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Everything posted by BoBennett

  1. Rich You sure get some interesting stuff. When I was first diagnosed I, like many went on a quest for the best course of action. Sunlight was one of those things I learned of and believe is helpful, as the article talks of. I did not want to drink milk any longer nor did I want to take supplements. I personally believe natural is far above, especially if the needed support is available in other than artificial means. I opted for a well rounded fruits and vegetable diet and spending time in the sun for the needed vitamin D. My Onc wanted to stop my chemo and have me go on Irressa/Trceva in Jan/Feb. I said I wanted to go into the drug holiday in spring, due completely to the sun factor. As corny as it sounds I always felt powered by the sun. Anyway it works for me, besides how can being in the sun hurt you. Bo
  2. I have some advice for Ron, Fes up, it weren’t no American idol contestant he was dreaming about . Come on, straight up Ron. Anonymous
  3. From the moment I was told I had a mass on my lung. I started searching information. I learned I knew very little, most of what I t knew was wrong and most of what the doctors told me was not personalized for my specific case. That impersonalized was confirmed again today. Involvement with every aspect of my disease and health is what gets me by. I got involved in my situation and as best and I could I took control. It works for me. Oh yea and I was scarred ******** tool Bo
  4. Myths & Facts About lung cancer by John C. Ruckdeschel, MD 631-777-3800
  5. Something about your man doing beter that makes it easier to run and deal with the public. Happy to hear Ron is doing better. Bo
  6. I don’t blame you for being hesitant about posting something like this, but I believe it is helpful, so thanks. I’ll bet there are very few who didn’t search out these obscure alternative ways of getting by when they were first diagnosed. There is a fine line between believing completely and using in conjunction with. My son at, 14, took an intense leadership training course and positive mental attitude ( through a ki type energy source) was instrumental in success. He had to believe in himself. Six years later I can still see the effect.
  7. I agree it is very nice of you to share your thoughts, Melanie. One of my fighting principles is to make it as easy on my family as possible, if that leads to surviving or not, it is more about them than I. It becomes a trade of sorts, its all about the give back. Bo
  8. Great information and link. I am a believer in this sunshine thing, and for me this study just notches it up one. Even though the vitamin D is what is talked of, personally I think it’s the delivery method, “the sunâ€
  9. I really like hearing about folks exercising and I think its great that so many do exercise . I agree with all, go at it slow, then the “I don’t feel like it, gets less and lessâ€
  10. I asked an Onc nurse this question and the answer was simply, no they do not become resistant. I believe that was a standard brush off answer. This is and excellent and important question. Resistant could be the operative thing. While on Gemzar my tumor increased 20%, while on Taxol I lost that progression and lost more yet. At this point I’m going off Chemo for a ? and I wouldn’t accept that I had progression or not. Even so, when and if I return I would balk at Gemzar and ask for Taxol, to start with, even given that I do believe all bad things learn protection. Personally if the tumor reduced to a millimeter and the lymphs became pronounced or infected that would be progression. All opinion here. Bo
  11. I want to second this “real” food thing. Diet is definitely worth looking at. With the exception of raspberries, red wine and soy beans the rest is a segment of my daily staple. It works for me. Good luck all, in your fight Bo
  12. You probably already knows this but I was advised that the differing levels of CT scans determine their ability to pick up smaller things. I think? the average CT is comprised of 5mm slices/pictures. They can however take much smaller slices. “we try and do as little damage as possible” which, to me means that a small slice CT would always pick up nodules where as PET might miss if they are not active. This flow of information is great, not to mention the outcome. Bo
  13. Very few times in our lives to we get truly relaxing news. Enjoy Bo
  14. Shirl Some times responding to the questions on the board looks like a person is passing advice that only a doctor should talk about or passing on incorrect information so take this all with a grain of salt. This is all only my Opinion. I had a similar feelings happenings, same area and I am fairly comfortable? saying that when the lymphs are active, (maybe infected?) these symptoms, feelings, coincides with this activity. Scans and such have shown this for me, Activity-- swollen nodes, phlegm blood. Another interesting thing for me was I had none of these symptoms prior to treatment, they all started during treatment and slowed up when treatment was lessened. I’m hoping that this means the chemo is stirring some **** with the bad stuff. Just passing on some thoughts. Bo
  15. Carole, I have never received a satisfactory answer to this coughing up blood question, where it comes from, what it means,,, I will pass on what has been indicated to me and how it has come about for me. I have been told it is likely from the bronchial area, I have been inclined to accept that, as during the 8 month period I was coughing up blood, ( very minimal) and all the while I had a strange feeling in that bronchial area and I accepted that as the lymph things). I have also read where the tumor can erode into the blood vessel and into the airway. Although this is disconcerting it goes with the territory and IMO unless it’s a considerable amount its probably not indicitive of a major issue, but that is just IMO. Within a week after starting Taxol (Nov 1 05) I stopped coughing up blood or phlegm and the strange feeling in the bronchial area went away and has not returned. I just had a treatment yesterday, first in 7 weeks, Taxol/Carbo( One more to go ? !!!!) This am I coughed up some blood. ( minimal) a dry cough. I found it coincidental. Don’t know why though. Good luck in you fight and your search for information, it works. Bo
  16. I read somewhere, can’t remember where, that an SUV of four or lower is indicative of a benign tumor ( nodule?) Might be why they aren’t picked up? Another point I forgot about. The Tech, got a little upset because I was reading while I was waiting for the stuff to absorb through my body prior to the scan, meaning, maybe, that anything other than “at rest/ relaxation” or being stressed” can cause a bias uptake. I don’t envy your trying to view the PICs, I was viewing standard chest X-rays at 80MPH and couldn’t understand why I so quickly devolved a tumor in the opposite lung. After that I realized that I need to consider the source of my diagnosis’s. Still worth reading though. I would think that the Rad would have the report today. Hope your wife is feelig well Good luck. Bo
  17. The guy that wrote this is John C. Ruckdeschel, MD Progessor of Medicine and Oncology and Director. H. Lee Moffitt Cancer Center and Research Institute at the University of South Florida. I took it from a book called Myths & Facts about lung cancer. . During active bone metastasis my ALP was elevated. There were liver issues but they fit within the scheme of the ALP bone and liver mets connection No more bone mets, (at least active) my ALP is below 50 and has been since the bone mets and liver issues subsided. Bo
  18. Your remark that ----”Historically, people simply did not have the access to high sugar foods the way we all do now. What was impossible for them to comsume SEEMS imposible for us NOT to consume! As the ancient Greeks were fond of saying, "All things in moderation" “ is one of the reasons I choose to believe “that a high sugar (refined/prcocessed foods) diet is bad for one in many a way” To further this thought, statistically folks who eat a natural diet tend to do better than those who don’t. What types of natural foods will always be argued but starting with leaving processed foods out of the diet would be a reasonable thought. Statistically indigenous peoples don’t have the problems that the western diet peoples have. The problem is that “foods” are like gasoline, society is based on a way marketing moves the commerce and if it was good enough for *** its good enough for me. Personally I believe that food will be key to prevention but it will take a while, first Dr. Perricone has to be thrown to the lions. Bo Someone made a comment awhile back, to the effect, that we are all shooting for the same result but go about it in a different way. I butcher that every time I try and say that thought, it was a concise phrase, does anyone remember it.
  19. BoBennett

