching and she went to see her Doc about doxycycline.Aside to Ned, Aloha, my mom did infact have shingles not so long ago, on her face and her eye, she seemed to recover from that but these lesions do still appear like shingles, however they are over her face scalp torso shoulder, abdomen and upper thighs? I don't think that is shingles because of the growth pattern but it certainly looks herpetic. She realated to me a helpful hint for those with diarrhea, try coconut macaroons, I don't know more than that yet but I am happy to spread whatever news I can. Once again, your responses have touched us all here and reminded me personally about the power of people. More to come, Meeshy
  4. Hello April, Pleae let me start by saying, I feel for you and your mom. I think this is the most difficult thing to live through/with and my prayers include all people experiencing cancer. I have had many similar days as you describe with my mom and continue to learn about myself and her and this life changing disease. We made it through the chemo/radiation and are enduring continued treatment with a drug called Tarvceva. I wish I could say she was "out of the woods" but never mind that for now. When my mother was going through chemo and then radiation she also spent a lot of time in bed, cranky and in discomfort. Nothing was right, no one of us could make it right, whatever we thought we knew we didn't . She prevailed and she struggled for control of her life and herself. I did learn that I had to let her, let her do it her way. My dad and I tried to continue with the activities of normal daily living but truthfully, all we could do was wait for her cue and then try to satisfy her. Forgive yourself and forgive your mom and somehow accept that even if you think you are not "doing" something you are doing the best that you can. I can only offer my experience as validation I have found no answers or solutions but having felt guilty and confused I found relief in the fact that I was not unique and that sometimes, sharing with others was the best support for me. I hope doing so also helps you . meeshy
  5. My name is Michelle and my mother is living with NSCLC. She was diagnosed in Dec. 2006 and though she continues to live she does not continue to thrive. Thanks to the drug Tarceva she shows no active growth but it seems that even 6months later she is just now developing some kind of skin rash that has her extremely sore and depressed, this and a continued IBS type of side effect keep her "down" and mostly she remains in bed trying to cope by sleeping to avoid it all. I am looking to find out how other people have found Traceva ,and what if anything they have found to help with the side effects that I mention here. Has anyone decreased the dose from 150mg daily and experienced stll, no growth but also lesser side effects?
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