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poggie

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  1. My mother-in-law's fight is over. She died yesterday evening around 5:30. My husband was holding her hand as she took her last breath. He said that she seemed at peace. My dad on the other hand is not at peace. We were with him this past weekend. He is in an enormous amount of pain. He is healing well from the surgeries and the C Diff is getting under control but his leg is causing him so much pain. He has no pulse in that leg and it's turning gangrene. He has been on a vent since his last surgery (Jan 4,2008). He's been trying to tell us something for several days now. Finally yesterday, they realized that what he was asking for was to have the vent removed. So, late last night it was taken out. My sister stayed with him the whole night and said that he seemed to be holding his own. At some points he would go down to 6 breaths but would go back up into the 20's. We know that it's only a matter of time. I don't blame him one bit for giving up. He has been in pain since he had two stokes when he was 42 (1973). I just wish that we could be with him and that there was some type of medication that they could give him to take the pain away. Even as he sleeps, his leg twitches constantly. I HATE the fact that my family has to choose whom to be with. Do we stay here for the wake and funeral or do we drive 300 miles to hold my dad's hand? If we stay, will my dad (and the rest of my family) feel that we've abandoned him? It's all just so hard! The wake is going to be Thursday with the funeral on Friday. Thank you all for your thoughts and prayers!
  2. Thank you all for your thoughts and prayer. My mother in law is still hanging on. We all went to see her last night but she was pretty much asleep. My youngest daughter is disabled (she has a very rare genetic disease). When she laughed, my mother in law tried really hard to open her eyes. To us, that was a sign that she was still with us but just not able to respond. She was moved out of ICU last night and into a room on the hospice floor. The staff thought that she would pass during the night or sometime today but she's still fighting. Her blood pressure has come back up and her heart rate is back in the normal range. My husband and his brother went to see her at lunch and she opened her eyes for them. He told her that he loved her and she whispered "I love you too". My dad on the other hand has taken a turn for the worse. The doctors have found that he now has C Diff Colitis and has bacteria growing around his heart. He had an artery to his leg replaced several years ago. He's been having a lot of pain in that leg lately and the color is changing. Testing shows that the artificial artery is clogged and he's getting very little blood flow to the leg. They were talking about amputating it if he survived but that's not likely and they can not control the pain now. He's still on the vent but can nod. My sister told him about my mother in law and he began to cry and choke. We're still very torn but if my mother in law is still hanging on, we'll be heading to see him on Saturday. For now, we can only take one day at a time. Thanks again for all of your support!
  3. I know that I haven't posted here in a long time but I do read the board. My mother in law was diagnosed just over 4 years ago with Stage IV lung cancer. This was a shock to us because she had never smoked a day in her life. She has fought hard and we're lucky that she was never in any pain (or at least she said that she wasn't) and had very little side effects to all of the chemo that she's taken. She did very well on Tarceva for several years but her body just can't fight anymore. She is currently in ICU at a local hospital but the family will be meeting with hospice tomorrow to find out if there is a bed available in a hospice home. Right now, our world just seems to be crashing down. My father is also in ICU but in a hospital 5 hours from our home. He had emergency surgery on Dec 28th. They needed to remove 18 feet of his small intestine. He had a blood clot that cause the bowel to die. He also had air pockets in his liver. He survived the surgery but needed another operation Jan 4th to repair a leak. He's still in ICU but it's not looking good for him either. His white cell count keeps climbing, he has pneumonia in his lungs and the blood cultures are now showing yeast and e coli in his blood. I spent 4 days with him last week and my family went back again late Thursday night and came home Saturday. Needless to say, our family is torn. My children will be loosing a grandparent from each side of the family in a very short time. We all knew that these days would come. We just didn't think that it would be all at the same time.
  4. Thank you all for your advice and more importantly, your prayers and support!
  5. I haven't been around in a long time. Things seemed to be going well until last Feb. My mil suffered from steroid induced psychosis from the large dose of steroids she was getting for whole brain radiation. It took a long time for the steroids to get out of her system but once they did, she was pretty much back to normal. I say pretty much because we are noticing that she misuses a word or has a hard time finding the right word sometimes. She recently had a full CT and we're told that the tumor in her lung is growing again and she now has a spot on her liver. We ask for specifics (how big? where?...) but my FIL rarely knows the answers. The doctor has suggested that she start Tarceva. Should the spot on the liver be treated more aggressivley or is Tarceva her best option? She's already had 3 rounds of different chemo meds. Besides a rash, are there any other side effects that we should be looking for? Deep down I feel like her fight is coming to an end. She appears to be feeling fine but I just don't see that fighting spirit inside her as much. Next month it will be 2 years since she was diagnosed with Stage IV NSCLC. Any suggestions or advice? Thank You!
