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Don M

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Posts posted by Don M

  1. Yah Linda...I thought my retirement would be different too. I was really surprised and angry when I found out I had cancer. But, I am still enjoying my retirement such as it is and am grateful for the times where I feel good with friends and family. Your husbands' cancer looks like it will be easily treatable and he could have many good years to come...

    Don M

  2. I read your "book" with interest Carole. Unless there is some sort of miraculous bifurcation for me where I end up NED or stable for a long time, I may be following your path in the not too distant future. I am not going to chemo myself into the ground. I stopped taxotere after 4 rounds when it became apparent that it was causing severe sob and I had to go back on high dose prednisone to recover. Right now I am off treatment, but I did get stable disease with the taxotere. It has been 4 years since I had carboplatin and I have never had taxol. I will try that if I get more progression, but i think that will be my last chemo.

    Don m

  3. Gloria, I noticed that when I took xanax about an hour before I ate, my appetite increased. It is an anti anxiety drug.

    I hope the megace works for your dad and he can put on some weight now.

    Also, I too have heard of people having surgery with just a single met to the adrenal. I think Dr. West can speak to that.

    http://cancergrace.org/lung/

    Don M

  4. Welcome Amy. Perhaps your dad is being sent to the pulmonologist to evaluate his lung function in case he is a candidate for surgery. The pulmonologist is the one who says yes or no for surgery. You will know a lot more after the pet scan report comes in about the extent of his cancer. I hope it can be stopped with surgery.

    If the anxiety is getting to be too much for you, you could ask your gp for some xanax. You will feel much better once a treatment plan is implemented.

    Don't pay any attention to the statistics. I have been dinking around with the stupid cancer for almost 5 years now.

    Don M

  5. I saw my oncologist today. I am going to stop the taxotere. The original plan was to do 6 infusions and then take a break for 3 months and scan. My oncologist says that after 4 infusions I have most of the benefit and we thought it would be better to stop now, especially since I have just one lung and the taxotere appears to be causing breathing problems. So, I will take a break now and scan in 3 months and then see.

    Don M

  6. Hi Blue Angel. I am having more fatigue too. I try to take short naps interspersed through the day. I try to be active for at least an hour. I go for short walks. I have heard of others taking ritalin to offset the fatigue. I am going to ask my oncologist about ritalin today.

    Don M

  7. Yah, it does sound scary. I hope the taxotere puts the brakes on quickly. It seems to be working for me. I have one huge tumor in my upper lobe and many small tumors throughout the rest of my lung that are all stable for now. I am glad you had a nice summer Tracy.

    Don M

  8. If the only residual disease is just one liver spot, I would choose cyberknife. It takes months for the effect to show up from ck treatment, so maybe your mom's oncologist would have your mom be on tarceva in the meantime. The ck treatment is strictly local and it may be a good idea to have the tarceva in place to make sure the liver gets a systemic treatment too.

    http://www.cyberknifesupport.org/forum/

    http://www.winthrop.org/departments/cli ... yberknife/

    Don M

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