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KatieB last won the day on May 12 2020

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About KatieB

  • Birthday May 25

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  1. https://www.global-patients.com/gp0674b-small-cell-lung-cancer-in-the-us/
  2. Bump- they need a couple more participants
  3. KatieB

    The CHRYSALIS Study

    Trial ID: NCT02609776 Condition: Non-Small Cell Lung Cancer Intervention: Parallel Assignment Study Type: Interventional Study Phase: I Study Sponsor: Janssen Research & Development, LLC Trial Start Date: May 24, 2016 Trial End Date: November 1, 2023 Participant Goal: 460 Age Group: 18+ years of age Gender: All Contact: [email protected] Study Summary: The CHRYSALIS Study is for adults with previously treated advanced non-small-cell lung cancer (NSCLC). The study is broken down into different parts and is specifically recruiting patients with NSCLC that have a documented primary MET Exon 14 skipping mutation. An investigational medication will be given to eligible participants to assess its the safety, tolerability, and anti-tumor activity. You may be able to take part in the study if you: · Are 18 years or older · Have been diagnosed with metastatic or unresectable NSCLC with a documented primary MET Exon 14 skipping mutation · Must have received prior treatment or declined currently available treatment. There are no limits on lines of prior treatment nor on the type of prior treatment. Patients are eligible post- chemo and post-MET TKI(s). Trial Eligibility Criteria: https://clinicaltrials.gov/ct2/show/NCT02609776?term=61186372EDI1001&draw=2&rank=1 Locations: https://clinicaltrials.gov/ct2/show/NCT02609776?term=61186372EDI1001&draw=2&rank=1
  4. “We currently have a study for patients who have been diagnosed with small cell lung cancer. We want to better understand the symptoms experienced by patients with small cell lung cancer and how those symptoms impact daily life. We are looking for people aged 18 and older have been with diagnosed small cell lung cancer and who have had chemotherapy. If you are a patient who qualifies and are interested in this study, you will be asked to participate in one or two 60-minute telephone or video interview. No medical treatment will be provided as part of this study. Eligible participants who participate in the interview will receive compensation of 150USD per interview for taking part.” https://www.global-patients.com/gp0674b-small-cell-lung-cancer-in-the-us/ We ask the participants to contact : [email protected]
  5. KatieB


