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Andrea

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Posts posted by Andrea

    Scared to death of the Tarceva Pill

    in INTRODUCE YOURSELF!

    Posted

    Hi. My dad has been on Tarceva for a few years .I do have to say, he developed the bad rash and stomach issues. But he has learned to live with it, although unpleasant. The good news it is keeping him alive and he is functioning pretty normal. He does take heavy doses of antibiotics for the rash. Not everyone develops the rash of course. When his rash gets super bad, like scary to be see in p ublic, he stops Tarceva for a week to let it calm down and then goes back on.

    My dad will be on it for the rest of his life and despite the side effects, it really is an amazing pill. It doesn't cause fatigue or other issues. Just tummy and rash. I wanted to be super honest. If you have f urther questions email me at andreascheff@roadrunner.com

    Metastasis To Lung

    in GENERAL

    Posted

    Thoughs & prayers being sent your way. I believe your way of thinking, what more could have been done earlier, has been felt by sooo many patients & their loved ones. Cancer is such a beast, it is unpredictable & the enemy. Hang strong.

    been

    in GENERAL

    Posted

    Dave I am so sorry to hear about your struggles. I have a few choice words about what you described your wife but profanity is not appropriate;) I wish I had words to make you feel better. Baby steps!

    Need help finding Hope

    in GENERAL

    Posted

    Janet,

    While not the same, I remember at the end, before we knew it was time to give up, my mom had a day she considered stopping and as her daughter, I was mad and didn't get it :( I was selfish. I see that now. Turned out the dr said she couldnt make any decisions until she had the fluid drained from her lung b/c she was not really with it and it was the end.

    My advice, which was our motto, was go with whatever the oncologist said.

    Love and hugs to you.

    A reintroduction

    in INTRODUCE YOURSELF!

    Posted

    Hi everyone. Some of you may remember me, to others I am new!

    My mom was diagnosed as IIIA in 2003. Lcsc was my lifeline!!! My mom was considered an amazing survivor until cancer reared it's ugly head. Last February my mom was re-diagnosed as Stage iv and she passes in April. Whether it was a new primary or some relation to 2003 is debatable.

    My dad has been living with BAC lung cancer since 2006.

    I have 5 year old twins. I am hoping to become more involved. I was a bit too absent the past few years. Kudos to Katie for setting up the mobile version. Love it!

    Tarceva Question

    in EGFR

    Posted

    My dad has had major tummy issues and hohrrible rash the entire time on Tarceva. Sometimes worse than others. Never heard of a Chrons link. Maybe call the manufacturer?

    Squamous & adenocarcinoma found after surgery

    in NSCLC GROUP

    Posted

    DEFINATELY see an oncologist! Chemo will likely be recommended. I would do what they say! June 21 is not that far. I have found with both of my parents having different kinds of lung cancer that sometimes time is of the essence and other times not. After surgery if they think they got it all, they probably feel it is ok to wait a few weeks to see oncologist, that happened with my dad b/c it wasn't urgent. My mom was IIIA and had to start ASAP, so she was in immediately.

    Most important thing is to be your own advocate

    what is the Importance??

    in GENERAL

    Posted

    For me, LCSC was a place to gather information. To be informed. To gain knowledge and understanding of treatments so when I went with my parents to the doctors I could understand what was going on. It gave me the upper hand. I was able to ask intelligent questions.

    Also I met some awesome people along the way!

    The Lioness

    in GRIEF

    Posted

    Thank you! In 2003 my world changed & I met all of you at LCSC. You have been amazing. Life almost moved on but in 2012 cancer reared its ugly head again.

    I miss my mom. My heart breaks for all of us who have been on this journey

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