lilgna

Tann, I am so sorry for this lousy week and the start you have had with Alimta. I hope they can find some answers to the pain, and then perhaps things will start to look a little better. I will certainly be praying for you. gina

I am so sorry that once again, you are faced with pain and suffering, prayers for a speedy recovery and back to treatment.......gina

I am so sorry, for you... But the fight is never over.. You have been an inspiration, as well as your Mom, please, remember all things are possible. Blessings, gina

You have found a wonderful place to share experiences and gather HOPE, and inspiration.. The people of this board will give you insight and courage, and information, that can only be shared with those who are experiencing this dreadful disease. I hope you find good results, for your health and good thoughts for your heart... Blessings. gina

I just refuse to be a statistic. I have never been one, I have always, reached outside the box. I have strove to be someone that doesn;t have limitations, or fit into lifes sterotypes. So I look at this disease, this way, that I refuse to fit into the mold of 3-5 years. I will fight to stay and prove them wrong. I have already exceeded the expectations. PLEASE oh please. do not get caught up in how long...Focuse on exceeding that and living really living, like its just a chronic illness...and who knows a CURE just may be out there and I want to be here when it arrives..Best wishes to you....gina

Welcome. to a place we all can feel good about... This is a great source of saupport, resource, and caring. So glad you found us... gina

Tann, I am so sorry of your news, progression sucks, I know. but you know. with the attitude you have and all of us pulling for you, it is so powerful. Good luck I am on Alimta also, some fatique, some SOB, some nausea, but not enough to keep a fighter like you down. blessings, gina

I am a little late responding, but, I am still hoping this latest cocktail is your answer, and more treatment is always on the horizon, I will pray for you and wish you all the best..... gina

Like all the others have said, Today is the worst part of it, tommorrow, the new fight begins...If alimta doesn't work for me I am giving the Avastin thing a shot, heard great things about it...Be tough..you have had your share , no doubt, just have to find the right bullet for you, its coming.. Prayers.... gina

Prayers, and the best of good thoughts. gina

Great news, Charlie. I am so happy for you....gina

Good luck, waiting to hear your great news, Prayers and best wishes... gina

......well for the third time since Febuary, I am having a thorencentesis, to remove fluid in my right lung.. They are talking now, if it comes back again to consider a talc procedure, sounds yukee.. with a chest tube and all for several days, but has anyone had one done? And , it so, did it resolved the fluid issue for good? HELP.. I hate the idea, rthe hospital and all, and the needle removal is not all that bad, but I am gettting tired of this too. This time it went almost two months in between the built up of fluid. Any help will be aprreciated. gina

NEVER be guilty about good news, I am delighted to hear you are getting it.... It is a time of great joy, enjoy, enjoy.....gina

Thanks to everyone for your help. I have finished two complete rounds of Alimta. I guess I am just in a panic, because the response was not what I wanted or expected, really. I have taken a BREATH, and decided to wait until they scan me again, in July, if no better result, I will move on. Tarceva, in my research, should still be an option, I am not sure where the Dr got this info, but I will challenge. thanks again, your support pulls me through... gina Hey WENDY, I think of you also. Best to you all...

Well the results of my CT scan were a little disappointing... After reading others Alimta results, I am more concerned than ever. It appears I have had a slight improvement in a few areas, lymph nodes, but the nodule has slightly increased, as well as some other areas (lymph nodes.) No mets anywhere, else, had bone scans and brain as well as full Ct scans, Thank God for no mets.... But Dr. told me I would not be a candiate for Tarceva, because my disease was large, I never thought it was Its a few lymph nodes with no Mets, that must be good, I thought, but I was wrong I guess. Dr wants me to research clinical trial just in case the Alimta does not work, that was un-nerving, will keep me on it throughout, unless I have a large progression. I was very slow to respond to Carbo/taxol first round, but when I did I was in a stable mode for over 18 mths. Maybe thats whats happening now? I expected better results, and I am very disappointed, and slightly afraid, second progressions can be difficult to stop. HELP anyone else have similar results, everyone seems to have so much shrinkage and improvement. I do feel better Dr said that is worth someting to the reports... your reponses will be so appreciated.. gina

way to go Charlie, I just got number two alimita yesturday... No mouth thing, but I do rinse with salt water two -three times daily, a little nausea, on day two, but not bad. I will get Ct scans on the 31st. hope I have a great result. like you have, I feel better than before I started for sure. great news. thanks for the update... gina

Melanie, Chemo can wait until you are stronger, and I will pray for your strength. You will be in my thoughts and prayers, always, gina

Thanks everyone for your posts.. Got my answers, Tuesday. Most symptoms are just side effects of this treatment, according to the DR. The pain she said was the treatment working, the SOB, was effusion AGAIN, so today I had 500cc drained off, But I should feel better soon... Thanks again, everyone I am hoping for the great results you got Charlie, and Justakid, Wendy, you always encourage..... gina

First, prayers are sent for you... But I hate those STATS thing myself, we are all diffrent, please disregard it and pursue, treatment to restore, his well being. Who knows, miracles happen every day...

Frank, Thoughts and prayers coming your way... I understand, I too, have had some clinical woes, that just go from one thing to another... Hoping your up and around very soon..... gina

Took the first treatment last Wed. The steroids, nearly got me, rapid heartrate, awake at night, feeling weird all over. I have been slightly nausea, with some stomach woes, fatigue, but the really weird one. has anyone experienced SOB with this. My ribs ache and the center of my chest,also Feeling better today, eating more, does this improve each treatment? Should I expect the same next time? Help.... When do you get back to normal, or do you? thanks, gina

YOU go Charlie, for many, many more years.....gina

Cathy, Sorry to also be late coming in. I am so truly sorry, for your recent news, but like you would tell us, remain calm, one thing at a time, BREATH< none of this cannot be treated. In the meantime, I will pray hard for your recovery and peace of mind.. gina

Poggie, I am so sorry for your mother, please tell her we are wanting the best for her, and hope good things are coming shortly. Blessings, gina