  6. My mil finished 14 days of whole brain radiation( for small mets to the brain) last week . She has been taking steriods 4 times a day for swelling. She has a CT set for this week to check the swelling but has to stay on the steroids until she sees the doctor next week. Anyway, since starting the WBR and steroids, her legs are so week that she can't stand up enough to get up the stairs to bed. She's had 3 different rounds of chemo and besides the hair loss, she hasn't had any side effects. Is this muscle weakness caused from the radiation? the steroids? or just the progression of the disease? This has really taken a toll on her. She has been up beat, in high spirits through it all but lately, she is always depressed sounding. She talks about how miserable she is not being able to walk. I know that a possitive attitude helps with cancer and she's no loosing that too. Any advice. She was diagnosed 1 1/2 years ago with stage IV NSCLC. She's a non-smoker and 17year breast cancer survivor (stage I~mastectomy without any chemo or radiation). She's going to the U of Chicago if that matters. Thanks!
  7. I haven't posted here in quite a while. Things seemed to be going as good as possible but have taken a turn for the worse. My mother in law was diagnosed with Stage V NSCLC about 18 months ago. She had two mets in her hip at the time as well as in the lymph nodes. Recently, she's had some problems with memory, using the wrong word and dizzy spells. She had a MRI of the brain last week that confirmed that she has a lot of very small lesion through out the brain. She is will have 15 daily treatments of whole brain radiation. Prior to this, she has been on two different groups of chemo meds (Carbo/Taxol was the first but I can't remember the others). She is getting some type of med in her hep-line for bone strength every few weeks as well. She had to start steroids this weekend to prevent swelling. Now, the questions. What are the side effects of whole brain radiation? Are they long lasting? How soon will they start? What's the prognosis? She's still in denial thinking that she will be cured. She expects to hear that the cancer is all gone. We know that's not possible but don't want to burst her bubble. Her attitude for the most part is pretty up beat. I think that they (mother and father in law) are hearing what they want to when she goes to the doctor. She's done very well with the chemo. No side effects besides being a little tired a day or two (she looses her hair as well but it grew in pretty thick when she had the break between the two rounds)
  8. Marlon, I am so sorry for your loss. Please accept my condolences. I haven't been here very long but from reading all of your posts, you were a wonderful advocate for your mother. You may remember that we live very close to you. If there is anything that we can do to help, please let us know. Poggie Mother in law(72yo) non-smoker being treated at the U of Chicago for NSCLC Stage IV mets to brain, spine and hip Carbo/Taxol
  9. I haven't posted in a while. Things seem to be going well (as well as we can hope for I guess) with my mother in law. She had three rounds of chemo Carbo/Taxol with the only side effect being the loss of her hair. Two weeks after the third round, they did another CT and MRI to check the status. She followed up with the oncologists last Wed. The doctors said that they were very happy with what they saw on the MRI and CT. It seems that the cancer is all exactly the same as it was prior to starting her treatments. They decided to continue with 3 more rounds of carbo/taxol for a total of 7 and redo the MRI and CT. After that, they will discuss what to do next. So far, they have said that since the brain mets are small (two of them~each 4mm) and they are not spreading or getting larger, they will hold off on radiation. This seems to go against everything that I've read. Should we be pushing for radiation? Besides a slight cough, she doesn't have any symptoms of the cancer. No pain at all. Yesterday was the first day that she wasn't feeling well~ a little sick to her stomach and she said that her knees hurt. Is the knee pain a common side effect to the chemo? Any insight is appreciated. Poggie mother in law 72yo no-smoker stage IV NSCLC mets to spine, hip and brain Carbo/Taxol
  10. Nancy, I am pretty new here but always liked to read David's posts. I am so sorry for your loss. Poggie Mother-in-law stage IV NSCLC Mets to brain, spine and hip. Carbo/Taxol
  11. Thank you to everyone that has responded to my questions. My mother in law had her first chemo treatment today. I'm anxious for them to get back home to talk to her. I'm not sure exactly what we should expect as far as side effects/problems go. I am going to talk to her about calling the doctor again to find out exactly what kind of cancer it is. I did a quick search today of the internet for "undifferentiated" "lung cancer" and it didn't answer most of my questions. My mother in law is going to the U of Chicago. From what I've read, it's supposed to be one of the best treatment facilities in the US. I know from personal experience that "good" hospitals, just like "good" doctors still make mistakes. Now, I'm starting to wonder. Prior to going there (she started about the second week of Nov) she was being given the run around with the doctors here in the suburbs since she had the X-ray in Sept. In the month that she's been at U of C, she's seen oncology, had another CT, thorasic surgeon, needle biopsy, MRI of the brain and now chemo. Right now, the treatment plan is to have chemo today and again in 21 days. After that, they will do another MRI. If they stayed the same or changed for the worst, they will do radiation. If they're getting smaller, they will continue with the chemo. The doctor did say that there are two treatment options. One as I said above and the other to do radiation first and then chemo. My mother in law opted to have the chemo first. I think that part of it is that she feels that she's waited around a few months and wants to get something going to kill the cancer floating around in her body. I appreciate the help!
