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Nushka

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Posts posted by Nushka

  1. It has been over 8 years since my last treatment and I am still NED. March 10th will be 9 years since surgery. About all my docs do now is a chest x-ray once a year. I would (after all this time) still feel better if I had one more CT/PET but is so expensive and my oncologist says I don't need the radiation. I still have issues with SOB and have an aortic murmur from the radiation but a pacemaker seems to have fixed my heart problems. I think of all of you daily. My daughter and neice are walking Nov 6th in the Nashville Lungevity LC walk in Nashville. I am so proud of them for forming a team and more than meeting their goal.

  2. Don,

    This breaks my heart Don. You have been such an advocate for yourself and all of us and taught me many things over the past years. You always seem to research and find the best for you and I am sure you have decided well on home hospice. I hope you don't need them for a while and when you do I hope it is a long, long time.

    You have been in my prayers for years now and will remain so. Keep us posted as you can.

    Nina

  3. I had 37 radiation treatments to my upper left lung area where they had taken the lobe during surgery. I had a little rash on front and back that itched but just treated it with aloe. I did, however, have trouble swallowing for a few weeks and they gave me Magic mouthwash, a prescrition, for it which helped at mealtime. I was also very tired during and for a few weeks after. As you can see its been well over 5 years ago now and I am still clear. Hope this helps.

    Nina

  4. Rich,

    Don't ya know that hospitals cost money? Praying that you come home safe and sound soon. You sure have had your share of hospitals lately. You gotta get well and save your money for some fun ok?

    Nina

  5. Wow Kasey, a party! I hope I'm not too late. Just got home and sure could use a little unwinding juice. Prissy says she wants some beef tips and rice for her midnight snack. I'll take a white russian. So good to see everyone again.

    Nina

  6. Here goes...

    Non-small Cell, poorly differentiated, IIIA. Surgery ( I think this is what did it), carboplatin and etopiside. After chemo, had 37 daily radiation treatments. That was finished in August of 2003. Been NED ever since. Yes, I have been one of the lucky ones. My doctors released me a year and 1/2 ago. I pray for all of us daily.

    Nina

  7. Geri,

    So glad to hear you are feeling better and out and about some now. It tickled me to hear you say your fingernails would not grow. That is a great sign. Now you are paying attention to how you look as well as feel. That's the woman in you proudly showing your head. I am so happy to see you are getting back to normal. When I finally decided to think about my eyelashes and hair, I knew I was on the road to recovery. Welcome back.

    Nina

  8. Sandra, I agree it wasn't a very good day. My prayers are with you that it is something easy to fix. Down south we have had really poor quality air that has many people sob. I know we all hate surprises so I'll hold my fingers in the crossed position as long as I can. I hope you get decent news. Keeping you in my thoughts.

    Nina

  9. Debi,

    I am so happy for you that you have figured out how to put the guilt at bay and live your life. Congratulations on so many things in life. Your new job, your son, your honesty about your feelings. I too have made it for over 5 years and the guilt sometimes eats me alive. I miss so many who were once a part of this board and many people I met at the oncologists office and through radiation. I completely understand and you give me hope that soon I will be able to shake it somewhat and begin to figure out what it is I am meant to do. I hope you post a little more often. You are an inspiration for all of us.

    Nina

  10. Nancy,

    I know you were hoping for reduction but stabe is good news. I only had VP16 as infusion so I can't answer your questions about the oral kind. I took it with carboplatin. I don't know which chemo did what but I didn't feel all that bad. Nausea and hair loss were my biggest complaints. Know that I am praying for you that this will do the trick.

    Nina

  11. David,

    Welcome to our site. We hate to have so many new members because of the reason most have to come here. But, if you have Lung Cancer this is the very best place to be for support, information and yes, venting. I am now over 5 years out with stage IIIA NSCLC and there is no doubt that my treatments have made that possible. I was able to have surgery and followed with Carboplatin and etopiside. Then I had radiation just to "make sure". Yes I had side effects but never bad enough to tell myself it wasn't totally worth it all to increase my chances of survival.

    I am glad you decided to take treatments and glad that you found this wonderful group of people. Keep in touch and let us know how you are doing.

    Nina

  12. Hi, still here. I check in on everyone nearly every day but don't post often. My 5 year mark was March 10th and I seem to keep on keeping on. I feel very blessed.

    So many of us that are "old timers" etc are gone now and I miss them very much. So glad that we have this place to learn, grow and make friends. Keeping you all in my prayers.

    Nina

  13. Nancy,

    I hate it that you didn't get shrinkage but stable is good news. How do you do with wigs? I have a friend that has no hair on her body and will never have anymore. She has about 10 wigs. All are different colors, styles and lengths. She loves them. It might be fun to experiment when you feel up to it. I think about you often Nancy. You are a very strong person and someone I look up to. Take care of yourself.

    Nina

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