Cindy RN
-
Posts
1,830 -
Joined
-
Last visited
Content Type
Downloads
Store
Profiles
Forums
Gallery
Blogs
Events
Posts posted by Cindy RN
-
-
I am just getting back after several months. I soooo sory. You were some of the old folks on here and I truely will miss the posts and the humor you all brought to this site
Love Cindy
-
Well it is about time i could get on here. I need updated from all.
I have missed so much and I am going to read and catch up.
Love and miss everyone, I will write tomorrow and catch you all up.
Love and kisses, Cindy
-
I am one of the ones Connie spoke of I think.
I was diag in Feb 2001 and still going. It relapsed in 2003 but made it thru that bout too.
Read the profile below.
Tell her there some of us!
Cindy
-
Like Katie said there are some of us that do beat the odds.
There is always hope!!!! I was diag in Feb 2001 and not to say it has not been all a bed of roses but I am here and this is a great site to remind us there are survivors and also a place to go and vent if we need.
Cindy
-
I have been gone for awhile.
I hate to see this, my prayers are with you both.
Cindy
-
me too
Happy Birhtday!
-
I am so sorry about the s-i-l. You have had your hands tooooooo full for tooooo long.
Glad he ate the roast sounds good.
Cindy
-
Give me a snappy-not to rude-remark to say back.
Anyone??
Cindy
-
Camptosar!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
I was on it with the cisplatin in 2001, not long after it had been approved by the fda!
Yes I had trouble with the runs so have PLENTY of imodium and lomotil on hand and USE it as a preventitive!
I am still here 6 yrs later so I had good results1!
Cindy
-
It is true I was diag in Feb 2001 and had a reoccurance in Feb 2003.
Ist course was cisplatin and camptosar, it worked well. In 2003 I had carboplatin and vp-16. I opted out of the pci, I did not feel comfortable with having it done. As of now I am 4 yrs since last chemo-Good luck!
Cindy
-
When I saw it on tv I thought of our friends up there.
Please know the whole country is watching and praying for the families effected.
Cindy
-
Cheers to the grand reopening!!
I will have my usual ice tea, NOT the long island ones tho-tried that once and had a headache the next day.
Tho I had a white russian at the Chicago Bash (well maybe 3 or 4) and those were pretty good.
Glad to hear Cindi is well.
Hope she comes back soon
Cindy
-
mom
in SCLC GROUP
If your mom is doing well then
GO FOR IT!!!!!!!
So many of us were told "you are terminal" well we ALL are ----- someday.
I was diag ext sclc Feb of 2001, it came back in 2003 but I am still here and doing fairly well.
Please keep her encouraged and ask the Dr to be more optimistic!
Cindy
-
Ernie-I hate hearing this. I do pray that this place will have the answers you need.
Cindy
-
Sorry I was away from the computer for several days.
I had Camptosar my first go around with the cisplatin. I assume it worked well with me-I am still here by the grace of God.
I did have terrible problems with the 'runs!!
I had it once a week for 3 weeks on and 1 week off for a total of 9 months.
PM me with any other questions. Read my profile below.
Good luck, Cindy
-
In 1993 my mom found this shark cartiledge powder. She had nsclc. I had to mix it in her oj everyday!! It stunk so bad. She had a friend who gave it to her, very expensive at that time I believe. Anyway-sharks are not supposed to get cancer-get the idea??
In 2003 when I was diag with sclc a friend gave me this green powder stuff-can not recall the name. I went home and mixed it as directed and thought I would gag!!! before I ever got it to my mouth. I took it back and told him if there was a choice of the cancer spreading or drinking that stuff I guess I would have to go with the cancer!
His wife said the same thing!
Oh well, there are new things all the time, hopefully someday there will be an herbal cure.
Cindy
-
Congrats
-
Sheri-I am so glad he has you to push the envelope!
So many Dr and health care people give up on us who have sclc.
Tell him to keep up the good spirits and do whatever is needed to get his strength. I am glad there is another option for you all.
I had good response to my chemo and rad after my relapse in 2003. here it is 2007!
Good luck.
Cindy
-
PORTLESS?????????????
One day I will feel ready to have mine out too.
CONGRATS!!!!
-
I too was so
to get to meet you all, I did get to shop, Sat am and Sun before I left. The drive home was uneventful except driving I-94 thru Chicago-27 miles and it took 1 hrs. Fri when I was coming into Chicago those 27 miles took almost 2 hrs. City life.
On the way home I kept seeing these strangely dressed men in cars --they seemed like they were having a good time. Then I hear on the radio it was Gay Pride Day in Chicago and there were thousands there for the Big Parade. Well that answered why they were dressed so differently. I am really secluded down here in the cornfields of southern IL
Hope everyone else made it home safely
Cindy
-
I had discussed this with my oncol and he daid it looked promising-my ins company will only pay for the standaed IV use of it.
You would think it would be cheaper on them to go the oral route.
I am still in remission but I watch for this type of news just in case.
cindy
-
I got home this evening about 6:15 cst. I had a great time at the LCSC Bash in Chicago. I am surprised nobody has posted their pics from it yet!!
My camera went dead on the first pic. I took some with my camera phone and video taped some of the evening to show my family here at home.
I had time to shop while there-oh my that place is a shoppers heaven!
Again I can not wait to see the pics. I was so glad to actually put faces and voices with all the people we 'talk' to on here.
Thanks Katie for a great dinner!!
The family and the 'pugs' were glad for mom to be home!!
Cindy
-
You BETTER get well!! I need you back on the sclc forum! You will be missed.
Take care of yourself and look for the pics when someone who knows how to post the stupid things puts them up!! i should be at Chicago, first time making the Bash.
Good luck, Cindy
-
I posted in the tests forum but this is my home
forum!!My last CT was clear and Dr said to come back in 6 months!! Over 6 yrs since diag.!! I am so grateful for all the support I receive from you-all.
This website has been such a Godsend to me. The day I joined it was the first day it was online! I was looking online that day for someplace to talk to others in my shoes. NOTHING out there and I happened on this site!
Katie and Rick had put it together and it has grown so. It is not good that we have to have a lung cancer web site but until there is a cure I am so blessed to be here.
Thanks again to all of you.
Cindy
EARTHQUAKE!!!!!
in GENERAL
Posted
I woke up thinking of the movie the Exorcist!!!!!!!!!!!
I live about 40 miles from the epi center-West Salem, Il and we sure felt it here. Had my 28 yr old daughter run in the room-what is it???????? She then joined hubby, 2 pugs and me in bed for about 15 min!
HA!
Cindy