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Steven_Texas

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  1. Hello everyone... Again, thanks for the support. It is helping both me and my mom. I just got off the phone with her and was sharing some of the wonderful things you all had to share. It meant a lot to her. She is starting Topotecan on Monday (5 days in a row, once a month for 4 months). She is very worried about nausea. She experiences a lot of pain when she is sick to her stomach, so she is wanting to avoid that as much as possible. They said it should be very minimal with this chemo drug, but that everyone is different. Did Topotecan cause any stomach problems for any of you or your loved ones? Best regards, Steven
  2. I just wanted to write all of you and tell you thank you for the warm responses. When I went to be last night, I was very sad. Throughout the day, you all have made me and my mom feel a lot better. I shared your words with her. She said you all were right, "I am not time line, I am unique, and I will beat the odds." Again, thank you so much for taking the time to respond. I now know I can turn to you all with questions, and use the resources you have given me to do my own research as well. All the best, Steven
  3. I have been reading the boards and it just breaks my heart to know other people have to feel the pain I feel on a daily basis. My mom was told she had a compression fracture on her spine in mid-May that would require surgery to alleviate the pain. Upon receiving the cat-scan results before the surgery, her doctor informed her that she had a mass in her right lung. She immediately was checked into a hospital for further tests. After going through a bronchoscopy, they found that her tumor was indeed malignant and had spread to the lymph nodes in her medial cavity and along her spine (the now known cause of the fracture). As many of you know with going through the quick progression of the lung cancer, it was a complete shock when her oncologist came to her hospital room and told us that she has two choices. Treatment or no Treatment for small cell lung cancer. If she chose to not receive chemo he gave her 6 weeks to live and with treatment maybe a year. My mother has been one amazing fighter when it comes to beating the odds of a bad medical diagnosis. In 1988, after being diagnosed with both Multiple Sclerosis and Systemic Lupus, she was given at most, two years to live. 20 yrs later she is happy to have beaten those odds, but then came the diagnosis of cancer on top of everything else. After 4 rounds of chemo, carboplatinum and VP 16, her tumor shrunk considerably. She finished the last round in September and the oncologist wanted to do a scan every three months to check for any signs the small cell lung cancer was growing again. Last week she was having a considerable increase in the amount of back pain she was experiencing throughout a normal day. The doctor did not like these changes, so he ordered an early scan. Today, after only 1.5 months since the last round of chemo, we found at that it is growing again. My afternoon was spent calling family and friends to let them know the results, because my mom could not verbalize the news. It is so hard to watch a parent, who is only 57 years old, go through so much pain. My mom is one of my best friends and has truly been a hero in my life. To know she is so scared and upset about having her life cut short, is hard to handle. She needs me to be strong for her, and that is what I plan on doing until the very end. I know the next year is going to be difficult due to the aggressive form of cancer she has. I was lucky enough to have an employer that let me move in basically a week's notice from Washington DC back to Texas to work remotely and to be closer to my mom. The time I have now with her is so precious and I am thankful I am here to help her. Thank you for letting me verbalize my experience. I can talk to friends, who have been very supportive, but they do not truly understand all that I am going through. It is nice to be able to say it to a group of people who have similar fears and heartbreak. I wish you all the best as you go through this, Steven
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