MaribethW

Thank you for all the replies so quickly. My doctor keeps reminding me to enjoy not being in treatment because there will be a time when I will be wishing to be in that position. I have been very blessed to have a very slow growing tumor at this time. In fact from October to now nothing has changed on the scan. Thank you all for reassuring me to enjoy not being on treatment and letting my body get stronger inside so when I do have to face treatment again I will be that much stronger! Thanks Ned for that web site you referred me to. I have heard of Dr. West through the Lung Cancer Alliance group but never have talked to him personally. I will definately check it out. Thanks, it is great to have the support. Maribeth

I am a 2 1/2 year, going on 3 in May, survior. I just wanted to know is anyone out there not actively in treatment for Stage IV NSLC? I just want to know if how I feel at times just normal or maybe I need to talk to someone. I just want to know if you are not active in any treatment at the moment do you sometimes wish you were because doing nothing makes you feel like you are letting cancer do what it wants? I mean I do get scans every 3 months and have been N.E.D. since last March, so I am more than thankful for that, but I guess it kind of scares me at times, and not the majority of the time, but sometimes that not doing anything will undo everything I have fought so hard to get to. In one way I fully understand the doctor is watching everything closely, but I guess after completing two separate rounds of chemo and two different rounds of Tarceva, I feel at a loss at not doing anything. Just wanted to know if anyone else has gone through that period.