Positivity1022

P.S. Eric, I really like your quote. And you are right, no sense in worrying. I am so happy that all is going so well for you. I hide my worrying pretty well from my family, like my sister and my father, but my poor husband is getting the brunt of it. God bless him!

Hi to you both, Thank you so much for your words of care and inspiration! Eric, your story is truly amazing and so is that of your friend, Robert Lowe. Just unbelievable. What testaments to defying the odds and having the heart to keep on living life to the absolute fullest. Thank you so much for sending me these stories. I feel as though they are virtual hugs. I have a great update!... Mom's scans look clear according to the doctor! Well, aside from a few blood clots- yikes- but thankfully, after daily injections for 3 weeks these should be taken care of. Being the doc did us a favor and looked over the scans the same day, she is just reconfirming that all is clear, but she was quite pleased with them last night. So we'll head back in a few weeks to make sure the blood clots are gone and are on the 8 week plan for now. Every 8 weeks she'll be checked to make sure nothing is showing up- hoooraaaay. Or maybe I should say NED (no evidence of disease?) I'm still learning the terminology. But I must say, because of this site I have learned an awful lot about all of this. So much so that the doctor must have noticed me nodding at the right moments and finally looked over and said- "someone's been doing her research." This site is just amazing. So all is looking rosy right now and Mom is her incredibly upbeat and witty self.

Hi All, I am new to this site, but have been following many of your incredible journeys as caregivers and survivors. You are all such an inspiration to so many people- like me and my family. =) Our journey starts in October of 2011 when my Mom was diagnosed with sclc- limited. She went through chemo and radiation and POOF- it was gone as of April 2012. Then, on July 4 (how are these for fireworks)- my Mom took a seizure only to be rushed to the hospital to find out she had brain mets. Since then, her amazing radiologist treated her (using WBR) and the mets are almost completed depleted and we are told they should be gone come September 17 when we go back in for another scan of her brain. The doc said if there is a remnant he will use Gamma Knife. Ok great news considering, but here's where things get a bit complex... So we were able to get into Sloan Kettering and were very excited that she is able to get into a clinical trial- terrific, right? Well, the doctor wasn't exactly optimistic. She sat there and was extremely blunt, saying that this type of cancer is incurable and she hopes to keep my mom alive as long as possible. Ok, now, we know that this is not an easy battle all the way, but I have read some of your terrific/amazing stories and believe that my Mom can be here for 10 +years. Am I crazy? She is doing so great with treatments. Why couldn't the doc be more optimistic? I know she is probably one of the best in her field, but is it so much to ask for bedside manner? I'm just upset because, as you all know, this process can be awful, but I thought it could only get better going to Sloan. She left me feeling more worried about Mom than before my Aunts and I got there! Her other doctors in jersey were so much more optimistic. I do know though that they say the best doctors are usually the most blunt, but this was downright painful to listen to. Are there any long term extensive small cell lunger cancer survivors? We could really really use your stories right now. Mom looked so scared and so upset and my Mom is a really upbeat/funny woman. She is still at Sloan awaiting to get her full body scan done just blocks away. She is such a good mommy and insisted I come back to work, that my Aunt's and here will "have a tea party" while they await the scan. As as you can, I am doing very little work this afternoon. I cannot wait to go back to Sloan to be with them. The good part of this also is that Sloan was able to move forward with the scans today, instead of us waiting for our docs to do it in mid August. Fingers crossed it has not spread anywhere else. So hopefully. Please, though, anyone that can shed some light on some long term extensive survivors. We really need word on these stories right now. Best to you all, A caring daughter