NikoleV

Hi! I'm so sorry to hear your mom is struggling with a cough. Your mom's healthcare team may have suggestions other than medication that may be able to help ease the coughing. Has she tried using a humidifier in her room? Maybe hot tea with lemon & honey to soothe her throat? I hope she can find something that works for her.

Hi everyone! Great conversation and much to think about. Here's another article from IASLC that talks about air pollution and lung cancer. I hope you find it helpful. https://www.iaslc.org/iaslc-news/press-release/air-pollution-and-lung-cancer-iaslc-position-statement

Does estate planning feel overwhelming? We have partnered with Triage Cancer to walk you through things to consider as you begin the process of creating your plan and options available protect your medical decision-making rights. This live webinar is free to attend but advance registration required: https://bit.ly/3evpsND

Advocacy Opportunity, not LUNGevity sponsored: LaGrippe Research is currently inviting patients diagnosed with squamous cell carcinoma Non-Small Cell Lung Cancer and care partners to share their experiences living with and treating the disease. We will be conducting individual interviews with patients, as well as DYAD interviews with patient and their care partner. These will be 90-minute virtual interviews with a 30-minute pre-task. Those that qualify and participate will be compensated with $150 for the interview and an additional $50 for the completed pre-task. If you are interested, please fill out the preliminary survey here: https://www.surveymonkey.com/r/YVS6HJJ Questions can be directed to Alex at 847-533-4052 or alex@lagripperesearch.com.

Advocacy Opportunity, not LUNGevity sponsored: New patient research for stage 3b/3c and 4 NSCLC - ROS1 Find a Cure Panel specializes in patient research for rare and serious diseases and has some new patient research for stage 3b/3c and 4 Non small cell lung cancer (NSCLC) who have ROS1. They are focused on people diagnosed since 2017 (or thereabouts). This research is focused on patients, but caregivers can participate with their loved one. It’s easy to participate in. It's one confidential and anonymous 60 minute call with one moderator talking about your treatment experience and interest in future treatment. And if you do the call, FACP will pay you $200 via venmo, paypal, zelle or mailed check. If you are interested, please contact FACP via text at 323 717 8117 or via email at info@findacurepanel.com and reference ROS1-Lungevity.

Today is the last day to sign up for ILCSC session access! If you would like to hear from world-renowned researchers on the latest treatments, learn about ways to manage your lung cancer and treatment journey, and find hope in today’s scientific progress, then register now: www.LUNGevity.org/ILCSC #ILCSC22 #LCSM

Anyone with lungs can get lung cancer. Help raise awareness this #WorldLungCancerDay by learning the facts and getting involved. Learn about the progress made in lung cancer research and how you can help make a difference today: https://bit.ly/3vzF0Wr #LCSM #lungcancer #lungcancerresearch

We have several advocacy opportunities available through our partners. The criteria for these opportunities are listed below. If you meet the criteria & you’re interested; please comment below, private message me or email me at nventrca@lungevity.org. Thank you for being a part of our lung cancer community! 1) The Department of Defense is accepting nominations to be a part of their Lung Cancer Research Program’s Peer Review Panel. This opportunity is time consuming, so please keep that in mind if you are interested. This opportunity is virtual. If you have never been on the DOD peer review panel, and you are interested please let me know ASAP. The nominations need to be submitted in the next week. More information can be found here: https://cdmrp.army.mil/lcrp/default 2) Seeking a SCLC patient and caregiver. This opportunity is to be a part of a video about the SCLC experience, challenges, unmet needs and what a “day in the life” looks like. 3) Seeking a NSCLC patient at any stage. This is a virtual opportunity over a 1-year engagement (approximately 18 hours total of time) to participate on a Lung Cancer Patient Council. 4) There’s a virtual / online discussion AdBoard opportunity asking for 2 weeks of your time, looking for patients with the following criteria: Early Stage (1-3A NSCLC) within the last 5 years. Have received, or are receiving, or declined neoadjuvant or adjuvant treatment.

