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dotingdaughter1980

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  1. Thank you all for your support. We are in Ontario Canada so our healthcare coverage is incredible. Dad is doing very well at home, and my Mom is still working full time. I live about 2 hours away and visit as often as I can. I'm trying to get my mom to join a caregiver support group as she has admitted that it would help her. I can't seem to find anything in my area though. Your kind words and stories help, though, and I'm glad I've found you I am just struggling as there hasn't been a very drastic change to his condition lately, but it seems to be affecting me all of a sudden. It is difficult to explain to people as they don't understand the change in my mood when there's been no change to his health. He's tired and gets lots of headaches, but for the most part his symptoms seem to be from trying to wean himself off the steroids. I think he's decided to just stay on them now.
  2. Just wanted to let you know that I understand about your Mom not mentioning all the details - you said that's just your Mom. It's just my Dad, too. He won't let anyone go to appointments with him and insists that he doesn't need to write anything down. With the cancer in his brain now he often gets confused and it is just not a good idea for him to go on his own, but he doesn't see that. He also doesn't mention symptoms, because I think sometimes he isn't aware of them and sometimes because he doesn't think there's much can be done for him now anyway. It is very frustrating!
  3. My Dad, now 63, was diagnosed with Stage 3b lung cancer in April of 2007. He wasn't going to do any treatment, but as I am my parents' only child and was expecting my first baby that October Dad decided to do whatever he could to try to be there for the birth of my baby. His cancer had spread to his lymph nodes so they decided not to remove the tumour, but he did a walloping round of chemo and radiation that summer. He had pneumonia when my son was born, but was able to meet him a few weeks later. We were really thrilled to have him with us (and quite well!) for Christmas too. Spring of 2008 he started to have some problems with the dexterity in his right hand. Within days he had lost use of his entire arm, and then began to have tingling in his leg. Tests found the cancer spread to his brain, and he was put on steroids and then had radiation on his brain tumours. He completely recovered the use of his right side. Since that time, he has had radiation on the brain tumours again, and the cancer has now spread to his other lung and he has had some skin cancer as well. All in all, he is generally well and everyone is amazed that he is still here - 3 years later! Lately he's been sleeping a lot and he has become more and more confused in the last 6 months. He has very little energy and his appetite comes and goes. He vomits some days an has frequent headaches that he takes percocet for. It's been a long road. I'm grateful that we've had so much time together and that we know we're losing him. So many people lose their loved ones in accidents and never get the chance to say goodbye. I'm just not sure what to do, as I've just been SO sad lately. I feel like I can't function properly at work or in my personal relationships, and I don't know what to do about it. I've been very strong for this 3 years, but it seems to be catching up with me. I've looked for support groups in my area but there don't seem to be any. Maybe it would help to know that someone out there understands....
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