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KatieB

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  1. Like
    KatieB reacted to Tom Galli in You are not always your own best advocate   
    Katie,
    Indeed. Well said. Also true is my wife’s lament: “Thomas, you are NOT a doctor.”
    Stay the course. 
    Tom
  2. Like
    KatieB got a reaction from PaulaC in There are days....   
    I know many lung cancer survivors who feel this way too.  As a survivor- I also feel this way a lot. It's surreal.  The what-ifs are dangerous...and comparing this life with the one you used to have is also a bad thing to do.  
    I guess it's about taking things a day at a time until this life becomes your new normal.  The struggle is that cancer happened to you...it wasn't a choice you made...but now you're tasked with surviving it and making life good again.
    Many hugs for you.  Hope today is a better day.
     
  3. Like
    KatieB got a reaction from Moname3D in There are days....   
    I know many lung cancer survivors who feel this way too.  As a survivor- I also feel this way a lot. It's surreal.  The what-ifs are dangerous...and comparing this life with the one you used to have is also a bad thing to do.  
    I guess it's about taking things a day at a time until this life becomes your new normal.  The struggle is that cancer happened to you...it wasn't a choice you made...but now you're tasked with surviving it and making life good again.
    Many hugs for you.  Hope today is a better day.
     
  4. Like
    KatieB reacted to LexieCat in Acme Elixir - The Miracle Cure   
    I've been very disturbed the past few years at the increasing number of articles promoting quack "remedies" for all kinds of conditions that are posted on even credible news sites, mixed in with harmless clickbait and legitimate news items.  My personal opinion is that the mainstream media (which I regularly defend, and believe in) would do well to examine their own contributions to this kind of REAL fake news.  
  5. Like
    KatieB reacted to Ann C in The Pivot   
    I agree. If there is a miracle cure there would not be any people with cancer and it would be all over the news. I do however, believe there are things that are truly helpful. For me it was the following: Faith that it was possible to survive, second or third opinions, humor because not only is it healthy and releases dopamine into our system and because the whole reality of cancer is so surreal of course the people in our lives support.  I had a lobectomy 14.5 years ago, then stage IV metastasis 13 years ago and finally a a metastasis to my brain 11.5 years ago. The doctor that saved me was not the doctor who told me they couldn’t offer me much but the second doctor who said we can do this!  He also added to my chemo a drug called Avastin and I have called that my miracle drug. It prevents cancer cells from collecting blood vessels. Now I am only dealing with the late effects of surviving and that’s fine with me. 
  6. Like
    KatieB reacted to DanielleP in The Pivot   
    Beautifully said (as always!), my friend. Amen. Absolutely. Unfortunately, for my part, I never have the time or energy to lay out the proofs or disputes as thoroughly as I wish to or should. The pivot was, at the end of the day, an almost selfish solution, because it only leads to determining whether the person can be of use for my purposes or my mom's purposes, but it does not solve the root issue, which is absolutely the more important problem. 
  7. Like
    KatieB reacted to Tom Galli in The Pivot   
    I like your pivot approach. It does a fine job of sorting the wheat from the chaff.  What concerns me most however is how prevalent outlandish miracle cure myths have become in our society.  The result is some believe the fairy tale and invest in the cure and "suffer" both economically and medically.  The time for 1870s miracle elixir is done.  Lung cancer is bad enough but chasing hope in a high priced bottle of nonsense is just plain stupid.  I listened to an intelligent man tell me that intravenous Vitamin C was a sure-fire cancer cure.  When asked for evidence, he related that Linus Pauling, Nobel laureate Chemist, killed cancer cells with high concentrations of Vitamin C in a petri dish. Ok, sure, put high enough concentrations of almost any reagent in a petri dish and it will kill cells.  Pauling did believe that high concentrations of Vitamin C, taken intravenously, cured cancer but many subsequent science based studies have failed to ratify Pauling's belief.  Yet this myth lives on and well intended and not so well intended people propagate it!
    We lung cancer survivors already face the self-induced stigma that tamps down research funds for science based treatment methods.  The solution is not to embrace non-science based methods.  We need to go to war against the miracle cure.  Purveyors of these cures need to be publicly ridiculed. 
     
     
      
  8. Like
    KatieB got a reaction from Susan Cornett in Another recurrence, another call to Mom and Dad   
    Thinking about you.
  9. Like
    KatieB reacted to MBinOregon in 10 Steps to Surviving Lung Cancer from a Survivor   
    Tom, I read this originally after my initial post on the newbie topic back in January this year.  I found your reply to my post highly encouraging and all your articles quite "sanguine" as you put it 😊  7 months (and a lot of treatments) later, I'm reading it again and it's still good, if not better.  Thank you. 
  10. Like
    KatieB got a reaction from Roz in There are days....   
    I know many lung cancer survivors who feel this way too.  As a survivor- I also feel this way a lot. It's surreal.  The what-ifs are dangerous...and comparing this life with the one you used to have is also a bad thing to do.  
    I guess it's about taking things a day at a time until this life becomes your new normal.  The struggle is that cancer happened to you...it wasn't a choice you made...but now you're tasked with surviving it and making life good again.
    Many hugs for you.  Hope today is a better day.
     