  6. KatieB


  7. Join this event: Sign up here: https://lungevity.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=966
  8. Orig article here: https://www.healthline.com/health/cancer/chemotherapy-cost#takeaway Chemotherapy, or chemo, is a form of drug therapy that destroys fast-spreading cancer cells. It’s used to treat cancer and reduce symptoms like pain. If you have a cancer diagnosis, your doctor might recommend chemo on its own or with other treatments. In either case, you’ll likely have a lot of questions, including how much chemotherapy will cost. Understandably, navigating these costs can be overwhelming. Any feelings you have are valid. It may help to learn about chemotherapy expenses before you begin treatment. This way, you can get a better idea of what to expect. In this article, we’ll explore the factors that can affect the cost of chemotherapy. We’ll also provide tips for managing the costs with or without health insurance. Average chemotherapy cost The cost of chemotherapy varies greatly. A major factor is health insurance. Generally, if you have health insurance, you can expect to pay 10 to 15 percent of chemo costs out of pocket, according to CostHelper.com. If you don’t have health insurance, you might pay between $10,000 to $200,000 or more. The total price of chemotherapy also depends on: Type of cancer. The type of cancer will determine what kind of chemo treatment you need. Stage of disease. Typically, treating early stage cancer costs less than advanced stage cancers. Number of treatments. The more doses you need, the more chemo will cost. Duration of treatment. The length of your treatment plan is also a factor. Type of chemotherapy. Chemo can be taken by mouth or intravenously. It can also be injected into the skin, artery, or tumor. Treatment setting. Depending on the type of chemo, you may receive it at home or in a clinic, office, or hospital. Geographic location. Chemotherapy costs are usually higher in areas with high living costs. Side effects. If you experience side effects due to chemotherapy, you may need additional treatment. This can increase the overall cost of chemo. How to pay for chemotherapy Most health insurance providers help cover cancer treatment. However, every insurance plan is different. The best way to know what your plan includes is to speak with your insurance provider. Insurance Health insurance may cover the following aspects of cancer treatment: Office visits One of the main components of cancer treatment is frequent checkups with specialists. This includes specialists like oncologists. In most cases, insurance providers partially cover the expense of each visit. You’ll be required to pay the remaining fee. Depending on your plan, the fee might be a dollar amount (co-pay) or percentage (co-insurance). Your copay or coinsurance might be listed on your health insurance card. Laboratory tests Your doctor might perform laboratory tests, like blood or urine tests, as part of cancer treatment. Typically, the fees for these tests are billed directly from the laboratory. Your insurance provider may cover part or all these costs. Imaging tests The group of healthcare professionals managing your care might use imaging tests to monitor your progress. This includes tests like: X-rays MRIs CT scans These tests might be partially covered by health insurance. Procedures and treatment There are several types of cancer treatment: Surgery. Your insurance may provide partial coverage. If your surgeon is not in-network, your insurance plan might not cover the procedure. Radiation. Similarly, your insurance provider might partially cover radiation treatments. Drug therapy. Your provider might also help pay for drug therapy, including chemotherapy. Usually, intravenous (IV) drugs are covered under your medical plan, while pills are covered by a separate pharmacy plan. Also, if you have to stay in the hospital, you might have to pay a fee per hospital admission or day. Medicare Medicare covers chemotherapy, plus other cancer treatments, according to Medicare.gov. Medicare Part A covers costs related to a hospital inpatient stay. Medicare Part B provides coverage for treatment in outpatient settings, like an office or clinic. Financial assistance If you don’t have health insurance, the following foundations can provide financial help: Cancer Financial Assistance Coalition Patient Access Network Foundation Patient Advocate Foundation ADVERTISING HEALTHLINE EVENT There is hope ahead Watch Lesley Stahl, Alyssa Milano, D.L. Hughley & more as they recount the past year and look ahead to the future. Watch our insightful and uplifting conversation on hope, vaccines, mental health & more. WATCH NOW Managing chemotherapy cost Consider these tips to help ease the stress of managing chemo costs: Choose in-network providers. When possible, visit in-network providers. Your health insurance may not cover visits out-of-network. Plan for out-of-network visits. If you prefer or need out-of-network care, call your insurance provider first to determine if these services can be covered. Get a full list of treatment needs. Ask your healthcare team for a list of proposed treatments. Call your insurance provider to see what’s covered. Call pharmacies in advance. If you’re taking drugs for side effects, shop around and call different pharmacies to find the best price. Explore alternatives. Ask your doctor if there are substitutions for your treatments that insurance is more likely to cover. Check if you need pre-approval. Some treatments need to be pre-approved or precertified by your health insurance. If you start them without pre-approval, you might need to pay the full cost. Check coverage for emergency care. Ask your provider what forms of emergency care they cover. This way, you’ll have an idea of what to expect if you need emergency services. Pay your health insurance premiums. Though it may be difficult to pay monthly fees, it’s important to avoid a lapse in health insurance. Paying your monthly premiums on time will ensure you always have insurance. Keep track of bills. Ask a trusted relative or friend to organize your bills, receipts, and insurance claims. This will help you manage money and resolve any future issues. Work with a counselor. A social worker or hospital financial counselor can help establish special