Find out how you can become a lung cancer advocate and learn more about policy tomorrow at 3 pm ET when you tune in to the LUNGevity Action Network Policy 101 webinar. Hear from LUNGevity’s Kristen Santiago, Brandon Leonard, and Lauren Humphries as they share an overview of important issues and key factors in policy. Register at the link and find out how you can make a difference through the LUNGevity Action Network: https://bit.ly/3yIHjHE

Join us tomorrow for the KRAS and Small Cell Lung Cancer virtual meetups! These meetups happen the 3rd Wednesday of each month. More information and register here: https://www.lungevity.org/for-patients-caregivers/support-services/virtual-meetups

Join us TOMORROW at Tuesday’s virtual meetup where special guest Jonatha Wright, Licensed Massage Therapist and Certified Lymphedema Therapist, will get hands-on about the many benefits of oncology massage for lung cancer care. Sign up here: https://us06web.zoom.us/meeting/register/tZUqceGvqj0pGtHDC_OJD-PrFGmQ2AY6MniJ

#ILCSC22 Registrants can access recorded sessions 3 business days after the event until October 15th. If you still want to register, you may do so until August 15th. https://lungevity.swoogo.com/ilcsc2022

https://www.lungevity.org/blogs/palliative-care-101-improving-quality-of-life-while-in-treatment Palliative Care 101 - Improving Quality of Life While in Treatment Posted on June 14, 2022 LUNGevity Foundation Palliative care, or supportive care, often misunderstood as only end-of-life care, improves patients' quality of life while undergoing treatment. The goal of palliative care is to alleviate the symptoms and side effects caused by lung cancer or its treatment. It also can help you and your family deal with both the emotional aspects of your illness and any practical issues. Although hospice care is a type of palliative care, not all palliative care is reserved for end-of-life. If you suffer from pain, stress, or other symptoms due to a serious disease like lung cancer, palliative care could help. The National Comprehensive Cancer Network (NCCN) recommends that cancer patients (along with their families and caregivers) should be made aware that palliative care is part of the patient's comprehensive cancer care. Palliative care can reduce symptoms and side effects. It also lowers rates of depression and improves a patient's understanding of their prognosis and treatment plan. Dr. Laura Petrillo, a palliative care physician at Massachusetts General Hospital, weighed in on the value of palliative care. "Palliative care focuses on helping people manage the symptoms and the stress of serious, advanced diseases. We work with the oncology team as an extra layer of support. Our ultimate goal is to improve the quality of life for the patient and their family." Palliative care can include: Pain and side effect management medications Physical therapy Nutrition counseling Complementary therapies like acupuncture and meditation Counseling and other resources for mental health Support completing complex medical forms Explanations of test results and treatment plans Resources for navigating practical issues relating to insurance, workplace challenges, and financial hardship The doctor managing your disease will make the referral to a palliative care specialist. If your doctor does not bring it up, you can request a referral. A hospital social worker can also help you and your family select a palliative care provider. Many private insurance plans, as well as Medicare and Medicaid, cover at least some palliative care services. You should discuss what services are covered with your insurer in advance. Patients without health insurance should check with a social worker or their hospital's financial counselor. Palliative care can be provided in a doctor's office, hospital, cancer center, long-term care facility, or at home. Many large hospitals and cancer centers have palliative care teams. Doctors, nurses, social workers, therapists, and chaplains often work together to provide palliative care alongside the oncologist. If your treatment center does not offer palliative care, your doctor can refer you to a palliative care specialist outside the facility. Note that a palliative care doctor never replaces any other doctors on your healthcare team. If interested in palliative care, please consider asking your doctor about a referral and what options may be available. Once paired with a palliative care specialist, a helpful guide for asking important questions can be found here. LUNGevity's survivorship staff is also available to provide one-on-one support, information, and resources. Connect with LUNGevity’s survivorship team by email at HOPE@LUNGevity.org. Related Reading: Palliative Care: An Important Tool for Advanced-Stage Lung Cancer Patients A Lung Cancer Patient’s Experience with Palliative Care

We all know it’s important to make time for self-care. But do you worry that massage might be unsafe for cancer patients? Be sure to save the date for next Tuesday’s (July 19th, 12 pm ET | 11 am CT | 9 am PT) virtual meetup where special guest Jonatha Wright, Licensed Massage Therapist and Certified Lymphedema Therapist, will get hands-on about the many benefits of oncology massage for lung cancer care. Virtual meetups are FREE to attend but do require advance registration. Sign up here and make time for yourself: https://us06web.zoom.us/meeting/register/tZUqceGvqj0pGtHDC_OJD-PrFGmQ2AY6MniJ

Join us tomorrow for the No Mutation virtual meetup! This meetup happens the 2nd Wednesday of each month. More information and register here: https://www.lungevity.org/for-patients-caregivers/support-services/virtual-meetups Make sure you check out our calendar so you can start saving the dates for important events like virtual meetups, #ILCSC22, and more. All you need to know here: https://bit.ly/3nnMS9d