  11. Like
    KatieB reacted to DrBee in There are days....   
    Katie, I am out of likes for the day, but this really hit home to me today, with hubby's stage iv dx yesterday and our 1 year wedding anniversary coming up in two days. Trying to balance "how many of those things we were going to get around to one day do we try to squish in now?",  and hoping we don't have to squish them too much", and still being really pissed off that the life were building is going to look so much different and likely be so much shorter in duration than we had thought. 
  12. Like
    KatieB got a reaction from Susan Cornett in There are days....   
    I know many lung cancer survivors who feel this way too.  As a survivor- I also feel this way a lot. It's surreal.  The what-ifs are dangerous...and comparing this life with the one you used to have is also a bad thing to do.  
    I guess it's about taking things a day at a time until this life becomes your new normal.  The struggle is that cancer happened to you...it wasn't a choice you made...but now you're tasked with surviving it and making life good again.
    Many hugs for you.  Hope today is a better day.
     
  13. Like
    KatieB got a reaction from Tom Galli in There are days....   
    I know many lung cancer survivors who feel this way too.  As a survivor- I also feel this way a lot. It's surreal.  The what-ifs are dangerous...and comparing this life with the one you used to have is also a bad thing to do.  
    I guess it's about taking things a day at a time until this life becomes your new normal.  The struggle is that cancer happened to you...it wasn't a choice you made...but now you're tasked with surviving it and making life good again.
    Many hugs for you.  Hope today is a better day.
     
  14. Like
    KatieB got a reaction from BridgetO in There are days....   
    I know many lung cancer survivors who feel this way too.  As a survivor- I also feel this way a lot. It's surreal.  The what-ifs are dangerous...and comparing this life with the one you used to have is also a bad thing to do.  
    I guess it's about taking things a day at a time until this life becomes your new normal.  The struggle is that cancer happened to you...it wasn't a choice you made...but now you're tasked with surviving it and making life good again.
    Many hugs for you.  Hope today is a better day.
     
  15. Like
    KatieB got a reaction from Judy M. in There are days....   
    I know many lung cancer survivors who feel this way too.  As a survivor- I also feel this way a lot. It's surreal.  The what-ifs are dangerous...and comparing this life with the one you used to have is also a bad thing to do.  
    I guess it's about taking things a day at a time until this life becomes your new normal.  The struggle is that cancer happened to you...it wasn't a choice you made...but now you're tasked with surviving it and making life good again.
    Many hugs for you.  Hope today is a better day.
     
  16. Like
    KatieB reacted to Evangeline in Don't Help Me. Please Help Me.   
    You must have a camera in my house!
     
  17. Like
    KatieB got a reaction from LaurenH in Cancerversary   
    Love it!!  
  18. Like
    KatieB got a reaction from Susan Cornett in Cancerversary   
    Love it!!  
  19. Like
    KatieB got a reaction from Tom Galli in Cancerversary   
    Love it!!  
  20. Like
    KatieB got a reaction from Tom Galli in My Friend Randy   
    I just saw this.  I'm so very sorry.
     
  21. Like
    KatieB got a reaction from Tom Galli in Fourteen Years, Three Right Feet!   
    wonderful news!! Here's to so many more! 
  22. Like
    KatieB reacted to Alisa in Alisa Brenes' Story   
    Thank you for posting this, Lauren ... I just found it by accident when I googled my name for something else
  23. Like
    KatieB reacted to PeterB in Uncertain Treatment Outcomes: A Baseball Model   
    Lung (Cancer) is a very nasty opponent...it doesn't usually play by many rules so be prepared to be prepared. 
    No hitters and shut outs are frequent but if you take a swing you never know what might happen.
  24. Like
    KatieB reacted to Susan Cornett in Uncertain Treatment Outcomes: A Baseball Model   
    Great analogy!  I'm swinging for the fences every day....
  25. Like
    KatieB reacted to michellep in Where Did Everyone Go? When People Disappear From Your Life   
    Wow!  This really hit home for me.  When my husband was diagnosed with lung cancer only one of his eight adult children from a previous marriage came to see him and it was not out of concern.  It was only what I called an "inspection" to report to the others.  My husband had always been a good father to them and was heartbroken from the lack of phone calls or concern from any of his family members.  We had "no one" that we could count on.  It was a very devastating time and my heart broke for him.  He was the most loving and giving man I had ever known and was the love of my life.  I will never understand nor will I ever forgive.  I wish that on no one
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