  12. I'm sorry to bother everyone again. We got more bad news yesterday. My mother in law's MRI of the brain came back with at least two mets. This wasn't picked up on either CT or PET scan. As a result, she is no longer a canidate for the other clinical trial that she had hoped to participate in. The doctor always refers to the cancer as a "lesion". I don't want to sound dumb but is that the same as a tumor? The other thing is that we asked him what type of cancer it is? He said that they are getting away from giving cancer a "name" besides NSCLC. If he had to, he would call it "undifferentiated". He also refered to her cancer as "primitive". The MRI showed two lesions in the brain that are 4 mm is size. The plan right now is to start chemo (carbo and taxol) tomorrow. In 21 days another round of chemo. After that, he wants another MRI of the brain. Depending on what that shows, she may continue with the same chemo, different chemo or radiation. After talking to the doctor yesterday, I felt a little at peace. Just knowing that SOMETHING is going to start. Later last night, I talked to a neighbor. She is a radiation tech at another hosptial. She asked about my mil. When she heard about the lesions in the brain, she said that isn't good at all. She said that we need to be sure to make this Christmas special~~for my 3 girls as well as my mil because this will probably be her last Christmas with us. My heart sank again. My mother in law is not in any pain and has no sign of cancer beside a cough that some times nags her. What should we expect with the chemo tomorrow? She is going to have a port a cath put in first. I've asked the doctor to give us a life expectancy. His response is always, let's wait and see how she responds to the treatment. Any ideas? Thanks! 71 year old mother in law~~stage I breast cancer 1989 right side mastectomy but no chemo or radiation diagnosed Oct'03 NSCLC right lung pos. needle biopsy Nov'03 in one lymph node right side near neck mets in two places of the spine Dec'03 possible mets in right hip Dec'03 4 mm mets in brainDec03
  13. Has anyone heard of or participated in a clinical trial with ABT-510? My mother in law's NSCLC has now been changed from Stage IIIB to Stage IV after a bone scan and x-rays confirmed that there is cancer in at least two places in her spine and might also be in her right hip. As a result, she no longer qualifies for the clinical trial of chemo/radiation and OSI 774. The doctors are wanting her to try another study that includes Carbo and Taxol along with ABT-510. ABT-510 would need to be injected daily into her stomach. From what I understand, and I may be completely wrong, ABT-510 is supposed to stop blood vessel growth to cancer. The risk involved include bleeding at the tumor site. Because of this, she would need a MRI of the brain tomorrow to be sure that there aren't any mets to the brain. She's already had two CTs and a PET scan not show anything but we didn't think that it was in the spine based on these tests either. Any advice or suggests?
  14. Thank you both for your support. Things are worse today for my mother in law. The x-rays confirmed cancer in at least two areas of the spine as well as a questionable spot in the right hip. We have a family meeting tonight with a conference call with the doctor. We have told my mil and fil that we will support what ever choice they make but my brother in law wants them to take a vacation and enjoy whatever time left that she has. He's against chemo/treatment for the most part. He thinks that it will debilitate her to the point that her quality of life would be horrible. Even now, she is very active and in NO pain at all. Only an annoying cough every now and then. The doctors want her to participate in a different clinical trial with a drug called ABT-510 in addition to chemo. If she does, she will need a MRI of her brain tomorrow. They need to double check that there are no mets there before she can have ABT-510. She's not sure that she wants to know if there are any in her brain. Both CTs were clear as was that area in the PET scan. We also have two older girls (17 and 14) that are very helpful with their younger sister. We do get a night out every now and then and it helps. We haven't told them the complete news yet. Only that grandma has cancer and that we're exploring her treatment options. Until we know what she wants to do, there's no point burdening them with all of the details. We love our girls to death but sometimes are tired of being "special". We just want to be 'normal'~~whatever that is. Again, THANK YOU!
