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TamD

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  1. Well I have been meaning to do this, but I just couldn't seem to sit down and do it. So with it being one week (already) I thought I should do this. My wonderful, best friend and mother passed away on June 29 at 3:40am, at the young age of 55. I am not going to go into her full story, because I don't feel I can at this point. I will say that she faught this dreadful disease for 8 months. At the end there was not any suffering, really. She went into the hospital on Sunday evening and left us on Tues. I am happy to say that I was able to be with her the entire time in the hospital. I could not leave her side, even though everyone else said to go get some fresh air.... I needed to stay with her. We had such a wonderful relationship. She knew me more than anyone, even my husband. Writing this does not seem real. I can't believe she is gone. I am either in shock still or am just not accepting it. I feel so terrible for my dad. He is all alone now and that thought just kills me. Because I have 4 kids and work full time, I am unable to go see him a lot. When I talk to him on the phone it is difficult because he would always ask after we talked for a few minutes, "Do you want to talk to your mother?" It is like I keep waiting for him to say that. When I go to their house my heart breaks. Everything there is her. The only thing that is getting my through this is knowing where she is and that she no longer has this disease. I look forward to the day that I will see her again. This website has been very helpful for me. I found lots of comfort in it. And I just want to thank all of you that pour out your hearts and offer encouragment. Thanks, Tammy
  2. Thanks to everyone for your input. I talked it over with my mom and although it made her upset to talk about it, I think she understands my point. She still is going to wait until Thursday to go (I can't force her to go elsewhere) to her regular chemo appt. She is going to talk to the doctor and see what he has to say. I did tell her that if I did not like what he says, she is going to someone else and get another opinion. So I guess we will see what happens. Thanks again, oh by the way, she finally got on this site. (My mom has never been on a computer) I showed how to do it, and she told me last night that she got on it for about an hour. YEAH! Now I just have to show her how to post questions... Tammy
  3. Hi everyone. I have things to get off my chest and this is the place to do it. My mom has nsc with mets to brain. She has been going through chemo with a set back due to low platelet count. She went back a couple of weeks ago for her treatment and explained to her nurse that she has been very short of breath. They told her that she had fluid on her lungs and that is causing the shortness of breath, she could get it drained if she wanted to or if it got worse. So, after watching her struggle to even carry on a converstation I had enough and called her doctor to explain just how bad it is, and they said she should go get it drained. Well my mom was very afraid to get this done and it took her a day and a half to decide to go get it done. Yesterday we went to the local hospital (which is not were she goes to get chemo) and they ran a lot of tests. There was no fluid on her lungs. They did the c-scan two different ways and nothing showed. It did show that her tumor is cutting off the blood supply to her lung and is compressing her wind pipe. They said that they did not feel comfortable giving her any other advice as they are not her doctors and don't know her case. WHich I am fine with. We had a great experience at this hospital. So he suggested she go home,call her onc. and get her in. (She has a chemo appt this Thursday May 6) This doctor said do not wait until Thursday get in as soon as you can and get some answers to what is going on. She called when she got home and they said, we will see you Thursday. As I was not there I could not say, no get in sooner. So she said ok. I don't understand. Why did one doc say fluid the other said no. One said get in noe the other said you can wait. Who and what do I believe. My mom just goes along with what her doctor tells her and does not stand up for herself. If it were up to me we would go to another doctor and get another opinion. SHe is on a clinical trial and it worked for awhile and now her tumor is growing agian. I am just so frusterated and I wish she would stand up for herself and say this is what I want done. Thanks for letting me vent. I am going to try and talk to her tonight and see what she thinks. Tammy
  4. Hi everyone. My mother that has nsclc with mets to her brain was just told that the reason she is haveing such a hard time breathing is because of fluid on her lungs. They said that in two weeks when she comes back they will see how she is doing. They did not explain how or why this happens and only said that if it gets too bad and she can't breath and her chest swells, go to the hospital. The research that I have done on the PC about this does not sound good. They also said to get attention as soon as you find out, to not wait. So my concern is if she waits 2 weeks will it matter. Anyone with information please help. Thanks, Tammy
