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bellringer

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Everything posted by bellringer

  1. Hi all, I will leave home in a little while to have a stent removal proceedure done at Rhode Island Hospital. The stent was put in last fall when I was jaundiced from advanced sclc to the pancreas. I have been in remission for 10 mos. YAY! The last time they replaced the stent (4 mos. ago,) I woke up during the proceedure. NOT FUN. This time they will not replace it unless they see something suspicious. I'm still on steroids for pneumonitis and still am dealing with the cardiomyopathy. But other than being sleepy most of the time, things are going well. I've been wondering if other people feel the same as I do about remission. As the time goes by, I worry more that it will probably come back (considering the type of cancer & the stage). As I continue to keep Drs. appts., I get the feeling that they really don't know what to do with me, as they can't treat someone who doesn't need anything. Anyone else feel the same? I pray daily for all of us, and although I don't post much, I love this site & all of you out there. Claire
  2. Hi all, I will leave home in a little while to have a stent removal proceedure done at Rhode Island Hospital. The stent was put in last fall when I was jaundiced from advanced sclc to the pancreas. I have been in remission for 10 mos. YAY! The last time they replaced the stent (4 mos. ago,) I woke up during the proceedure. NOT FUN. This time they will not replace it unless they see something suspicious. I'm still on steroids for pneumonitis and still am dealing with the cardiomyopathy. But other than being sleepy most of the time, things are going well. I've been wondering if other people feel the same as I do about remission. As the time goes by, I worry more that it will probably come back (considering the type of cancer & the stage). As I continue to keep Drs. appts., I get the feeling that they really don't know what to do with me, as they can't treat someone who doesn't need anything. Anyone else feel the same? I pray daily for all of us, and although I don't post much, I love this site & all of you out there. Claire
  3. I also have sclc but I also have mets to pancreas. You are very fortunate to have an early limited stage.---I know, I'll bet you don't feel "fortunate". I was diagnosed in Nov. 03, & went into remission after the first 2 chemo treatments. Have also had 28 radiation appts. I quit smoking (40 yrs) as soon as I was diagnosed--40 yrs. too late. I still struggle with the addiction every day, but will not smoke again. Keep in touch & good luck to us!! Claire
  4. I also have sclc but I also have mets to pancreas. You are very fortunate to have an early limited stage.---I know, I'll bet you don't feel "fortunate". I was diagnosed in Nov. 03, & went into remission after the first 2 chemo treatments. Have also had 28 radiation appts. I quit smoking (40 yrs) as soon as I was diagnosed--40 yrs. too late. I still struggle with the addiction every day, but will not smoke again. Keep in touch & good luck to us!! Claire
  5. I also have sclc but I also have mets to pancreas. You are very fortunate to have an early limited stage.---I know, I'll bet you don't feel "fortunate". I was diagnosed in Nov. 03, & went into remission after the first 2 chemo treatments. Have also had 28 radiation appts. I quit smoking (40 yrs) as soon as I was diagnosed--40 yrs. too late. I still struggle with the addiction every day, but will not smoke again. Keep in touch & good luck to us!! Claire
  6. Hi all, It seems like every day I'm getting stronger & better -- & then I have an appt with the dr. & WHAM! Today I saw the cardiologist & she said that I have cardiomyopathy. Yeeks! I'm wondering if this could have been caused by the chemo or radiation? Although I've had several heart attacks in the past, my checkups have all been o.k. before this. Now Im on a change of medication & being told it can be managed medically. Good to know as it used to be pretty much of a death sentence. Does anyone know if it can be caused by chemo?
  7. Dear Pam, I too have sclc extensive to the pancreas. Your husbands treatment is typical and was done quickly after diagnosis which is a good thing. I understand how scary this can be, but as long as you have a good relationship with the oncologist on his case, you really can't do more for him than to support his treatment & ask questions when neccesary. They are the experts in the field, but only you can assess whether ther drs. are doing their best. Good luck, Claire
  8. Hi all, I've also posted in response to Cat, but wanted to be sure to include all who are about to be impacted by the hurricane in Fla. I am more than able & willing to shelter anyone from that area in my home in Rhode Island. I live in Exeter, R.I. & am located 3 miles from the train station at Kingston RI. & 30 minutes from the Providence airport. I have 2 extra bedrooms & a big house so email if you're interested. I would love to meet you. Love, Claire
  9. Dear Cat & any others impacted by this nasty scary storm. I live in Rhode Island in a little town called Exeter. I am 30 minutes from Providence Airport and 3 miles from the Amtrak train station at Kingston, R.I. I can house people in my extra 2 bedrooms & more if need be on an emergence basis. I would love to be able to help anyone (plus Doggies) in need of shelter. Please email & we will pick you up & shelter you as long as needed. I would truly love to help. email Claire
  10. Hello Shmaydee, I know just how you feel. It's so discouraging to feel so rotten & tired day after day. Plus, if your on radiation, you may still have symptoms pop up even months after treatment stops. Thats the bad news. The good news is that there is much hope for your type of limited cancer. I have extensive sclc & am currently in remission. The last month I have felt so well that I can hardly believe how sick I was. When you can string a few good days together your attidude will improve & you'll start enjoying life again. Also, please be on guard for depression creeping into the mix. Treatment is available & can help you feel better. Hang in there & keep us posted. We're there & we care! Claire
  11. Poor you!! You seem to be an amazing person, juggling everything & concerned for your in-laws too! I'm in awe of your ability to remain sane. It seems like you have figured out what you can do to ease your situation. I wish you luck & again want to say how much I admire your persistance & caring. Good luck!! claire
  12. Dear Frank, First of all, 69 yrs. is not old (I am 60). That said, I think that your role in this dilemma is that of supporting & loving son. You seem to be doing that well. Your mom's decision (whatever it is) to take or forego chemo is a tough one, but not insurmountable. She can always discontinue treatment if the side effects are too much. Her quality of life is of course hers alone to judge. What would seem to us to be innadequate and sad might be enough for her to wish to continue. Good luck & God bless. Claire
  13. Fay, your depiction & description of the lovely flowers reminds me that we who belong to the group of cancer survivors often feel & see things that would have been missed or passed by in earlier more healthy times. Maybe it's God's way of making up to us for our scary diagnosis. I have been noticing things of beauty in nature since my diagnosis 7 mos. ago. The thrill involved in such small discoveries slows my mind & fills me with a sense of peace & wonder & gratitude that I have been able to appreciate all that this beautiful world has to offer. Thanks for the picture & hang in. Claire
  14. Hi all, I've never been much of a "joiner", but then I've never had lung cancer before, either. I'm very much impressed by the members on this board & the support & caring they offer to everyone-pt. & caregiver alike.I have been blessed for the last 38 years to be married to Lyle who is my support & strength. Also, my daughter (gerbil Runner) & 3 of the coolest grandchildren you could ever meet. I'm looking forward to knowing you all better & sharing my own experience with "the beast". Thanks for being there. Claire
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