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cara

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    philadelphia
  • Country
    usa
  1. Hello my name is Cara. My mother is taking a combination of carbo platinum, taxol and avastin. her lung cancer has not effected her pulminary function, but she does have a metastisis to the shoulder. the dr.'s feel that since she has had radiation and the tumor has shrunk her pain should be very much reduced, yet she can not move her arm and is in bad pain still. it is concerning to me that there is no pain medication that has worked. she has taken quite a bit of combinations, including pain patches. The pain medication has caused a host of complications. Ironically she is taking no pain medication currently and only talks about her shoulder pain when asked, but she still insists that she is in a lot of pain. she has seen many very good orthopedic oncologists and radiation specialists and all say that they just do not know what to do for her. in addition she has lost her desire to read, a previous passion, talk, laugh, talk on the phone to us, her family and basically since her life has changed just does not want to walk, eat, drink or do just about anything. We, her family are her cheer leading squad. She listens and tells us she will try to eat, but does not. This "not eating" actually started before she started her chemo regimine. she can not will herself to do anything and the burdeon for lack of a better word falls on my father who wants desperately for her to get well. Her legs can barely hold her up due to not walking. She has no muscle tone, no umph to do anything to help herself. She is harming herself by not drinkoing sufficuently. She landed herse;f in the hospital with severe dehydration. I am frustrated with her lack of desire to try abnd help herself. She insists that she wants to live, but her actions contradict what she says. She is complaining of TERRIBLE anxiety. she can not calm her internal butterflies down. She takes Xanax and it slurrs her speech, but does not seem to help. My father is trying everything he can to help her, but he is just dragging her around since she has no motivation. She says that she is concerned for him, but I am debating if this can be true since all she does is discourage him through her non-involvment in her life and the life that they share together. they have always had a good marriage, but please help me understand what is happening! The. Dr.'s are encouraged with how she is responding to treatment, but I feel that with her state of muind she will never feel well or accept good news. Actually the whole family is thinking this. Please help me gain perspective. Thank you.
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