Sandra,
I am angry with you. That is gross negligence, somewhere. Yes, you do have to be your own best advocate. Many times, my mom will say " no news is good news, I've always thought".. well, unfortunately "no news" may be that no one has bothered to follow up or get the news .. which has been the case on all too many occasions where my family has been concerned. I can't tell you how many times Mike or my mom would arrive at the doctor for scan results and find out the doctor didn't have them yet. Wouldn't it be wonderful if the doctors actually made a note to check on the results themselves? This is something that all cancer patients need to know.. you can't assume anything and you have to look out for yourself.
Sandra, I'm just so very sorry for all you have been through. Know that my thoughts and prayers are with you . Hope you get answers and hopefully solutions to all your problems soon.
Hugs,
Sue