abbyall

Hi Libby and Everyone! Thanks for all the replies, you've really made me feel welcomed! As far as my loving DH, that bone marrow scan showed "nothing' of significance. He has been monitored by hemotologist/oncologist for the last 4 yrs for high monocyte counts. They cannot find anything.... He's been poked and prodded and tested probably as much as twice a month by many doctors. They've done a little of everything on him, PET scans, CT's, lots and lots and lots of blood work- tested for different types of LYME, ect ect.. at current, after a round of antibiotics for chronic sinitius, he is working w/ docs on deviated septium/sleep apnea. I'll say one thing, it appears they are going over him thouroughly! He's not "sick" or in any pain- so at this point all he can say is - no news is good news?!? And Mom, yes, I know only HE can put a date on a calander. I know my mother has done the near impossible in her will to fight this! I wish I had been more informed in each step of the treatment and progess. I look at your timelines in your tags, and I feel guilty for not cornering the doctor and demanding more info, and not backing down when he appeared to be rushed, or when he brushed me off with the impression it wasn't of importance. Have I said how much I dislike doctors now? ha! It's not like I wasn't there in the office with her, each and everytime.......! I couldn't tell you if I wanted what form of chemo they are using now, but its very apparent she is not responding. We'll learn more after a brain CT scan next week. Please share with me if you will, "how" to keep sane LOL. I feel so on the edge of a major melt down! Please don't flame me, but its getting harder and harder to deal with cancer on a daily basis. And yes, I know, I'm not the patient. Add to the mix, 3 sisters who I'll be very nice in saying - are NOT very mature, or loving towards mom. I've had days lately that I've *wished* to be hospitalized or thrown in a quiet jail cell myself, just for the peace and blissful ignorance! I know - I know gotta be careful what you wish for- I might get it huh? Take a day off? Mother has this amazing skill - All it takes is that sheepish lil voice saying "come see me..I'm all alone...."

Well, 3 yrs later, and I'm back for support. Oncologist has given Mom 3 months. She's now in a nursing home. We go sometime next week for a brain scan. The original lung cancer has moved several times over the course of the last couple years. I need to prepare........... sigh

Hi everyone I have so many questions- don't really have a clue where to start. My mom had surgery to remove a portion of her right lung just this past week. We had our first appt. w/ her oncologist yesterday...... sounds as if they will soon start radiation. We will go for brain mri, ct scans and bone scans within the next several days. I hope to be able to get in touch w/ a social worker from the hospital- as when they released her- NO ONE had spoken to the family about her support systems that were in place to make sure she was cared for. My mom lives alone. I've basically walked away from my job and family- husband and 3 kids.....to live there with her and care for her. Her surgeon gave me the impression that she should be well enough to care for herself in just a few weeks time, but i've come to the realization thats not very practical advice........dr appts alone are going to be alot from the looks of it. I don't know where to turn- I dont want to abandon my mother - but I must work. Another factor in all this is my husband is also facing possible cancer. He goes tomorrow for bone marrow biopsy. What WILL I do if he is facing long term health issues too? I need to find info and caregiver support can i scream now? LOL Abby