    Hair growth

    For a little encouragement purposes for the rest of you bald folks nearing the end of a regimen. I am only out 6 weeks from my last treatment and I have some serious hair growth happening. Even though I can still legitimately say I haven’t got a hair, Its nice to have a little coming in. Fortunately I have a treatment next week to work on the cancer. No problem. Bo
  20. Hey Bill, Glad to hear things are going better for your wife, especially to hear that the pain is diminishing. As to I often repeat that I searched for over three months trying to find ANYONE ( stageIV) who had gone longer than the stats say. Obviously there are many around, they are just not promoted by the mainstream because the bottom line is the medical community doesn’t know why we are here. Individually many of us have a guess as to why we are. I certainly appreciate all the information you are providing but don’t let those who know so little, suck that fighting energy from you and your wife. Bo
  21. Excellent information. I never could just eat a pint of ice cream, I had to eat two, so just from the standpoint of moderation or no longer being gluttonous with eating. It works for me. Although I eat the suggeriest fruits I can find and I’m often advised, when the minutia of it is brought out, that fructose, glucose, carbohydrates, simple and compounded with or without oil, saturated unsaturated polyi ed up or down, that my food thoughts are I in error. They may be right. Sometimes the proof is in the pudding. Good luck to all in your fight. Bo
  22. Just wanted to pass on what I was told by my PCP. He said it was common for ER patients to have high glucose due to stress, he said ranging 130ish.And it falls quickly when the stress slows up, I think it would follow that a stressful lifestyle may affect this as well. . He agreed that anticipating an event shouldn’t cause it to be elevated. I still think it may have an effect. The old butterflies in the stomach are a flight or fight thing in my mind. A good hand wash is in order after eating mangoes before testing. I tested this tonight, definitely higher on the sticky fingers. Thanks for the info Jane. I ate an apple, tomato and orange about an hour prior to testing During the two PET scans I had I don’t recall a blood draw or finger stick. But I understood the same. If the level is too high the reschedule. However they may have gotten the sample when the IV was put in. I am a banana eating machine and I’m happy a Costco run is happening tomorrow. Yea I think we all have our weaknesses but thankfully they are less offensive than they use to be. I use to be a hot dog eating machine. Bo
  23. Sorry to hear the news Bill, I missed Fays post. Bo
  24. I have to say I’m impressed with your handling of the whole situation, considering your trip through the system to diagnosis. That alone is enough to make you fight. Keep up the fight. Bo
  25. Mirrell, Very nice of you to supply information. I use this supplement and it is only one of three I use. I’m a hard sell and the research you supplied seems to be accepted by all sides. I have yet to hear a detractor for this. I would prefer to take a natural form of this. Anyone have any information on eating a milk thistle bush. Medicine seems to be different in the Asian countries. Do you have any insight as to why? Sorry for your fathers passing and thanks for hanging to help Bo
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