  5. I just wanted to come to you all and ask for your prayers. My mom has lung cancer with mets to the brain. She went for a mamogram last week and they called her back because there were discrepancies found. She has to go on Friday to have a sonogram done of her chest. Thursday she goes to her doctor to get the results from her brain scan to see how those tumors are doing or if they are gone. I just feel do bad for her, I try to be her strength and give her encouraging words, but this disease just sickens me. I'm sorry, but there are times you feel so helpless. I thank God that I can turn to him. Please just say a prayer for my mom Kathy. Thank you all, I am so glad I found this site. God bless you all, Tammy
  6. I just wanted to come to you all and ask for your prayers. My mom has lung cancer with mets to the brain. She went for a mamogram last week and they called her back because there were discrepancies found. She has to go on Friday to have a sonogram done of her chest. Thursday she goes to her doctor to get the results from her brain scan to see how those tumors are doing or if they are gone. I just feel do bad for her, I try to be her strength and give her encouraging words, but this disease just sickens me. I'm sorry, but there are times you feel so helpless. I thank God that I can turn to him. Please just say a prayer for my mom Kathy. Thank you all, I am so glad I found this site. God bless you all, Tammy
  7. Hi everyone. I was wondering if anyone could give me some insight to what my mom is going through. She has nsclc with mets to the brain. She went through radiation, and has been having chemo for about 3 months or so. For the last 6 weeks she has not been able to have it due to her platelet count. It has gone from 45, to 50 and they say there is nothing she can do to get it back up. They won't give it to her until it reaches 100. She is very tired and is having such a hard time breathing. Is there anything she can do?? Will different food help? I am just searching for anything to help her. She told me that she is starting to feel like she did in the beginning. WIth the chemo she started to feel better, but now she feels she is getting worse. I am at a loss and need help. Any information would be appreciated. Thanks and God bless, Tammy
  8. Thank you so much for your input. There are days that you just need to release your feelings and get it out. Today is a better day and some times you need to put yesterday behind you. I think my Dad had time to think about how he was acting because today my Mom said he was better. I do not know what he is going through, I know how I feel and I am sure it is so much worse, but I just can't help to think that our feelings need to be surpressed around my Mom. She needs possitive energy not negative. I guess we will all have our bad days, I just hope they only last a short time. Thanks again for being here. Sometimes you guys are the only ones that I can talk too. Tammy
  9. Hi everyone. I just needed to come here and release my feelings. My Mom has lc with mets to the brain, she has been through radiation and is now going through chemo. My complaint today is unfortunatly my Dad. I love him with all my heart, but I am so mad at him. To make a long story short, he is not the most affectionate person. My Mom has always been the one to show that. My Dad has had an easy life with my Mom, she has always done everything and my Dad just does what ever he wants while Mom takes care of everything. Now that she is unable to do anything he has to do it all. He has did a pretty good job, but he does it with a hard heart, I believe. I talked to my Mom today and she said he has been grumpy today and it just makes her feel even more helpless. She is having a reaction to the chemo and has to make frequent trips to the bathroom. So that is causing added stress. I would love to tell my Dad to just stop acting like a child and help your wife. She has your life, now do it for her. But I won't because it will just cause added tension in the house. I wish he could sit back and tell himself to just enjoy the time he has with her. Stop acting like everything is such a chore. The last thing my Mom needs is to get more depressed because of how my Dad acts. I just needed to get this out. I don't know what to do. Thanks for letting me vent. Happy New Year to all!! Tammy
  10. Thank you all for your support. It is not taken for granted. I am hoping that my Dad and brother can find the same support through this that I have. What a terrible way to have to meet, but I am so glad to have met you. Tammy
  11. Has anyone heard of Cessiac and Yuccalive? If so, what have you heard. I read that they are tp help your immune system clean itself out and rejuvinate itself. Just wondering if this is good or what. Tammy
  12. Hi, first of all, I want to say this site is wonderful. I have read a lot of information here and am very thankful for this. I am a 30yr old that has found out that her 54yr old mother has NSCLC. After trying to absorb this information for 2 weeks we then found out that it has spread to her brain. The doctor found 3 or 4 small tumors on her brain by a head cat scan. I have never in my life had such shocking news. My mom is my best friend, and my mother. This has been surreal. Okay, so my question to all of you is, has anyone elce gone this route, and if so what are you doing. She started radiation 5 days ago, and is taking steriods. I am not sure of the dose. I would just love to hear from someone out there to give me advice. She has the support of her family, and we are trying to keep her spirits high, but that isn't always easy to do. Again, thanks for a great site, it helps to talk to people that know what you are going through. Tammy
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