Cindy RN

Friday evening the local Terre Haute, IN news station WTWO is going to interview a few of us at the Relay For Life here in Robinson and yours truly was asked to speak. I will try to get in a shot for the web site!! I think it will be on at 5PM IL time for any of you in that TV veiwing area. HOPEFULLY I don't flub up or start stuttering!! Cindy

I hate reading this. I hate that healthcare treats this disease this way. I have been a nurse for almost 20 yrs now. I do not know how I would of gotten thru this if I had not been. I was able to ask the questions that had to be asked. I knew what to ask, and what to ask for. (sometime I knew too much) Example-When I first found out it was sclc-I had had a bronchoscopy and it gave us the first results. They then schedualed me for a few other biopsies, I had to be put under for it. I TOLD them while I was out to put in a port for the chemo. I have had so many people ask-- why didn't they ask me so I already would have it in??? Everybody should have an advocate or a friend in medicine to help get thru this- So glad you were there for her! Cindy I have no idea why

Ollie Ollie Oxen Free!! Miss Ya! Cindy

Great news! Cindy

What can I say-I have been priveledged to have known him thru you. Love and prayers Cindy

Hopefully someone knows how to do this. What a sweet memory Cindy

I am so sorry for your loss, Cindy

I am there-Cindi-I need a white russian please, tanning lotion and a FAN! Cindy

Sharon-long time no see. I do understand the need to go on with life, stop by once in awhile, I remember when we all just started on here. Love Cindy

I wanted to add my sympathies also. You are so right Dr do not often cry in front of patients, your mom must of been very special Cindy

So nice to have you here-your daughter is really special. Cindy

I just read this today-1 year??? He was and will always be one of the funniest and strong people to have on here. I am so glad Faith has you to remind her of him. He is missed.

Great news I am one of those that does not like to wait the 6 mos. I had a scan in Nov 2002 and all was clear. In Feb 2003 my scan showed a 5 cm tumor in the L lung. It grew that fast. I have been clean now since 2003 so they now do a CXR then 3 mos later a CT then 3mos a CXR, also I get bld work with each visit. Cindy

Hey Ry is this still in effect?? Let me know if you still have people to call-Cindy

Larry-Just saw the post-miss you, take care. God is with you. Cindy

I am kind of late here too- The first time I had a long wig made to look like my hair. Then when it started coming out I had it cut to shoulders, loved it. Then it all fell out. I went back and had a shorter wig made. Then I got into buying holiday/season appropriate material from Wal-Mart and folded it into scarves and tied them on. I even made matching ties for my pug-Roxy. What ever you do-know that you are not alone. Also about the neck scar!! I was not told they were going to do that before my biopsies, imagine my surprise waking up to that scar!! It has been over 5 yrs since then and it is barely visable. Good luck

Sorry about your husband and friend. Well I have ins and medicare as a secondary so I have no problems with getting the med bills paid. I got the CT, PET and bone scan done at the beginning. Then during the chemo I got a CT to see that the chemo was working. During my remission periods I got a CT of chest and abd and blood work-cbc, chem profile and a cholesterol-ldh ( it increases with an increase of sclc-weird!) done every 3-4 months. Now that it has been 2 yrs since any signs of the cancer I get a CXR and bld work 3 months then 3 months later a CT and the bld work. I also have had a bone scan done this last spring-lots of bone/joint pain-so they ruled out mets to the bone. The Dr is afraid the radiation from the CT may cause problems since I have had so many. PET scans are done as a norm at the beginning, MRI's are done for checking for mets to the brain. I have had 2 since 2001, I had headaches and some vision changes, thank God there was nothing there. Hope this helps. Cindy

Your dad would be so proud. I bet he knows. Cindy

Sorry my post is so late-Please know that stats are just that stats. They are based on OLD info. I was diag Feb 2001 with ext sclc-several locations. I am still here! I have had one relapse and got thru it. Read the stats below to see what meds. Good luck, hang in there and support her. Love Cindy

I wish I knew how to post pics on here. Every yr since I was a child we made the rounds to all the OLD cemetaries in the counties where great-great-great relatives are buried. I have continued this since my mom died and the kids go with me. Last yr we took pics of all the graves and the flowers we made to put out. I made scrapbook and the family all love it. It is a special day to remember those who have served and those who have gone on ahead of us, Cindy

BONE PAIN!!! JOINT PAIN!!! I checked and that is a side effect. The med is tricking your body into thinking it is sick so it makes WBC (the cells that fight off diseases) by the billions. Since these are made (quickly) in the bone marrow it makes our bones ache! Hated it. Pain killers are the only way to go. Good luck, Cindy

Carleen-I have not been on much due to the boards being down. I have watched you 2 go thru this for a long time now, My prayers are with you and God does heal. We ALL keep fighting with God holding us up. You will get thru this setback. Love and prayers Cindy

This July 5th will be 12 yrs since my mom died from nsclc. I can not believe it has been that long, feels like it was just a few days ago she was still here. My nephew grad. the other day and had one of her earrings in his pocket. Sweet. I still dream of her as if she was still here. When I awake, I feel sad but happy that I do still remember her as she was before the disease. Cindy

We can deal with that

Irinotecan (camptosar) was orig. used on colon cancer-trials with it on sclc-- done in Japan several yrs ago showed great results on sclc. The FDA approved its use on sclc in the late 90's (I believe) because of the good results those trials had. I had a terrible time with the cisplatin after the 7th month-I was switched to carboplatin due to the neuropathy. It has been 4 yrs now and I still have tingling in my feet, it never went away. Good luck Cindy