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GinaT

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Everything posted by GinaT

  1. Hi Kasey, I hope this email finds you well. I just wanted to write with an update on my friend's mom. She did go to see Dr. Schrump at NIH, and he referred her to a surgeon at Hopkins named Dr. Wolensky. Apparently, given that her tumor had invaded her spine, Dr. Schrump thought Wolensky would be the guy to see. Turns out he was right, because after three back-to-back surgeries, Wolensky and his team were able to remove the entire tumor, something they were unsure they'd be able to do. My friend's mom is still in ICU at Hopkins, but it appears that she is recovering pretty well, although more slowly than they had hoped. I just can't thank you enough for your recommendation. Had my friend and her mom not gone to see Dr. Schrump, they never would have wound up at Hopkins, and her outlook would have been much different. Also, my friend said that Dr. Schrump was tremendous, and his staff was wonderful. They told him how they found out about him. Thank you again and take care of yourself. Regina
  2. Hi Kasey, Thank you so much for the offer to speak with my friend. That is incredibly generous of you, and I will let her know. And I will tell her to let Dr. Schrump know that you recommended him. Last I spoke with them, I think the plan was for them to fly from Miami tomorrow to DC where her daughter, also a good friend of mine, lives. That may make for a busy day, so if they can't talk to you before the appointment, maybe they could follow up with you after. While I have had no previous involvement with lung cancer, my mom had ovarian cancer, from which she died two years ago. I found the support and advice of other families going through ovarian cancer invaluable. That's also how I discovered that people with cancer and those who love them are the best ones to consult about docs, treatment, etc. You're suggestions and offers of help have only affirmed that for me.
  3. Thanks Kasey. Actually, my friend has an appointment with him on Wednesday morning. She was surprised at being able to get in so quickly, and is very much looking forward to the appointment. Thank you again for the recommendation!
  4. Hi Everyone, My name is Gina and I am new to the forum. I have a friend with a pancoast tumor and I am looking for some information that may be helpful to her. Her tumor was diagnosed in August and determined to be inoperable. Since that time she has been undergoing chemo and radiation. At first it appeared the chemo was working, but the last PET showed that is has actually spread. She is now awaiting an MRI to determine how far it's spread, but her daughter is planning to relocate her to DC for a second opinion and new treatments. Does anyone have any information on docs in the DC area? I have heard about Dr. David Schrump at NIH. Are there others we should consider? As you can imagine, this has been disappointing and scary news, and I am trying in any way possible to help them discern next steps and courses of treatment. Any suggestions you can provide would be most helpful. Thank you.
  5. Hi Everyone, My name is Gina and I have a friend with an advanced pancoast tumor. I have joined this forum for both support and for any information folks can provide about this particular type of lung cancer and its treatment. My friend is going to be relocating to DC with her daughter, so I am interested in information about resources and doctors in the DC area. Any suggestions from forum members would be much appreciated. It is obviously a scary time for her, and I want to help out in any way I can. Thank you.
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