michellep

I've been away from the message boards for a while and just saw your post. My heart truly goes out to you and I hope you can get some answers soon.  Please let us know how things are going.  Don't forget to take care of yourself too.....that's also very important.  ((hugs))

I've been away from the message boards for a while and just saw your post. My heart truly goes out to you and I hope you can get some answers soon.  Please let us know how things are going.  Don't forget to take care of yourself too.....that's also very important.  ((hugs))

WOW.......just WOW   I am so very happy for you and hope the next scans are just as good for you!

My heart breaks for you Jan!  Please look into the lifeline partner program.  I wish it had been available for me when I was taking care of my husband.  If you ever need to talk or ask questions we are here for you also ((hugs))

I tried it and it seems to be working quite well.  I am using about 5 or 6 drops of 250mg in a 1 oz eye dropper every 4 or 5 hours or so..  This is a very low dose as you get about 600 drops per oz. The drops seem to have increased my appetite and decreased my nausea.  It has also helped with pain.

Just thought this might help prepare some of you when you're newly diagnosed. 

I am very sorry for your loss. I really don't know what more I can say. Please know that you are not alone.

I've known so many who have passed from this horrible disease.  Without exception they were late stage diagnosis, typical of lung cancer.  Moreover, like your experience, chemo was the only available therapy and it wasn't very effective.  I can say these things of the many I've known but none were tied by a bond of love.  To lose the love of one's life to lung cancer and watch the devastation unfold is unfathomable.  I cannot say I know how you feel.  I can try to imagine but that will fall far short. 
 
Yet, despite going through the mayhem of your loss, you return to minister to those who bear the burden of disease.  That is laudable, remarkable and speaks volumes of your heart and character.  Thank you for staying the course.
 
Tom

Hello Antony!  I'm so sorry that you and your wife are dealing with this.  Being a caretaker and trying to stay positive is very difficult and I understand.  I will be praying for both you and your wife.  Please let us know how she is doing and if you have any questions or just want to vent, we are here for you ((hugs))

My husband was diagnosed with stage 4 Adenocarcinoma with malignant pleural effusion.  He was only offered chemotherapy since it was inoperable.  His doctors gave us little information or told us about any additional choices so it was a very hard time.  I am praying for you and if you need someone to talk to, we are always here.  (hugs)

I just wanted to say THANK YOU for all that you do here in the LCSC forums. You all are a vital part of LCSC! You are knowledgeable, caring, supportive and so kind. -Cindy
 

Michelle, my heart broke while reading your post. I am so very sorry for your loss. This is the very reason we have to make people aware of early detection in Lung cancer and make the medical profession aware that there are genetic test that can be done. God be with you.

Seems like this was found at an early stage and that's great!  Let us know how your doing ((hugs))

I can imagine how scared you must have felt when you heard that but I agree with Randy......don't panic!  I recently had pneumonia followed by a CT scan where a couple nodules were found.  I was told that we ALL develop nodules as we age, it doesn't always mean lung cancer.  My doctor plans to keep and eye on them and follow up with another scan in three months just to be safe.  Please let us know how you're doing ((hugs))

Happy New Year (since I'm late on this post)

@michellep  I've continued my research, and came across (sorry, not sure where, now) someone who said that when multiple nodules are found it's usually consistent with an inflammatory process, rather than cancer.  (This was from a doctor, not chatroom).  I bet it's from your pneumonia, but {{hugs}} I know how scary that must be for you.
 
@Fran, take them up on the offer to see the Oncologist.  1cm is the perfect size to get a diagnosis and begin treatment (if necessary).  At the very least, "peace of mind" is invaluable

I've read your post a dozen times trying to find the right words.
 
There are no right words to characterize what you are going through, what you've gone through, what you have yet to encounter.  I've been where you are and skirted on the edge of life.  I don't presume to know how you feel, but I know what I felt.  It is the hardest thing I've ever done.
 
I remember a last Christmas gathering.  Made it through that and then there was spring to look forward to.  At some level, for several years, I just kept setting little milestones for me to experience and lived from event to event.  I know you will make every day special.
 
I pray you make that cruise, then another and go ahead and prove them wrong.
 
Stay the course.
 
Tom

I'm so sorry to read this post.  It saddens me when I hear about doctors who just blurt out such things!  There are many many people who have outlived the timeline given by their doctors.  My first thought when I hear these things is that the patient will simply "give up" and that is NOT an option.  I'm glad to know you have such a loving and supportive family.  That means a great deal when someone is dealing with this.  Please keep us updated on you and your dad ((hugs))

I'm so sorry to read this post.  It saddens me when I hear about doctors who just blurt out such things!  There are many many people who have outlived the timeline given by their doctors.  My first thought when I hear these things is that the patient will simply "give up" and that is NOT an option.  I'm glad to know you have such a loving and supportive family.  That means a great deal when someone is dealing with this.  Please keep us updated on you and your dad ((hugs))

still hanging  in there!!!

Hello Debbie!  I am so sorry about your diagnosis but am glad you found all of us here.  I am not familiar with small cell lung cancer.  My husband had non-small cell.  However I am very familiar with the insurance companies and the work it takes to get them to help pay for needed tests and medications.  I too had Blue Cross of California and every time I turned around they were denying us.  My husband was prescribed Tarceva and we had to pay for it ourselves.  It was over $3,000 a month.  It's just not right!
 
It seems you are a very strong young woman and I am happy you have your husband and daughter near you.  
 
Please keep us updated and also read our other forums.  There are many survivors out there!  If you have questions......please ask away  ((hugs))

After watching Donald suffer the way he did while trying to fight the beast I feel that should I ever have such a diagnosis I will relocate to one of the states who will assist me so I can go to heaven gently.

I agree with Randy.  I was also a caretaker and I felt like there wasn't enough time to worry about myself.  I didn't have any help and survived on approx 3 hrs of sleep a day. It WILL take it's toll on you.  I hope you can reach out and get some help somewhere.  Love is a powerful tool when we are caring for a loved one and we tend to push ourselves to the limit, but eventually it will catch up with you.
 
Please let us know how things are going for both of you ((hugs))

I can certainly understand your fear.  I'm glad you did get 3 opinions on this.  I don't have personal knowledge regarding surgery but I'm sure others will follow that do.  Please keep us updated ((hugs))

Build me up Buttercup