cmeandk

I am so sorry to hear about your father. I will be praying for you and your family. God bless!

I have posted on the SCLC board for around 9 mths. My father Daryll Miller died Sunday January 16th @ 12:36am. I miss him dearly. You see, I was married on the Saturday before. January 15th. Dad had been battling this beast for a long time. I moved the wedding date up to make sure he could be there. He had been feeling worse and worse since Christmas. As selfish as it sounds, I needed him to take me down the isle. Although he couldn't walk, my brother-in-law pushed him down the isle. i was greatful he could be there. Dad was in a lot of pain that night, and it took him a while to get ready. My sister and Dad were even 5 minutes late. I was getting so ried. My new husband and I agreed it wasn't a good time to take a honeymoon, so we were still in town when my sisters called. He died at my house, it was very quick. He never wanted to be in the hospital., or hooked up to machines, or have his daughters change him. I am happy for him to be out of so so much pain. He died the way he wanted to. I miss him. I almost picked up the phone Thursday to call him and see how he was doing. He would have been 50 years old on January 28th. Not even 50 years old yet. Seems so unfair. He was my best friend.

Thankyou all. Today is his funeral. Just reading your replies made me smile. Thankyou all for being here.

i for got to thankyou all so much for being here. I truly don't know if I could have gone through this whole year without your friendship

I thought I would let you wonderful people know that my father passed away this moring at 12:36am. My wedding was yesterday and he was able to be wheeled down the isle with me. He was holding on to be at the wedding. He died how he wanted to, here at home, with all his family.

Hello- Well, my father isn't doing so hot. The Onc switched him from the IV chemo to the pill. His veins have all but collapsed. He is wheelchair bound. And needs help getting in and out of bed. It's very sad to see him like this. I remember when he was first diagnosed and I thought it couldn't get any worse, then he had the heart attack, and I thought it couldn't get any worse. Everyday you think He couldn't get any worse and he does. He is starting to see things now and is very confused much of the time. I am getting married this Saturday, moved it up six months so Dad will be there. He won't be able to walk down the aisle with me, but he will be able to be there. That is all that counts now. To all of you folks that are fighting this beast, I pray for you. To all of you folks that post here, I thank you. Sometimes just reading the boards has a way of letting me escape. I wish you all a very happy and healthy new year.

Thankyou! Thankyou so much! I really needed that. Thankyou for posting that. I made a copy and I am going to hang it in my house. Maybe seeing it everyday, will make me appreciate everything that my family has instead of everything that it seems we are losing. I feel as though we are experiencing the same things at the same time. I don't reply much but I do read all of your posts. My father and yours have quite a bit in common. It is so nice to read someone elses perspective and see that I am not the only one who sometimes feels like I'm going crzy. I truly wish you and your famliy a very Merry Christmas. God Bless. Cheryll

I am so very sorry for your loss. She is in a much better place now. I wish you and your family all the happiness this season

Everything I have read about gemzar, states that it is for non-smallcell lung cancer. Any one else with sclc being treated with this? That's what they are trying on my father. His last dose of chemo before the liver blockage was 50% of the normal dose. On this past Monday they are trying 20% the normal dose. Since he is still a little yellow, they want to see if his body can handle it. And the doc said that if he can't then no moe chemo. We are going to a diff onc next week to get a second opinion. Again, I want to thank you all so much. It means so much to be able to browse this board and hear 1st hand accounts and opinions. You are all very supportative, very wondful people. I hope everyone had a fabulous Thanksgiving!

Hello- Just thought I would give everyone an update on my Dad. The "yellowing" of his skin and the whites of his eyes was caused by a tumor in his liver pressing against the bile duct. The preformed an ERCP to put in a stent into the duct. So far so good. As far as hospice goes, right after the Onc mentioned hospice, my Dad had chemo (which is a contradiction in terms,right?). He was sick for three days, of course, then on day four he suddenly could walk......without pain and without a cain. He has been doing absolutely wonderful. He is even talking about maybe returning to work maybe one day a week. I guess I am just so confused. I am absolutely thrilled that he is doing very well, but on the other hand I am also scared. Two weeks ago we were thinking hospice and now we are thinking cure! My younger sisiter even moved home from Baltimore with her two young children to spend some time with dad. And left her husband at home. I want to think positive and think every thing just might be okay, but I am afraid. Afraid of hoping. Afraid of not hoping. You here all kinds of things from friends....and friends of friends. One friend's grandmother had lung cancer for a year. She started to feel really good, even playing tennis the day before she passed. It is such a rollercoaster ride that changes day to day and week to week. The Onc said he would give Dad chemo until Dad said it was enough. Why would the doctor mention Hospice only to give Dad chemo that day? Will the onc tell us when he thinks Dad can't have anymore chemo. I am sorry to ramble on like this. I am just very confused. Any advice would be greatly appreciated!

I read a fact on a lung cancer web sight that stated that any more than 6 months of chemo will do more harm than good. My fathers onc has never said anything like that. He has been having chemo since march 2004.

