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CMilo

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  1. Typical of me - bull in a china shop. I didn't post here 1st to properly introduce myself or tell you about my wonderful father. So, here I am now to do things proper. Not sure what to say or how much so gonna stick with Dad's illness timeline, I can fill other blanks in later as needed. Dad is a 67 yr old, now non-smoker and a diabetic and goes for doctor visits every 3 months. At his October 2008 appointment the doctor detected 'something odd' in his carotid artery on the left side of his neck. He ordered a series of tests. X-rays, MRI's... The testing all began about 01 November 2008. Thanksgiving 2008 Dad tells me about the tests, but says nothing to worry about (that's a dads' job, right? ). All is pretty quiet from him, stalling now that I look back... until 23 December 2008. I get the call from him. The PET scan results are in and he 'lit it up like a Christmas tree' (oh, goody) and yes, he has lung cancer. At this point we didn't know the type or the stage. But, then informs me that the doctor has scheduled surgery for him on 26 December 2008. NOW I'm flipping out. On 1 hand I'm glad they are jumping on this right away. On the other I'm thinking 'what's the huge rush?, it's got to be really bad and dads just not telling me'. We all smile and get thru the holiday as best we can - pack a bag and I head to dads Christmas night to assure I'm there in enough time to get him to the hospital in the early, early AM. (Dad lives about 40-50 minutes from me) Surgery is scheduled for 4 hours. The surgeon comes out in 1. I nearly collapse, thinking the worst. The news wasn't good, but not as bad as I feared. There are 2 tumors on his upper left lung and the lymph is 'fused' to the lung (this still makes no sense to me) - which is why they shortened the surgery, they weren't able to access what they wanted to because of the lymph. A port is installed, and we spend 3.5 days in ICU until he's released. His surgeon comes to see him after he's had time to fully awaken and informs us that he is as surprised as anyone, Dads cancer is due to Radon exposure. Not the smoking. I'm sure the smoking didn't help though... He strongly recommends we all have our homes tested and to inform everyone we know. (Further reading on this shows it's the 2nd leading cause of lung cancer - http://www.cancer.gov/cancertopics/factsheet/Risk/radon - which I didn't know, and was more than a little upset about) Also an MRI is done of Dads head to see if the cancer has spread there, thankfully - so far it hasn't. Fast forward 2 weeks. 12 January 2009. 1st radiation treatment (to last 5.5 weeks - 5 days a week) and 1st chemo of 12 (6 treatments - 21 days off - 6 more treatments). Chemo treatments of Cisplantin & Etoposide are given 6 hours on Days 1 & 6, 45 mins - 1.5 hours the other 4. Photon radiation received daily (except weekends). Dad is also given a small pharmacy of drugs for a miriad of ailments. I finally speak to the radiation oncologist privately (Dad doesn't want to know) to find out exactly what he has and what stage. I am not ready to know what their 'timeline' is yet. Dad has NSCLC Adenocarcinoma stage IIIa-IV. *knock wood* THIS round of chemo, Dad has handled without a hitch. Not 1 side-effect, appetite has been great & despite his blood sugar not leveling out since surgery and being given 10 mg of Decadron daily his B.S. levels have dropped to the low 100's and have been pretty steady. (I guess my continually nagging about him needing to 'graze' instead of 1 or 2 large meals paid off!) Labs are being done on the 27th of January and again on the 6th of February (the Friday before starting 2nd round of Chemo). IF all goes to plan, they intend to do another surgery to remove the damaged portion of his lung. I can't recall right now what they said they would do about the lymphnode. Dad is married and his wife is doing a great job of journaling everything and keeping all the appointments straight. As I work in the afternoons I am able to sit with Dad during a few treatments. We initally anticipated having to drive him to and from, but that hasn't been the case. He's actually looking to start visting the Cancer Wellness Center where he gets treatments. This is all such unchartered territory for all of us. I have a million questions and then 2 minutes later I just want to curl into a ball and pretend it's all a horrible nightmare. For Dad? I'm upbeat and happy. I act, treat and talk to him as I always would. My job is to make him laugh. But - when I'm all alone, I'm so scared. I don't know what to do, if I'm asking the right questions.... it's all so overwhelming. Nothing of course compared to what many of you and Dad are enduring. So - that's pretty much it I guess. I try to read up on which foods are best for him to be eating and bring lots of it to him. I keep bringing up golf season - Dad is SO looking forward to golfing this year. I even asked him if he'd teach me.. and well, just take each day as it comes. Cuz, well - you can't change yesterday and tomorrow is promised to noone. I do want to thank you all for taking your time and giving so much of yourselves when often it appears, you need to keep some of it sometimes. I have prayed for you here since I've found this site each night. I'm not a church person, but believe strongly in God. I pray he gives you each health, comfort and peace. I thank him for helping me find you.
  2. CMilo

    SCLC

    I'm not sure of protocol here, if I can pose a question here or should ask somewhere else. Admins, if this is improper - please remove and notify me, I will learn here, I promise. JstDzy - you posted hearing loss confirmed due to Cisplatin. If it's not too rude of me to ask, how did this happen? Could anything have been done to prevent it? If I'm out of line, please let me apologize now...
  3. Never mind... 44 readers no answers. Thanks though.
  4. CMilo

    ACRONYMS??