payment plans with your treatment center. Seek financial assistance. Foundations like Cancer Financial Assistance Coalition, Patient Access Network Foundation,and Patient Advocate Foundation offer financial help for cancer treatment costs. Support programs for coping with chemotherapy cost Coping with cancer can be difficult, but you don’t need to do it alone. There are many programs that provide support and care for people with cancer. These groups can connect you to other individuals with similar experiences. You may be able to find cancer support groups at your local hospital or online. You can also search for programs in your area on the following websites: American Cancer Society CancerCare Friend for Life Cancer Support Community Takeaway The exact cost of chemotherapy is different for each person. It depends on many factors, including the stage of your disease, number of treatments, and the form of chemotherapy. In most cases, health insurance will partially cover these expenses. If you have questions, don’t hesitate to contact your healthcare team and insurance provider. The more you communicate your concerns and needs, the easier it will be to navigate the costs. If you need financial help, consider working with a hospital financial counselor or financial assistance programs. Last medically reviewed on April 1, 2021
  9. REPOSTING: We are looking for patients and caregivers of those who have been diagnosed with Small-Cell Lung Cancer (SCLC) to participate in confidential remote (online/telephone) research. The purpose of the study is to understand the experiences and challenges of those affected by SCLC. The information from this study will be used to increase understanding of the experience and the impact of the condition. The study is open to adult SCLC patients and/or their unpaid caregivers in the USA. Your name and personal information will be held strictly confidential. Compensation will be provided. If you are interested in participating or looking for more information on this research, please contact Kim Slusher via email or phone Email: [email protected] Phone: 980-677-1404 Ways to Participate: Minimum time commitment: 90 mins maximum time commitment: 2.5 hours (over 5 days)
  10. ****(Reposting this information. Please print the attachment if you'd like to discuss with your healthcareprovider) Title: A Phase 2 Multicenter Study of Autologous Tumor Infiltrating Lymphocytes (LN 145) in Patients with Metastatic Non-Small-Cell Lung Cancer: IOV-LUN-202 is a clinical study for patients with non-small cell lung cancer that has progressed after a single-line of therapy with chemotherapy + immunotherapy for their metastatic disease. Patients receive LN-145, a highly personalized immunotherapy developed from their own immune cells (tumor infiltrating lymphocytes; TIL) which are harvested from their tumor, expanded, reinvigorated, and infused back to the patient to target the tumor anywhere in the body. To learn more about the trial: • Call center – 866-565-4410 – select option 3 • Visit - https://www.iovance.com/clinical/iov-lun-202-non-small-cell-lung-cancer/ • Email - [email protected] • Clinicaltrial.gov - NCT04614103 NSCLC trial with TIL_2.26.21.docx
  11. ***reposting information about this trial. Please print off the attachments if you would like to discuss this with your healthcare provider) Title: A Phase 2 Multicenter Study of Autologous Tumor Infiltrating Lymphocytes (TIL) in Patients with Solid Tumors: IOV-COM-202 is a clinical study for patients with relapsed or refractory metastatic non-small cell lung cancer using LN-145 in combination with checkpoint inhibitors (e.g., Keytruda or Opdivo). LN-145 is a highly personalized immunotherapy, developed from a patient’s own immune cells (tumor infiltrating lymphocytes; TIL) which are removed from their tumor, expanded, reinvigorated, and infused back to the patient along with a check point inhibitor to target the tumor anywhere in the body. To learn more about the trial: • Call center – 866-565-4410 – select option 3 • Visit - https://www.iovance.com/clinical/immunotherapy-for-solid-tumors • Email - [email protected] • Clinicaltrial.gov - NCT03645928 Solid Tumor Trial with Lung Cohorts_2.25.21.docx
  12. Definitely let the oncologist know. Immunotherapy may have a cumulative effect or it may be completely unrelated. He may order a scan just to be certain and that would give you some peace of mind- not to mention address that side effect. Wishing your mom the best. Please keep us posted!
  13. Reposting this opportunity created by lung cancer survivor and MD, Dr. Morhaf Achkar. "LUNG CANCER AMONG BLACK AMERICANS We invite you to be part of a research study about the lung cancer experiences of Black/African Americans. This study is being conducted by Morhaf Al Achkar and his collaborators. The goal is to understand the racial health disparity related lung cancer diagnosis. Please consider study participation if you are a Black/African American person with lung cancer. Caregivers, healthcare providers and community advocates for Black/African American patients with lung cancer are also invited to participate. The study consists of interviews, focus groups, and surveys, 6-12 months apart. Some participants may be asked to send photos or videos as well as record reflections with loved ones or other people involved in their cancer care. Some may also be asked to submit personal writings, such as journals. Some of the interviews and focus groups will be led by community members and some by researchers. This is an IRB approved study and IRB documentation is attached to the invite study email. If you choose to participate, you will be paid $50 for each interview or focus group, $25 for each survey, $25 for prompted conversations with caregivers and $5 for submission of artwork, writings or videos. The same amount will be paid for each follow up data collection instance. If you would like more information about this study, please call (206)-809-0311 or email [email protected] Agreeing to be contacted or a request for more information does not require you to participate in this study. Please complete the following eligibility survey and select your interview/focus group availability times here": https://www.surveymonkey.com/r/3BNKGBP
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