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shineladysue

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Posts posted by shineladysue

    Five Years

    in MEMBER UPDATES

    Posted

    Bud, I posted on fb , but wanted to post here too. This is such an awesome milestone and you are a real inspiration to many. Wishing you a Happy New Year Bud and many many many more to come.

    Hugs,

    Sue

    Tuesdays Air.

    in JUST FOR FUN

    Posted

    Merry Christmas, Randy and everyone! Your post is beautiful, Randy and yes many of us are having a hard time this season and my sister and I are among those. Just a little over three months ago we lost mom and she was THE Christmas person in the family. She put so much love an magic in many many Christmas's for us all . My sons and I will be together with my Daddy and my sister part of today and we will be missing mom , but we will try to make the best of it. Aside from mom, we've all lost many lcsc members and relatives this year and years past..holidays can be very hard. My heart goes out to all my friends here and I hope you have a wonderful Christmas filled with beautiful memories and that you will make a few more on this day. God Bless you all!

    Love,

    Sue

    6 years today!

    in HOPE

    Posted

    6 years is a wonderful anniversary and I'm happy to be celebrating it with you. Your message is certainly one that gives others hope. Thanks for sharing , God Bless you and Merry Christmas, Janet.

    Hugs,

    Sue

    Celebrating!

    in HOPE

    Posted

    15 years, WOO HOO!!! That is really something to celebrate and what an inspiration you are to others. Glad to hear that your hubby's scan results show improvement and hope they can get his blood work straight. May you, hubby and your families enjoy this holiday season as you celebrate all that is good. ;)

    Hugs,

    Sue

    Erics Family Needs some praeyrs from us...

    in GENERAL

    Posted

    (((Eric))), my heart hurts for you and your family. I never can find the words to express what I feel when the news is so sad beyond words... there are no words that can really comfort you at this time. Just know that my thoughts and prayers are with you , your family and all who loved Linda.

    Love,

    Sue

    Resentful caregiver

    in GENERAL

    Posted

    (((Susan))),

    Wish I had some advice, but I don't . I just want to say that I think it's good to vent and I love the way your share your life, the good and the bad of it because I'm sure it helps others . I just wish more people would come forward and share with you, so that you know you are not alone.

    From where I sit, you are amazing and such an inspiration. You are dealing with a big , bad, scary illness and trying to make the best of everything. I find that many men just don't know how talk things out or express their feelings. Many times, I've read stories, such as what you have written, and it seems that some men come across as resentful or angry as caregivers and although their feelings should be verbalized as anger toward the illness itself, their frustrations seem to come out as misplaced anger. I am not expressing myself well, but my guess is that your husband does not resent you or the fact that you are home, he is just angry ( like you are) that your life has been altered and in some ways it probably seems surreal. He probably hasn't let himself think things out in a rational way. He is probably in his comfort zone and just not dealing with it and not really thinking things through. I just hate to see you take his actions or words to heart when he is most likely just frustrated and doesn't want to deal with reality. Please don't feel guilty because you have nothing to feel guilty about.

    Wishing you the best in finding a solution to all your financial decisions and I hope you can find funding for your medication.

    HUGE HUGS,

    Sue

    Although & However,

    in NSCLC GROUP

    Posted

    I posted to this in the General Forum, but wanted to make sure you saw my post and to let you know that prayers continue for Tom and your family.

    (((Denise))),

    So sorry you are faced with so much uncertainty on these scan results, but at least it was "although and however" and not a definite positive. Wish I could say or do something to make this all go away. Just know that my thoughts and prayers are with you and I'm praying that all follow ups have good results.

    Love,

    Sue

    Pushing too hard

    in GENERAL

    Posted

    Susan,

    I'm not a lung cancer patient, but you inspire me with all that you are able to do and all that you attempt to do . I totally agree with everyone about not comparing yourself to others. Every case of lung cancer is different and every person is different. From where I sit, you are simply amazing and by sharing your personal thoughts and fears you help others. Hope you will soon be feeling much better.