  15. The x-rays yesterday confirm mets in my mother in law's spine and questionable in the right hip. Now, the doctor said that she is stage IV instead of IIIB. Is that because it's now in the bones? Prior to this, she had it in her right lung, esophogus (sp?), and one lymph node near her neck. The course of treatment that they are purposing is chemo (Carbo and Toxal) or a clinical trial of chemo and ABT-510. ABT-510 is a shot that she would have to give herself daily. The idea is that ABT-510 should restrict the blood vessel production to the tumors. Before doing this, she would need an MRI of the brain to be sure that there are no mets there. They don't expect any but that's what they said before the bone scan too. If she decides to get treatment, she will start chemo next Wed. If not, I'm sure that she only has weeks/months left with us. Is there a standard # of treaments sessions? We have a conference call with the doctor tonight so I'm sure that he'll answer all of the questions then. My brain is going is so many different directions right now. I just can't think clearly. Has anyone experienced this treatment plan? Thanks again!
  16. In addition to dealing with the issues of cancer, we (my husband and I) also have a daughter with a very rare, progressive disease. As a result, she has MANY medical problems as well as being non-verbal and delayed in all areas ( cognitive and physical). We are constantly going somewhere (therapy, theraputic horseback riding, dealing with school issues, doctor appointments...) with her. We also live daily knowing that there is no cure for her disease and that it really is a miracle that she is still alive (until recently children with Alpha Mannosidosis had a life expectancy of 5 years) . Now, all of this happening with my inlaws it is getting us to our breaking point. Everyone calls us to cry on our shoulders but I'm not sure that we can take much more. They don't understand that we may put up a strong front but it's just that, a front. We have been living with heart-wrenching pain for 9 years since our daughter's problems started. I don't want to sound harsh or uncaring because I am not. I love my mother in law as if she were my own mom. I just know that somehow, we need to keep our sanity also for our girls. I would appreciate any advice that is offered. Here's a cut/paste of my post on the StageIII/IV board about what's going on. My mother in law has been diagnosed with NSCLC Stage IIIB. Since the thorasic surgeon said that she is no longer a canidate for surgery, we met with the oncologists last week to decide a course of treatment. She decided to enroll in a clinical trial being done at the U of Chicago with the NCI. Part of this trial required that she have a bone scan. (She's already had two CTs and a PET scan with in the last 6 weeks). They told us that this was just a matter of procedure and we shouldn't expect anything to be found. The doctors seemed pretty possitive. The test was last Friday and yesterday, the nurse called and said that there are spots on her leg and spine that they don't like. She had to go this AM to have X-rays done. The nurse said that it could be arthritis or tumors but they won't know until after the X-rays. With all of the other tests that she's had done, shouldn't someone be able to tell cancer from arthritis? It's just so frustrating! She was scheduled to meet with the radiation oncologist today but they cancelled that appointment. If the X-rays show that it's not cancer, she will see him tomorrow. We don't know what the next step will be if it does show cancer. I guess that I'm thinking the worst since she doesn't have any pain anywhere! If it were arthritis, I would expect that she would be in some pain. Now, we have no idea what if anything they will be able to do to treat her. Up until this point, she has had a possitive attitude. It's getting hard to stay focused and possitive. It seems that with every test, we get more bad news. This has been going on since Sept when her chest X-ray came back abnormal. Things were going so slowly with her doctors in the suburbs that she switched to U of Chicago last month. Where do we go from here? Mother in law~~71yo non-smoker diagnosed Nov'03 NSCLC Stage IIIB
  17. My mother in law has been diagnosed with NSCLC Stage IIIB. Since the thorasic surgeon said that she is no longer a canidate for surgery, we met with the oncologists last week to decide a course of treatment. She decided to enroll in a clinical trial being done at the U of Chicago with the NCI. Part of this trial required that she have a bone scan. (She's already had two CTs and a PET scan with in the last 6 weeks). They told us that this was just a matter of procedure and we shouldn't expect anything to be found. The doctors seemed pretty possitive. The test was last Friday and yesterday, the nurse called and said that there are spots on her leg and spine that they don't like. She had to go this AM to have X-rays done. The nurse said that it could be arthritis or tumors but they won't know until after the X-rays. With all of the other