LAST MONDAY, WHICH WAS WHEN HE WAS TO BEGIN HIS ROUND OF CHEMO, THE DOC TOLD US TO START THINKING ABOUT HOSPICE. THE NEXT DAY HE HAD CHEMO. NOW ISN'T THAT A CONTRADICTION IN TERMS? THE DOC DOESN'T THINK THAT MY DADS BODY CAN TAKE ANY MORE CHEMO. BUT AGAIN, TODAY, HE HAD AN APPOINTMENT TO GET THE SECOND DOES OF CHEMO IN THIS ROUND(STILL WATING TO HERE FROM MY SISTER AS TO HOW THAT IS GOING). I THINK IT IS TRUE THAT HE CAN'T TAKE MUCH MORE CHEMO. THE WHITE OF HIS EYES AND HIS SKIN ARE NOW A DEEP YELLOW. I JUST GOT A EMAIL FROM MY SIS FROM THE ONCS OFFICE AND THEY ARE NOT ALLOWING HIM TO DO CHEMO, BUT ARE INSTEAD SCHEDULING A CTSCAN OF HIS LIVER FOR SOME TIME THIS WEEK? THEY SURE AREN'T IN ANY HURRY? SO I GUESS THE END IS COMING? I DON'T KNOW WHAT TO THINK!!!!

You are both in my prayers.

Thankyou for all your thoughts and prayers. He is at chemo now. And hopefully they will find out what is causing all the swelling in his right foot!

I thought I would give you folks an update on my father. The ctscan showed that the cancer has spread.............yet again. The pain he is in is unbearable and the onc just keeps upping the dosage of the oxycotin and percocet.

Just curious what kinds of pain meds your family members are on. My father has been on Oxycotin and Percocet---they have just continually upped the dosage as the pain got better. Thanks in advance for the info!

Thanks for your thoughts. My father and mother divorced 3 years ago. My father and younger (23yrsold) sister have moved in with me. So we could both be there. I appreciate all of your prayers. Sometimes I get so down, and then I think, "What do I have to be upset about? I'm not the one with cancer." I mean watching all of this happen is awful, worse than awful. But nothing compared to personnally going through it. He is a fighter. I don't think I would be.

Radiation doctor said he is severly burned "inside" Apparently the left the machine on too long in one spot. Just gave him some medicine to put on it. And wants him back next week. So I guess we will see. I was just wondering if anyone else has had that happen?

Hello everyone! Just an update on my Dad. Things have been a bit rough lately. Dad had a heart attack on August 31st. The doctors had to put a stent in to keep the attery open. His hips have reaaly been bothering him to the point he can't sleep. The doctor upped his oxycotin to 120 mg 3 times a day plus percocet for break through pain. He is down to 135lbs and he's 5'10". He just went on disability from work, something he has fought not to do since day one. What an awful disease. You folks have been great. Question for you: My father has had raditon to both hips twice and now there is a hugh black spot that is very tender to the touch and looks awful. Has anyone else had this happen?

2 sundays ago, my father all but colasped in the living room and I had to help him to the couch. His breathing was heavy and he said it hurt every where. He suffered a heart attack on Feb 1st(before all this cancer stuff) and at that time I had to beg him to go to the hospital. It worked and they gave him a shot that completely unblocked the artery. Well on that sunday he colasped, thats what it reminded me of. All though it was then just really bad heart burn. Yesterday he called me on his way to radiation and said he was just hurting to bad to go and asked if I would call the doc to reschedule. Dad likes the radiation because it has helped the pain tremedously in the past. My sister said he looked awful when he got home and he just went to bed. I asked her to stay with him unitl I got off work. By the time I got home He said he was feelling fine. Has Anyone ever expierenced extreme pain all over like that? Is that a reaction from the topoteacan? Is this a common occurance? I appreciate all of your thoughts on this and everything else in the past. Everyone here is so wonderful!

My Father has reacted very well to the topotecan. No nausea at all, and most of his hair has even grown back. But there are those times when I think he can't handle the pain. His biggest problem is remembering to take the oxycotin every 12 hours...on time every time. If he is the slightest bit late it makes a big difference It has to be a constant isn the blood stream. He also uses percocet too. I wish you and your father all the best. God Bless!

Well, finally some good news. Dad just finished is first round of topotecan(?) and they did a mri to see if this form helped and it did!! There was abolutely no change, no new hot spots, and the existing tumors didn't grow. They didn't shrinkm but htey didn't grow either. It seems like forever ago that this all started. This is the first time we've had anything remotely resembling good news!!!

"see me and K" cmeandk-used to be an old email address I used "K" is for my daughter kayla

Thank you for all of your thoughts and prayers. They do mean so much!!

My father had both the bonescan and mri on Thursday last week. His doctor called him on Monday to tell him he needed to see his Radiologist on Tuesday. He did and now has to do 10 doses of radiation to his left hip joint for pain. We had our regularly scheduled chemo today only to get more bad news. Not only does he have cancer in his right lung, bronchial tube, and L4 in his back, now it is in his neck, sternum, ribs, middle back and both hip bones. The doctor has changed his chemo though. He is now on Topocitan(?). 3 weeks on, 1 week off. We have our annual family vacation schedlued for July 10th to Florida. Dad is more determined than ever now to go. Please pray that every thing goes well and we have a wonderful time. I am so down now. I feel like everytime we go all we do is hope for good news and all we ever get is bad news. Does anyone ever get a break?