Thank you all for your loving comments - I have had a hard time responding because I dissolve into tears when I read what I wrote and how you responded. Thank you so much, it does help to know that there is support.... doesn't change anything but does make me feel less alone. I am not sure how I am going to use this forum or what it will do to help me but I am going to give it a try.
This week was a better week for my Corey. A week ago, after a week in the hospital on blood and antibiotics he went to Stanford to have chemo. He was very weak and shaky- had lost over 10% of his body weight and weighed just 114 pounds- he is 5'8" - they refused to do chemo. I was devastated. I pushed and pulled and started a diet dairy for him - made him eat just below the getting sick mark and he finally got into the spirit of it - after months of - 'I'm not hungry', to 'I'll eat anyway....' this week, yay, he gained 7 pounds, is much stronger, - the neurologist put him on anti-seizure meds which was a slight set back.... he slept like he was in a coma and scared me to death for over 24 hours, the oncologist reduced the dose, said he was doing so much better and ordered the chemo. No side effects from that so far except the usually fatigue. So - he is still eating and we are still keeping track and this crisis (one of about a billion) seems to be over. This disease teases and tempts - makes us believe it is better and drops us in a huge hole of despair with each crisis -I HATE CANCER! thank you for letting me vent.