tests that she's had done, shouldn't someone be able to tell cancer from arthritis? It's just so frustrating! She was scheduled to meet with the radiation oncologist today but they cancelled that appointment. If the X-rays show that it's not cancer, she will see him tomorrow. We don't know what the next step will be if it does show cancer. I guess that I'm thinking the worst since she doesn't have any pain anywhere! If it were arthritis, I would expect that she would be in some pain. Now, we have no idea what if anything they will be able to do to treat her. Up until this point, she has had a possitive attitude. It's getting hard to stay focused and possitive. It seems that with every test, we get more bad news. This has been going on since Sept when her chest X-ray came back abnormal. Things were going so slowly with her doctors in the suburbs that she switched to U of Chicago last month. Where do we go from here? Mother in law~~71yo non-smoker diagnosed Nov'03 NSCLC Stage IIIB
  18. Denise, I'm new to the world of cancer and clinical trials as well. My mother in law is scheduled to start her treatment next Monday as long as everything goes ok when she sees the radiation oncologist tomorrow. She decided to participate in a clinical trial also. She was concerned about trying out a new med instead of a proven therapy. It was a hard decision but once the doctors explained that the particular trial that they were talking about is basically a routine course of treatment with one added drug (OSI-774) she jumped at the chance. It really is scary~not knowing if or how the medication will help. This is a NCI trial in conjunction with the U of Chicago. I did a search of the clinical trials and came up with only one that lists both meds that you mentioned. Here's a cut/paste if you'd like. If this is the same one, it says that it's being sponsored also by the NCI. http://www.clinicaltrials.gov/ct/show/N ... 41?order=1 My daughter also has a rare genetic disease. Right now, there is no course of treatment for it except a clinical trial with a bone marrow transplant. We decided not to participate in that because the risk of the chemo prior to the BMT is too great. Because this disease causes a weak immune system, her geneticist only gives her a 50% chance of surviving the chemo. If she does make it through that, they don't know if the BMT will take. If it does, they don't know how or if it will improve her quality of life or life expectancy. A few children made great progress, in one only his hearing improved, and in a few others, no improvement was seen. There are not many people world wide diagnosed with this disease so the study is quite small. Anyway, this is a tough decision. One that you need to weigh the potential benefits to the risks. Good luck and best wishes to your family.
  19. I think that I forgot to log in earlier today. Just wanted to let you know that the post above was from me. Congratulations again!
  20. We met with the oncologists at the University of Chicago yesterday to discuss my mother in laws treatment options. She is has been diagnosed with Stage IIIB NSCLC. She has a tumor in her right lung and one small lymph node near her neck (she had a mastectomy on the same side in '89 and had a lot of lymph nodes ~mostly under her arm~ removed then. Since the needle biopsy of the node was possitive, she is no longer a canidate for surgery. The doctors purposed several treatment plan options. After hearing their presentation (some times it can sound like a sales pitch), she decided to go with a clinical trial that they are doing at U of C. This trial includes chemo and radioation as well as a new medication called OSI-774. The plan is that she will receive 7 weeks of radiation Mon-Fri. During this same time, she will take the OSI-774 pill for 49 days. She will also get 4 doses of Cisplatin on Mondays of weeks 1,2,5 and 6. She will be given 10 doses of Etoposide Chemo for 5 days in week 1 and week 5. After this phase is done, she will start phase II. Phase II includes 3 doses of Docetaxel Chemo with 21 days inbetween each dose. At this time, she will also continue taking OSI-774 daily but the dose may be increased or decreased. After she finishes the last dose of chemo, she will be evaluated with another CT. In addition to all of this, they will be giving her a salt water solution in her central line to prevent kidney problems from the cisplatin, Decadron and Zofran prior to Cisplatin to prevent nausea and Decadron prior to the Docetaxel. As I'm sure that you can tell from this post, this is all new to us. Now that I've typed this all out, it sounds like the first week (tenatively she should start Dec 15) is going to be HORRIBLE. She will be getting two chemo meds and radiation. They said that she will have a horrible sore throat from the radiation but she will have to keep swallowing and force herself to eat and stay hydrated. Not the way that we planned to spend Christmas for sure but we will get through this! I guess, I'm looking for any advice/suggestions from others that have had any of this. I almost forgot~~~OSI-774 is a medication similar to one already approved by the FDA but I forgot the name. It is supposed to stop cancer growth. On a possitive note, she would not be a canidate for this trial if there was evidence that the cancer had spread to involve other organs in the body.. If you've made it this far, THANK YOU! Mother in law ~~very active 71 year old non-smoker, breast cancer survivor in '89 (mastectomy but no chemo or radiation was needed)
