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fraves

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    Bethesda
  • Country
    Usa
  1. Well things are not going as good as planned. My dad did do some spot radiation on his spine and the are where his left arm/bicep is killing him. That helped a little but he now is in alot of pain in his are and both nodes by his neck on are hurting again. The dr put him on a differnet chemo. I asked him to get a 2nd opininon but he told me no. I am going with him to ask some q's myslef to the dr tomorrow. I really want to find out why they have not been able to control the pain. He is in so much pain they have him pretty pilled up and all he does is sleep. When I call him he is out of it b/c of the pills. Can anyone help in some q's I should ask. I really would appreciate it. Thanks, Matt
  2. Thanks Katie for the thoughts. My dad is doing good. He did a pet scan last Friday and they found that the mass is smaller. They did find that the T10 spine has increased. He is set up to do a 10 day spot radiation. His arm is feeling a little better. Good enough for him to drive again. I hope the radiation helps with the pain. If I could do it over again I would ask my dad to get a 2nd look at the pain. His Dr swore it was ortho related and it turns out it was not. If anyone is going through this please push your dr to look harder. My dad was told he had a pulled mucsel but it turns out the cancer spread to the bone in his shoulder. Now I have the harder part to get him to stop fing smoking. It is driving my brother and I nuts. He quit smoking and all this is made him smoke again. I cant beiieve it. He tells us he is stressed and once things calm down he will stop. So frustrating.
  3. They are keeping him on chemo. Has another treatment tom. I went on cancergrace and asked this q. Thanks again.
  4. So my dad went and saw his onc today and I am so confused. When my dad went to NIH the drs there said the chemo is not working and to stop. Also they said to do a MRI because of the intese pain in his left arm. They said that should not be happening. So he went to the onc and he said he does not agree w the NIH drs and that its too early to see if the chemo is working. Any suggestions. He had 1 cycle and starts the nexty cycle on Thurs. Also my dad is having the severe pain in his arm and no pain medicine is working. He had a MRI but could not do the full test b/c of the pain. I have searched and searched on the internet about arm pain. Alot of people have it but there is no clear answer. I have found b/c of the lung, the cancer in the spine, bc of the chemo, bone met, etc. How can there not be a clear answer to this. I just want the pain to go away. Matt
  5. I am sorry to hear about your mom. I cant imagine your pain. I can bet one thing. Your dad is very lucky to have you. My dad was just dx early dec Stage 4 lc and still dont feel its real. Stay strong and make sure to vent. I find it helpful.
  6. Janet, Thanks for sharing your story. Your story hits home for me in a different way. My dad was just dx early Dec and when we had Christmas I know it was in all of our heads it could be our last. My dad is getting tested next week to see if the mutation will work. Keep your fingers crossed. Your story brings hope and gives me some comfort. I am glad to see that people like you can fight. I am going to save your story and send it to my dad when he gets down. Matt
  7. Hi Adam, My dad was just dx with Stage 4 lc a couple of weeks ago. He is staying positve but is having a hard time. I know he is scared and worried but he does not share and I dont push. I wanted any advice you could give me to help him. Thanks, Matt
  8. Thanks to both of you. I am staying positve for my dad. I am not one of emotion but the last weeks have been full of them. My dad was a smoker and I think even after all this sneaks a cig. It makes me so mad but I dont wont to upset him at all. He is in a lot of pain in his left bicep and can not move his arm and he has lost a lot of energy. We are hoping once the mri is complete that it will give them more info to get rid of the pain and he can do more. I hope for the best.
  9. So I have been told that around 50% have this gene to be able to work for this mutation treatment. And if the treatment works it could add up to 1-5 years on a person's life. Does that mean my dad has a 50% chance of getting 1-5 years rather the 6 months the dr once said? Thanks so much for sharing info with me. I have learned so much from all of you.
  10. WOW. Thanks so much for all the information. I am going to pass along thie info. I have some more info. Its hard to get it out of my dad b/c he is trying to hide it from my brother and I so I went to his girlfriend and she is helping a bunch. I dont know what half of this stuff is but I am working on my own research. Here is wha my dad's girlfriend sent me when I ask what he has. Favor adenocarcinocma, includes squamous and adenosquamous cacrcinoma. Again he has it in his spine, lung, neck, shoulder, nodes, and arm. Stage 4. He goes to NIH next week to do the biopsy and will have results in 2 weeks to find out if he has a gene that will help fight the cancer (DOES ANYONE KNOW ABOUT THIS TREATMENT IS THIS THE MUTATION YOU WERE TALKING ABOUT). I guess this is the latest treatment. Even though it wont cure him it can add on 1-5 years per the dr. They are doing another MRI on his arm to find out what is going on with the pain. Also they are stopping the chemo only untill the biopsy is done then he will get back on it.
  11. I am new to any boards and I need any help info from you. We found out my dad has stage 4 lung cancer. It has spread to his spine,neck and his bicep. He has had two treatments of chemo. He had pain in his neck. That is gone but he has major pain in his left bicep. It is so bad he can not move his arm. I am worried the chemo is not working. He went to NIH tday and they are going to move forward and do a biopsy. We hope he will be a canidate with the info that comes back. They also recomend him to go back to his dr to do another mri b/c of the pain in his bicep. I am worried that his cancer has spread and that this is further along than once thought. He is bummed the chemo is not working and they have him on so much pain medicine all he does is sleep. I am so worried and wanted to see if I can get any info from you. PLEASE HELP.
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