    You are all amazing - thank you for your well thought out, warm responses. Truth is - I don't know if we want to know his prognosis, none of us has asked. He has said he doesn't want to know. I see it from both sides. 1 - who wants to live with a ticking bomb saying, ok - on such n such date... that's it. No one obviously. I don't think I would, and I know having that alarm clock on my dad would only add to my panic. On the other side, there are nuts n bolts to consider. Issues to be addressed, unpleasant ones. Dealing with them almost makes it 'seem' like someone has given up, but from my point of view I don't think so... oh well... I will head over to the other site ( I think I found it once before when I 1st got the news) later today. It's all so scary and for unchartered. I can barely pronounce (and in some cases flat out can't) some of the stuff going on with him right now between Dx ( ) , treatments, meds etc, etc.... I suppose at this point I'm looking not only for information but some clarity. I too am sorry I had to find this place, but I am very happy that I did now that I had to. Did that come out right?? ** Oh almost forgot. Maybe this will make sense to some of you. This is taken directly from his pathology report. Microscopic examination: Sections demonstrated an enlarged lymph node with the lymphoid elements being largely replaced by nests and islands of malignant epithelial cells. the epithelial cells are relatively large and in some areas the nests show lumen formation consistant with glandular differentiation. Immunohistochemical stains for cyyokeratin AE1/AE3, cytokeratin 7 and TTF-1 are strongly positive in the tumor cell population. Stains for cytokeratin 20 are negative. There are 2 tumors 1.6 & 1.8 cm in the upper portion of his left lung. MRI negative on brain scan (which in this case is a GOOD thing!!). Also, little side bar. Yea, another one... Dads surgeon said his cancer was caused by Radon exposure... though I'm sure his smoking *which he finally quit* didn't help.
  5. CMilo

    ACRONYMS??

    Wow, thank you for the quick and warm replies. To be honest, I really don't know a heck of a lot. He has stage 3A-4 Adenocarcinoma (NSCLC). The call after all the test results came in on the 23rd of December, dad was in the hospital on the 26th for surgery. They installed a port and poked around a bit... our final determination of what he has. He started chemo and radiation on the 12th of January. 6 chemo sessions 21 day break then another 6. Radiation the whole time (photon). At that time they will determine if the treatments reduced the 2 tumors and then they might do surgery to remove the affected sites. To me? Why didn't they yank the buggars out when they were there the 1st time? Opinions vary as to why... Most of the people we've encountered have been wonderful & helpful. Before this is over I may end up smacking some 'high n mighty' surgeon onto his rear... but that's another topic altogether... The chemo he's getting is Cisplatin & Etoposide. 2 names I didn't see while reading here. So far (5 treatments, 1 6 hour one) dad has had no side-effects, other than a increased appetite... I've never seen him eat so much!! Initially they had him on 20 mg of Decadron but since he's had no ill effects they are dropping him to 10 mg. I don't know if any of this I'm saying is even pertinent. I take notes and try to figure out what in the world is going on, but holy cow... so much info. Oh, and might I mention I have found out LC is the most underfunded. I'm all for savin the TaTa's, being all cute n bouncy n stuff - but come on!! LC is the deadliest of all the cancers and it's the least funded. THIS I plan on making my own personal venture to correct (no matter how trival my contributions..) Please, ask questions for me to answer or to ask. I'm so lost. (and scared)
  6. CMilo

    ACRONYMS??

    So many questions, I have no idea where to start. I have been pouring over posts for hours now over 2 days, just now joined. I have smiled and cried while wandering through these halls. I'm am sure to be posting more as my fathers diagnoses *Dx* (ha! learned one!!) is new - 23 December, yes - quite the merry Christmas around here... And I am utterly clueless... I have been searching, but can't seem to find a thread that defines all the common acronyms used here. Oh, yea - I finally figured out was NED was too. At first I thought he was just a popular guy around here. Humor, not always good humor is my coping mechanism, please bear with me. Any direction is greatly appreciated. Candy
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