    Hugs,

    Sue

    Although & However,

    in GENERAL

    Posted

    (((Denise))),

    So sorry you are faced with so much uncertainty on these scan results, but at least it was "although and however" and not a definite positive. Wish I could say or do something to make this all go away. Just know that my thoughts and prayers are with you and I'm praying that all follow ups have good results.

    Love,

    Sue

    Need help finding Hope

    in GENERAL

    Posted

    (((Janet))),

    I am just seeing this for the first time and my heart goes out to you. You have been going through so much. In all of this , I am reminded of the effect that Alimta had on Mike. He developed pneumonitis and became severely short of breath. It showed up on CT scan as a ground glass opacity.. Have you had a scan since all the shortness of breath? The treatment for it is high dose of prednisone which is slowly decreased. I'm not saying this is the cause of all your problems, but sharing experiences is sometimes helpful. Just wish there was one easy answer . I so want you to feel better. I've always loved your spirit and I know that for you to be so down that you have really had a rough time and I hate that. You have been and will be in my thoughts and prayers.

    Hugs,

    Sue

    5 years NED

    in HOPE

    Posted

    Bruce,

    You are indeed an inspiration and source of hope for many. I'm thrilled to be helping you celebrate your 5 years cancer free.. that's a huge milestone and I look forward to helping you celebrate many many more.

    Hugs,

    Sue

    What a Milestone!!

    in HOPE

    Posted

    (((Kasey))), Congratulations on your 8 year milestone and celebration. You joined here the same year I did and what a huge inspiration you have been to my family and others. Not only are you an inspiration, you are a beautiful person inside and out. You've reached out to so many of us in so many ways and I am no exception. I've never met you, but I have talked to you a couple times . I recommend that all newcomers take the time to read your story and your posts because so much of what you have given of yourself is still here to benefit all who look for it. Thank you , Kasey. Love you!

    Our Mom, Gwen Jones

    in GRIEF

    Posted

    My sister, Bonnie Jones and I wanted to let all of you know that our mom , Gwen Jones passed away last night, Sept. 18th. Many of you know (from facebook) that she had been very ill and in ICU for the past 3 weeks. Her illness, though lung related, was not due to lung cancer. She was a 5 year cancer survivor and NED on her scans, but she also had COPD/Emphysema which led to the severe Carbon Dioxide Narcosis that finally took her away from us.

    I just want all of you to know that she was always aware of my posts on this board and of the wonderful support and prayers you gave to her and our family. She used to play Lexulous ( a scrabble type game) on facebook and Ginny De Coursey had nicknamed her "Speedy".. she loved that name that Ginny had so affectionately called her. She also was especially grateful to Joel and Maryanne for sharing their cyberknife success, the same procedure that kept her NED for over 2 years.. She knew who many of you were and Bonnie oftentimes printed out your posts for her to read.. just want you to know that your support , love and prayers meant the world to her. She couldn't believe that perfect strangers could be so giving of themselves and it touched her deeply.

    Not sure how to handle all this pain that we feel right now as we try to move on without her, but I want to thank all of you who have been there supporting us with your kind words, love and prayers. Our lung cancer family has a very special place in our hearts.

    Love,

    Sue

    Not husband Too!

    in LC SURVIVORS

    Posted

    Hi Donna,

    Been thinking about you. Sent you a pm a while back, but not sure you got it. Just want you to know that you have been in my prayers. I'm so glad to read that your husband has had positive response to his treatment,as far as the lung, and I will be praying for a good report on the biopsy of the spot on his pelvis.

    Hugs,

    Sue

    Good News

    in MEMBER UPDATES

    Posted

    Paulette, I'm so glad I checked in here today. This is FANTASTIC news!!! I'm so happy to read it . It really puts a huge smile on my face. May you have many many many more NED years ahead.

    Hugs,

    Sue

    Great news on scans!

    in HOPE

    Posted

    Susan, this is fantastic news! I love it when cancer survivors post in the "GOOD NEWS" forum.. You give hope to many. Thanks for sharing and may God Bless you. Prayers continue for you.. always.

    Hugs,

    Sue

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