Kneesaa

Hi Friends, I thought I better check in and see how everyone is doing. I had mt CT/PT scan last Monday. On Tuesday morning my oncologist (The one I clash with) must have had a change of heart and had one of the nurses call me to tell me is was perfectly normal. She usually likes to keep the suspence going until you have an appointment which wouldn't have been until Thursday. So On Thursday I go in for my forth chemo treatment and to see the dear doctor first. I told her I really appreciated getting that call, it eased my mind so very much. She didn't have much to say except that "well sometimes she gets the time to read a report and get back to the patient". I have been with her going on three years now and this was a first. Anyway what better news can you get than from your eyes to your thighs you are cancer free? I didn't even get a chance to enjoy it before she announced that after I finish my six rounds of Chem she will be putting me on Terserva. Now I have read horror stories about this pill and I am not looking forward to having to take it . I asked her how long she expected to keep me on it and her reply was "UNTIL THE CANCER COMES BACK" As usual I left the office teary eyed I am really gettting to dispise this women. Seems she can't let me leave her office without making some kind of comment to break me down. Hate is not in my volcabulary but it seems like it will be soon. I have been talking to a doctor friend and he has suggested that I finish up my treatments at this cancer center and than run to find a new doctor. He said to get a lung specialist and just make an appointment for a sit down consultation. If you remember they got my pathology wrong and I asked that it be corrected. I went from a T2N1MX to a T4N0MX which restaged me as a 3B. Big deal. However, they never changed the lymph node involement on Page 3 so it contradicts itself when you get to page 4. I have had it. Good thing I have you guys to sound off to, Thanks for listening.

Hi Friends, Thought you would all get a stir out of what happened to me on Thursday. I went for my second round of chemo. I had already received the bag with the Avastin and the Taxotere. Thrid bag was the Carboplatin. I had received about one third of the dose. The Cancer Center where I receive my treatments is a bright pleasent place with a lot of chatter and cookies going around at all times. The man in the chair next to me was just finishing up his treatment and the nurse was helpinmg him to lowere the recliner. Just as the foot rest hit the floor, my chemo bag exploded and as I looked up the chemo was raining down on me. Of course it had nothing to do with the guys recliner, it was just the timing. Talk about excitment. I got a little in my eye and it splashed all over my face. All they could do was throw me a wet wash cloth until they could get their gear on to come near me and unhook me to get me to the eye wash station. The scariest part is that the nurse that happened to be walking by had the finish taken right off the watch she was wearing. My face and eye survived and now I am the talk of the center. Only me could this happen to. I had to go back on Friday to finish treatment with a guess on how much to give me. I was just very greatful that they didn't make me go out in the parking lot and get squirted off . I had to have my clothes put in a haevy bag and was instructed to wash them in very hot water Can you imageion calling my husbad and telling hime to bring me new clothes and a coat with all the excitment going on in the background????? Good sign or bad? We are laughing today. Hugs to you All, Kneesaa

This is for Donna, Muriel, Judy, Ned, Rich and Wendy. I am so happy to have found you all. Everyone here seems so kind and interested in each other. I Just wanted to thank you for the kind welcome and to say I guess I will be hanging out with you guys from now on. ((((HUGS)))) Kneesaa

Hi Everyone, I am a new member here but I am not new to Cancer. I am soon to turn 63 and I live in the NW Hills of CT. My story is rather strange the way things happened. I must have had a Angel watching over me In late August of 2006, my neighbor across the street was putting in an inground pool. They had dug up some beautiful big marble looking rocks that I just had to have for my garden. I was climbing the dirt piles and picking out rocks that I could lift but not straighten up with. They were big and I guess I was showing off a little. I don't like to be considered old. So happens three days later I had my appt. with my PCP for my regular check up. Naturally the first thing they ask you do is "pee" in the cup. A short time later the nurse came in and said I had microscopic blood in my urine. I tried to tell the doctor about the rocks but he didn't buy it and sent me off to an urologist to have my bladder check. He ordered a cat scan. The bladder was fine but it had picked up a spot in my middle right lobe. The report said it was 2.5 cm and should be watched for matastic disease. My doctor said we are not waiting for anything, we will find out what this spot is. I had the dediicated lung cat scan with constrast, a Brain MRI, a full body bone scan and finally the Pet scan. The spot lit up so I was sent for a needle biopsy. Came back as adenocarcinoma. Within three weeks I was in the hospital gettting the little skinker removed. My Thoresic surgeon thought it best to take the whole middle lobe - better chance for not having a reocurrance. I was Stage 1A, the tumor actually measured only 1.5 cm and I was told no further treatment. I didn't need an oncologist but the cancer center where I hade gone for opinions asked if I would be willing to participate in a phase tthree selieum trial. I agreed. I went for scans every three months until December of 2007. At that time I was told I could now start coming in every six months. Life was good! In June when I went back for my Cat Scan they saw a little something on the apex of my LL Lobe. I told the doctor that I had a bad chest infecrtion during the winter and she agreed that was probably all it was but wanted me back in three months. Thia brings us to September 2008. Had the scan - all is clear and I am put back on six month cat scans. Early December I get a call form the cancer center asking me if I would mind coming in for an extra scan because I had the one in September and now the clinical trial schedule was going to be all off. I came so close to saying no but I agreed and went. This time the previous mentioned spot showed up again and had grown to 8mm. too small to biopsy. I just wanted the thing out of me. I had a Pet scan and it lite up. I than went through all the orther tests, Brain and Bones all clear. Winthin a week I was getting the surgery. The sugeon tried to do the Vats on me but couldn't find the spot. They than did the major slice open and still couldn't find it. The surgeon actually had to palpatate my lung with his fingers to find it. He removed it along with about 1/8 of my lung. Pathology came back that it was indeed adenocarcinom again. Trouble is they couldn't tell whether it was a matastized tumor or a new primary. Because it was on the left and my first was in my right I am now officially a Stage IV. The tumor is out and I have no cancer anywhere in my body and yet I am a Stage IV. Kinda hard to take after going over two years as a Stage 1A. I have started chemo - Taxoter and Carboplatin. Avastin will be added at my second round. I go every three weeks for 4 to 6 rounds. Don't know yet. Than she will keep me on Avastin for awhile along with Tarceva for who knows how long. I am thinking it is a bit much but I'm not the oncologist. My hair is falling out, I am depressed, and yet the way everything happended, almost by accident I feel very blessed. If my neighbors hadn't put in that pool I would still be walking around with the first tumor and probably starting to get symtoms by now. Yes I have pity parties but than I read about what others are going through and I am ashamed of myself. Hope to meet some of you members and exchange stories, until than I will send comforting HUGS to all. Kneesaa