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undefineddawn

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  1. Thank you Eric & Randy, My husband is sleeping now, thankfully. Eric, I read your story & am happy you are doing well. I have yet to find anyone who has both of the cancers my husband has-at the same time- but I have found this world is so full of compassion & so many people who -if they reach out - can find what they need. I am starting to find I can do this for my kids, my husband & myself.But only after I asked for help. I majorly edited our story- and have been so scared from day to day-that is a relief to just put some of it out there. I seem to keep forgetting things & have begun to write every thing down so that doesn't become an issue. I am going to check out the link you sent Eric, & thank you, but I did call his doc & am waiting for a call back right now. I got him to take his steroids & nausea meds after the thin strip for nausea went to work, but he is still choking on saliva and seems to be making more than is normal. We have "Home Health as a Bridge to Hospice"in place and I was also able to get him to take some of the liq. morphine, it has helped recently for the excessive saliva & choking. He refused EMS, and is a DNR. I have told him that just because you are a DNR - you can still go to the hosp. -but he won't have it. I am not sending him anywhere he does not want to be- also I currently care for 5 disabled people out of my home- they live with us- & I now have 3 relief caregivers to help me with my people I also take care of- it was becoming too much. But I can't send him away if he does not want me to, & I do not want to either. I have the ability to care for him & have now got the help to be able to focus 100% on him & my kids. I am just scared so often, & worried about my family as well.Randy, thank you for sharing the link to your family and such a beautiful thing to do for her as well as yourself.
  2. Hello, My husband is the one who has cancer. We have 6 kids (2 still at home-13 &14 yrs old) and 4 grandkids. He just turned 50 this month & I am 39. He was dx with small cell lung cancer 2 years ago ~ March 17th & then March 19th of this year he was also dx with non-small cell. Before all this he was very healthy, & the type to never go to the doctor. Our whole marriage -17 yrs- he had never been to see one. Everyone in our house had gotten sick & had had swollen lymph nodes in the neck. This lasted about 3 days for every one but him. His neck -3 & 1/2 wks later- had a lump the size of an orange, & he decided to see the doc. That is where we started, & unfortunately his cancer had already spread by the time we saw a doc. Now they are talking hospice & we are scared. I am up now,(5:30 am)because he woke me to say how badly he is doing -but won't let me call anyone, & he said "Don't let the kids see me go out of here in a body bag."He is a DNR- & all tx except gamma-knife have stopped. He refused his steroids all of yesterday & he -as of 2 weeks ago- has 10 tumors of various sizes in his brain-not to mention he has had no tx anywhere else (his torso & pelvic area) in 9 mos.Doc said the cancer is resistant to the chemo now, & the Temodar he had been on didn't work for the mets to his brain. He has a good size tumor on his pitutary gland & all the rest of the tumors are in the right frontal lobe -except one. I need to know if not taking the steroids for 1 day can affect him to the point he has swelling in his brain. Please help- he won't let me call any one.He also started to see the tv guide words all mixed up & he has developed a tremor in his right hand. He was not able to put on his socks for the last 2 days- I did it for him. He has had bouts of severe nausea-which was relieved by disolving anti-nausea strips. He has begun to see "flashes"in his preriph. vision again. He also said some of the words on the tv , on the left side, were missing right before they went all wackey.He is having a severe migrane & it is the first time he has had any h/a problems.
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