  21. Thank you all. I have printed out the list of questions that were suggested and will bring them with us on Wed. Pogie
  22. We are new to cancer and this board so please correct me if I'm wrong. What you describe about the hallucinations sound familiar to me. Not with regard to my mother in law (the one with NSCLC) but with my father. He had triple bipass surgery 2 1/2 years ago. He was in the hospital for a long time. At first in CICU and then a regular room. He often saw things that weren't there and even after coming home from the hospital would talk about what he saw as if it really happened. We had to point out over and over again how what he was saying could not have happened (like making pancakes for the entire hospital in the basement with his father~his father died in the 70's). The nurse called this ICU psychosis. She explained that because the lights are on most of the time, the meds that they are getting and the lack of a good night of sleep (he would nap but never really sleep through the night) it caused the brain to do this. She explained that it's similar to the way some prisoners of war are tortured. We asked several doctors and they all said the same thing. Again, I'm new to cancer and the meds that go along with it so this idea may be way out of line. I wish you and your family strength and peace. Poggie
  23. It's been about 3 weeks now since we found out that my mother in law has lung cancer. Her first set of doctors were taking a long time in between the testing until the final diagnosis so we switched her to the University of Chicago about 2 weeks ago. The surgeon there called with the news that we were dreading. Her cancer has spread to one lymph node (possitive needle biopsy) and said that confirms her at Stage IIIB. Since surgery is no longer an option, we're going back to U of C this week to meet with the oncologists. What can we expect? What is the normal course of treatment? Will the treatment start immediately? Is Chemo/radiation her only option? What specific questions should we ask?We have a million questions. From what I've read, this doesn't sound good at all. The 1 year survival rate is very low. If anyone can offer us any advice or suggestions we would greatly appreciate it. Besides a slight tickle in her throat, she feels GREAT. She is doing everything that she's always done and is not having any other problems. My mother in law is a non-smoker and also a long term breast cancer survivor (mastectomy but no chemo or radiation was needed) Thank You
  24. I went with my mother in law today to see the doctors at the U of Chicago. From what they can see so far, it appears that her cancer is non small cell and stage 2, maybe 3. She is scheduled for a PET scan this Friday and another CT this time of the chest, stomach and head on Sat. They said that the first CT is too old (it was done a month ago and only of the chest). She has an appointment next Wed with a Dr. Ferguson (thorasic surgeon). From what we heard today, she will need another test (I can't remember the name ) but he described it as a small incision at the base of the neck and a scope is incerted to remove part of the lymph node so that it can be looked at. Similar to a biopsy of the lymph node. This procedure hasn't been scheduled yet. I asked about seeing cancer in the ribs on the chest X-ray(someone mentioned that to my mil before but she couldn't remember who) and he said no. Right now, we're hopeful that surgery is possible. They also said that she will need Chemo. If they do chemo before surgery, she will need two, three weeks apart. If the wait until after surgery, she will need 3 or 4, again three weeks apart. If anyone can offer any advice, or suggestions about the procedures, surgery, or chemo, I would greatly appreciate it.
  25. My mother in law was scheduled for her PET scan today. When she got there, they said that she was scheduled for a CT. No! She's already had a CT. She needs the PET. They said that they only do them on Fridays and someone will call her and let her know if she can get it done this week or when they can fit her in. I called U of Chicago to see if we still should come to the appointment Wed and they said yes. She has to bring everything else with her and they'll see what they can do. I asked about getting the PET done there and they don't have one. It just seems crazy that they're one of the best cancer hospitals in the country but don't have a PET. We thought that maybe we'd have some answers today but I guess not. Anyway, I just needed to vent a little. Thanks for listening!
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