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hobored

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Everything posted by hobored

  1. Jen, I don't think Hilt had a headache....just felt like he had been run over by a really big truck...no energy. How long did it last? (the chemo) I have been thinking about you. Karen
  2. Iwill always think of you and your brother from now on whenever I see a butterfly...what a lovely remembrance....my heart goes out to you.
  3. So sorry about your horrible experience. Know that you are not alone...you have all of us thinking of you .
  4. Fantastic!! Tuesday it is...I know we sure felt better when treatment began....We will be thinking about you!
  5. Oh Jen!!!! I am sorry I did not read this till now..we have been out of town doing chemo. Please do not give up hope.....they have so many wonderful treatment options!!!! what exactly did they say about area in liver? They are probably just trying to find the best treatment plan. I am here if you need me. Karen
  6. WHAT A MIRACLE!!! I am so happy for you!
  7. I am so very sorry....I think that you will not fight this disease alone....our voices blend as one
  8. Connie is right...chemo is different for everyone. My husband did these cisplatin and vp16 for 9 hours 1st day then vp16 for 4 hours day 2 and 3 . he did great the first set then had a pretty severe reaction the second time we went in. then we did steroids before each time after that. they told us that they did not have many that had bad reactions that often..but when they did it was usually severe. so odds are if they drip it slow and begin with steroids you will do fine. good luck. my husbands diagnosis was changed to nsclc at the conclusion of the combo so now he is doing taxotere. karen
  9. my husbands diagnosis was changed from sclc to nsclc and we did not find out till this Thursday....he has already done all radiation and almost all of chemo....they knew a long time ago...apparently just a slip up. they say it is still best treatment but, I read up on it and it looks like treatment is slightly different with different chemo drugs used. he did 30= 2 times a day radiation treatments. and cispatin and vp 16 1st day and vp 16 next 2 days for three days every 3 weeks. what do you think? _________________ Karen
  10. so happy to hear all is clear...that chemo does so many strange things...I would not be surprised to find eye problem is chemo related.
  11. we are at md anderson we had done the original bronchoscopy here at home and I brought the slides with me to md anderson and the looked them over and said they thought it was nslc and not oat cell like the original report said. they have probably known a month. the genetic person I was talking to actually told us that the diagnosis was different ..so I called dr and he called me in. we have several dr's working with us...I am not sure what happened. my husband is 48 and never smoked cigarettes and this is his 3rd time with cancer the other 2 were colon cancer...he was diagnoses at 42. He is my love they just have to fix this! thank you so much for getting back to me so fast.
  12. well we know it is or was 6 1/2 cm. 25% of right lung not anywhere else . lymphnode in middle of lung and outward. the dr said it was stage 3 ....but that is different too since it is not anywhere else...I guess it is the size that they are staging by. You know we made the choice to go to the "big city" because it is the best. I still feel it is. I hope ...I pray
  13. my husbands diagnosis was changed from sclc to nsclc and we did not find out till this Thursday....he has already done all radiation and almost all of chemo....they knew a long time ago...apparently just a slip up. they say it is still best treatment but, I read up on it and it looks like treatment is slightly different with different chemo drugs used. he did 30= 2 times a day radiation treatments. and cispatin and vp 16 1st day and vp 16 next 2 days for three days every 3 weeks. what do you think?
  14. hobored

    My Beloved

    my heart knows your pain. I am so sorry for the loss of your love.
  15. hobored

    In a peace now

    Berisa, I believe that you have already made your father proud...what a kind and loving person you are. you are in my prayers.
  16. my husband has had little luck with the patch or the hrdrocodone...he is now mixing them and will probably have the patch's strength increased this week...his throat and esophogus really hurt from radiation. they told him that he should not take the motrin 800 (he wanted that) but, everybody has such different treatments. I hope you feel better soon ...It has been so hard for my husband too. If you do find the medication that helps let me know. thinking of you!
  17. hobored

    For Us All

    my heart cries for you. may you find a sense of peace each day. If you lived near me I would bake you a pie and cook you a dinner to help with the hurt. you are in my prayers.
  18. my husband did great with 1st round of chemo but reacted pretty severely to etoposide this time....high heart rate, could not breathe, and high blood pressure...no problem other 2 days...lots of steroids ahead of time. if you had a reaction one time did you have it again? thank you so much!
  19. we got the magic mouthwash at the hospital...pain is better ya'll are wonderful!!!
  20. My husband just finished his 30 th radiation treatment...he felt so great till the last 4 and now it is really burning and he has no energy at all. we will start second round of chemo tomorrow and I am worried about the weakness. I read on another posting where they talked about magic mouthwask...hilton has hrdrocodone with acetaminophen and nystatin are one of these what you are talking about??? these really are not working yet? thank you
  21. hobored

    New member

    we have children about the same ages we have a 16 and a 12 year old. my husband is 48 and I am 38. he just completed 30 radiation treatments at md anderson in houston and has done one round of chemo and we start the next tomorrow. I will be looking for your name.
  22. thank you for responding...this helps to let me know that I am not alone and that many others have walked in my shoes.
  23. I am having a hard time ...I feel very torn ...I want to be with my husband for chemo round this week...but I have missed a month of work already and have only been seeing my children on the weekends and my husband wants me to stay with them...we are a very close family and I want and need to be in both places. the hospital is 3 hours away...his counts are low but they said they had to continue...I am wondering if it might be worse this time...wish we did not need an income and could grab my children and be with him...anybody have any thoughts..I know that I am just thinking out loud but I thought some of you with young children might be able to give me ideas about how to meet the needs of husband and children ...thank you, karen
  24. hobored

    Newcomer

    your message caught my attention...my husband is 48 and has just begun treatment...he has completed 28 radiation treatments and 1 chemo cycle so far..your story brings me hope...we have been married 17 years...and I will do anything to be granted many many more.. I am so happy for your good news
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