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Everything posted by KatieB

  1. KatieB


  2. KatieB


  3. Orig article here: https://www.healthline.com/health/cancer/chemotherapy-cost#takeaway Chemotherapy, or chemo, is a form of drug therapy that destroys fast-spreading cancer cells. It’s used to treat cancer and reduce symptoms like pain. If you have a cancer diagnosis, your doctor might recommend chemo on its own or with other treatments. In either case, you’ll likely have a lot of questions, including how much chemotherapy will cost. Understandably, navigating these costs can be overwhelming. Any feelings you have are valid. It may help to learn about chemotherapy expenses
  4. REPOSTING: We are looking for patients and caregivers of those who have been diagnosed with Small-Cell Lung Cancer (SCLC) to participate in confidential remote (online/telephone) research. The purpose of the study is to understand the experiences and challenges of those affected by SCLC. The information from this study will be used to increase understanding of the experience and the impact of the condition. The study is open to adult SCLC patients and/or their unpaid caregivers in the USA. Your name and personal information will be held strictly confidential. Compensation
  5. ****(Reposting this information. Please print the attachment if you'd like to discuss with your healthcareprovider) Title: A Phase 2 Multicenter Study of Autologous Tumor Infiltrating Lymphocytes (LN 145) in Patients with Metastatic Non-Small-Cell Lung Cancer: IOV-LUN-202 is a clinical study for patients with non-small cell lung cancer that has progressed after a single-line of therapy with chemotherapy + immunotherapy for their metastatic disease. Patients receive LN-145, a highly personalized immunotherapy developed from their own immune cells (tumor infiltrating lymphocyte
  6. ***reposting information about this trial. Please print off the attachments if you would like to discuss this with your healthcare provider) Title: A Phase 2 Multicenter Study of Autologous Tumor Infiltrating Lymphocytes (TIL) in Patients with Solid Tumors: IOV-COM-202 is a clinical study for patients with relapsed or refractory metastatic non-small cell lung cancer using LN-145 in combination with checkpoint inhibitors (e.g., Keytruda or Opdivo). LN-145 is a highly personalized immunotherapy, developed from a patient’s own immune cells (tumor infiltrating lymphocytes;
  7. Definitely let the oncologist know. Immunotherapy may have a cumulative effect or it may be completely unrelated. He may order a scan just to be certain and that would give you some peace of mind- not to mention address that side effect. Wishing your mom the best. Please keep us posted!
  8. Reposting this opportunity created by lung cancer survivor and MD, Dr. Morhaf Achkar. "LUNG CANCER AMONG BLACK AMERICANS We invite you to be part of a research study about the lung cancer experiences of Black/African Americans. This study is being conducted by Morhaf Al Achkar and his collaborators. The goal is to understand the racial health disparity related lung cancer diagnosis. Please consider study participation if you are a Black/African American person with lung cancer. Caregivers, healthcare providers and community advocates for Black/African American patie
  9. HI, Please see the information attached on two new trials to discuss with your doctor - Mariposa_PAG Clinical Trial_09Feb21.pdf PapIllon_PAG Clinical Trial 09Feb21.pdf
  10. Pregnancy and Lung Cancer Researchers at the University of Colorado Anschutz Cancer Center are collecting patient experiences related to being diagnosed with and/or treated for lung cancer while pregnant, being diagnosed shortly after giving birth, or considering becoming pregnant while on a TKI. At present oncologists and obstetricians have little data on these topics to offer their patients. Patients need more information to make decisions that balance the relative risks to both lives at stake. If you have had any the experiences mentioned above, you can help yourself and othe
  11. Ph I/II trial evaluating our KRAS G12C inhibitor, MRTX 849 as monotherapy & in combination with other agents in NSCLC and other tumors. https://www.clinicaltrials.gov/ct2/show/NCT03785249 Sapphire study. Ph III comparing sitravatinib+nivolumab vs. docetaxel in NSCLC patients who progressed on prior PD-1/PD-L1 based therapy https://www.clinicaltrials.gov/ct2/show/NCT03906071
  12. The VA Has Embraced Artificial Intelligence To Improve Veterans' Health Care https://www.scpr.org/news/2020/04/17/92010/the-va-has-embraced-artificial-intelligence-to-imp/ Inside a laboratory at the James A. Haley Veterans' Hospital in Tampa, Fla., machines are rapidly processing tubes of patients' body fluids and tissue samples. Pathologists examine those samples under microscopes to spot signs of cancer and other diseases. But distinguishing certain features about a cancer cell can be difficult, so Drs. Stephen Mastorides and Andrew Borkowski, decided to get a computer involve
  13. We need to hear from you!! “Are you worried about your lung cancer treatment and participating in clinical trials during #COVID19? If you live in the United States, please share your concerns with us so we can start to address them.” https://www.surveymonkey.com/r/COVID19_LC_treatment_clinical_trials
  14. its 75 today after some gloomy rainy days... I'm enjoying all the fun jokes and good news I'm seeing online this week. I hope all of you are doing well.
  15. I love this idea! And I love Oxford! I had a beloved Yorkie too (RIP) Here is my furry brood.
  16. KatieB

