I know I haven't posted in awhile but I thought I'd update everyone on whats happening.
Just finished 36 IMRT treatments to the right neck, right parotid region and right tonsil surgical bed. 180 gy.
Lost 20lbs, major burn to right neck, lost half the hair on my right side and have a patchwork beard. Have major problem with very thick mucous and dry mouth. Trouble swallowing anything solid, in fact I'm mainly living on boost and protien shakes.
Dispite all that, I feel I came out of it OK and now should recover within a few months. Probably won't get a CT/pet scan for a couple of months. I am believing that the beast was finished this time.
I also understand that many of you are fighting a more difficult battle than mine. My prayers and hopes for good things for you. I only post as an update as to whats happening with me and not comparing with anyone else. I know my case is a bit different than most everyone here. I post here because they still say I have unknown primary which they are convinced is in the lungs.
Its been hard for me to come here as before because of all those we have lost. Sometimes I need to forget about the beast and try to live a normal life. But I know that normal now is not the normal I once knew. This thing destroys more than just the physical, I pray for all of us.