Recipes from Around the World: Mediterranean Quinoa Salad by SUZANNE APPEL, DIETETIC INTERN The Mediterranean diet is a style of eating that is based on the natural eating patterns of those living on or around the Mediterranean sea [i]. It is centered on whole grains, fruits, vegetables, nuts, legumes, fish and fats such as olive oil, and is associated with numerous health benefits–including reducing the risk of cardiovascular diseases, diabetes, and cancer [ii]. This cold Mediterranean quinoa salad is full of protein, healthy fats, and colorful veggies, and is bursting with fresh flavor. The recipe is easy to pull together and holds up wonderfully in the fridge–making this a super easy meal prep lunch for the week! Read more here: https://savorhealth.com/recipes-from-around-the-world-mediterranean-quinoa-salad/

Did you know you can connect directly with leading experts in lung cancer at this year's International Lung Cancer Survivorship Conference? Running 1:00-2:30 EDT on July 16, pick your session of interest, prepare your questions, and gain valuable insight from the conversation. Remember, ILCSC is virtual and free to attend, but you need to register in advance: http://www.LUNGevity.org/ILCSC

Are you a patient with SCLC? We are working with the Association of Community Cancer Centers (ACCC) to help develop education and other information for clinicians and patients with SCLC. If you are a United States resident 21 years of age or older, we would like to hear your perspective on the challenges you face and educational needs you may have. For your time in completing a 10 to 15-minute online survey, we are offering a $15 Amazon.com gift card. Additionally, if you would prefer not to leave contact information (name and email) you can still complete the survey and request that your $15 be provided to a lung cancer advocacy group or charity. Whether you choose the gift card or the donation, your responses will never be linked to you in any way. All data will be reported in aggregate and be used directly to develop educational programs. For more information, please follow the link: https://bit.ly/3jXYb5Z

Have you been told you have the Exon 20 insertion mutation? Pillar Patient Advocates is seeking 15 patients and 10 caregivers of loved ones diagnosed with advanced or metastatic NSCLC to participate in a 60-minute phone interview. In appreciation, participants are paid $125 for their time and input. If interested, please complete our short registration at https://www.research.net/r/lungevity or email EPilkington@PillarAdvocates.com with a phone number you can be reached at to go through a few screening questions. This study is for US residents only.

Join us tomorrow for the Rare Mutation virtual meetup! These meetups happen the 1st Wednesday of each month. More information and register here: https://www.lungevity.org/for-patients-caregivers/support-services/virtual-meetups Make sure you check out our calendar so you can start saving the dates for important events like virtual meetups, #ILCSC22, and more. All you need to know here: https://bit.ly/3nnMS9d

Join us tomorrow for the Rare Mutation virtual meetup! These meetups happen the 1st Wednesday of each month. More information and register here: https://www.lungevity.org/for-patients-caregivers/support-services/virtual-meetups Make sure you check out our calendar so you can start saving the dates for important events like virtual meetups, #ILCSC22, and more. All you need to know here: https://bit.ly/3nnMS9d

Join us tomorrow for the EGFR and Rare Mutation virtual meetups! These meetups happen the 1st Wednesday of each month. More information and register here: https://www.lungevity.org/for-patients-caregivers/support-services/virtual-meetups Make sure you check out our calendar so you can start saving the dates for important events like virtual meetups, #ILCSC22, and more. All you need to know here: https://bit.ly/3nnMS9d

LUNGevity is proud to announce that we have launched a new Patient Gateway, specifically created for people with rare mutations and fusions (ROS1, MET, RET, NTRK, BRAF, and more). Like the other Patient Gateways, the Rare Mutations and Fusions Gateway is a central hub for information, news, events, and expert webinars. Check it out here: https://rare-mutations.lungevity.org/

LUNGevity is proud to announce that we have launched a new Patient Gateway, specifically created for people with rare mutations and fusions (ROS1, MET, RET, NTRK, BRAF, and more). Like the other Patient Gateways, the Rare Mutations and Fusions Gateway is a central hub for information, news, events, and expert webinars. Check it out here: https://rare-mutations.lungevity.org/

LUNGevity is proud to announce that we have launched a new Patient Gateway, specifically created for people with rare mutations and fusions (ROS1, MET, RET, NTRK, BRAF, and more). Like the other Patient Gateways, the Rare Mutations and Fusions Gateway is a central hub for information, news, events, and expert webinars. Check it out here: https://rare-mutations.lungevity.org/