    COVID 19 shopping

    HI Folks. As someone who is immune compromised and on a clinical trial- I am a big germaphobe !! That said, we need to temper the hype and panic with the actual facts. I travel across the country for my job (that's not stopping) and I just try to remain vigilant during this time of year to keep healthy! If you're feeling ill or worried about going into crowds where others may be ill, do your shopping during slow peaks and buy in bulk so that you limit your time around crowds and potential illness. Experts recommend practicing the same safety advice we have been given during fl
  17. I actually don't have an answer for that but I would be happy to put you in touch with a representative from Jazz pharmaceuticals who could answer any questions you have? Happy to introduce you via email if you'd like to shoot me your email address!
  18. https://www.targetedonc.com/news/fda-to-accelerate-the-approval-of-lurbinectedin-in-small-cell-lung-cancer The FDA has granted Priority Review to the New Drug Application (NDA) for lurbinectedin, which is being considered for accelerated approval as a treatment of patients with small cell lung cancer (SCLC) who have progressed after prior platinum-containing therapy. The NDA was based on data from the phase II basket trial, which were presented at the 2019 ASCO Annual Meeting. In the study, second-line lurbinectedin demonstrated an overall response rate (ORR) of 35.2%, which include
  19. Over 1.5 million American troops were deployed to Iraq and Afghanistan between 2001 and 2011. Many returned with visible scars of war – but for some, their injury is hidden. At some of the military bases throughout those regions, waste materials were disposed of in so-called "burn pits." Breathing fumes from the burn pit fires appears to have damaged the health of countless veterans. Army veteran Dan Jentik struggles with what most don't even think about: taking a breath. Jentik is part of a lung study at the National Jewish hospital in Denver. But he's also part of a much larger group: h
  20. A new federal law has expanded eligibility for veterans exposed to Agent Orange during conflicts in the Vietnam era, including military serving along the Demilitarized Zone separating North and South Korea in the late 1960s. Language in a 2018 bill extending eligibility for the first time to thousands of Korean DMZ vets eventually was merged into a larger bill that Congress passed: the Blue Water Vietnam Navy Act, which restores eligibility for disabilities to sailors offshore of Vietnam on ships and to aircraft crews during the Vietnam era who also were exposed to Agent Orange. The
  21. A former naval officer’s ongoing dilemma in securing health benefits in his struggle against cancer was only the tip of the iceberg Monday as numerous examples of hardship and adversity facing many of our U.S. military veterans were met head-on at a forum attended by Rep. Jaime Herrera Beutler, R-Battle Ground, at the Veterans Memorial Museum in Chehalis. While Tony Karniss said he was generally satisfied with his medical care in treating renal cell, prostate and lung cancers, the same couldn’t be said about his failed attempts to obtain his federal veteran’s benefits to pay for his servi
  22. Early palliative care for advanced lung cancer increases survival VA study analyzed data on more than 23,000 veterans https://www.eurekalert.org/pub_releases/2019-09/varc-epc091719.php Early palliative care is associated with better survival in patients with advanced lung cancer, according to a study by VA Portland Health Care System and Oregon Health and Science University researchers. Lead author Dr. Donald Sullivan, with the VA Portland Health Care System Center to Improve Veteran Involvement in Care (CIVIC) and the Oregon Health and Science University Division of Pulmon
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