NikoleV

I was moderating a LUNGevity virtual meetup yesterday and there was great conversation about food choices while being in treatment. The group recommended the ACS website for healthy eating tips. Do you find convenience in eating out or just enjoy eating out every now and then? Here's a good article with Tips for Eating Out. 
https://www.cancer.org/cancer/risk-prevention/diet-physical-activity/eat-healthy/restaurant-eating-tips.html

Hi Rikke! Great idea! Let me look into this and see what we can do. Thank you for the wonderful idea. Have a great day!

Hello admins!
Is there a way to close topics/shut off comments from threads (i.e. Not deleting, just preventing further comments. I have noticed a couple of instances where people passed away and someone comments months later - possibly not noticing the dates. Prob not a big deal, but was just thinking that for a relative grieving that might not feel great. 
Cheers, Rikke

In researching clinical trials, I came upon some interesting info regarding BMF-219. It has shown great results for leukemia, and now they are looking at trials for lung cancers with any KRAS mutation. This is hopeful for me as I have one of the lesser known types - KRAS A146V.
Here are a couple of links I hope some will find interesting:
https://www.targetedonc.com/view/treatment-with-novel-kras-inhibitor-commences-in-phase-1-1b-study-covalent-10
https://aacrjournals.org/cancerres/article/82/12_Supplement/2665/699885/Abstract-2665-Irreversible-menin-inhibitor-BMF-219
Best to all, June

Liquid biopsies continue to be a hot topic in lung cancer.
Tune in during the International Lung Cancer Survivorship Conference to hear Dr. Christian Rolfo (Icahn School of Medicine at Mount Sinai Heath System) discuss the current capabilities of liquid biopsies and what their future potential could be. Register for this virtual conference for free by visiting www.lungevity.org/ilcsc

Cachexia is a problem that many living with lung cancer face. Learn what is being done to address one of cancer's grand challenges from Dr. Marcus Goncalves (Weill Cornell Medicine) at the International Lung Cancer Survivorship Conference this Friday and Saturday. Register for free here: www.lungevity.org/ilcsc

The International Lung Cancer Survivorship Conference is taking place virtually this Friday and Saturday! Register now to have free access to international lung cancer experts from around the world and join hundreds of participants from more than 50 countries to learn how to live well with lung cancer.
Visit www.lungevity.org/ILCSC to sign up now!

Do you have questions about your type of lung cancer? Ask the experts!

The International Lung Cancer Survivorship Conference is happening virtually from September 22-23. Get prepped before the conference begins by watching the Lung Cancer 101's in advance! 

Do you want to learn more about NSCLC transformation to SCLC? Join us for the International Lung Cancer Survivorship Conference and tune into Dr. Triparna Sen's (Icahn School of Medicine at Mount Sinai) session.
Registration is free to attend this virtual event for lung cancer patients, survivors, and care partners. www.lungevity.org/ilcsc

ILCSC Session Highlight: Addressing Brain Mets in Lung Cancer
Leading lung cancer expert, Dr. Manmeet Ahluwalia (Miami Cancer Institute) discusses brain mets in people living with lung cancer.
Register for free for the virtual International Lung Cancer Survivorship Conference September 22-23. www.lungevity.org/ilcsc

The International Lung Cancer Survivorship Conference (ILCSC) is bringing the world's leading lung cancer experts directly to you! Today's speaker spotlight highlights Dr. Gabriel Lopez (MD Anderson Cancer Center), who will be discussing Integrative Oncology and Alternative Medicine Approaches in lung cancer.
Learn, get your questions answered, and connect with others living with lung cancer. Register for free today www.lungevity.org/ilcsc

Breathe Deep TOGETHER, the nationwide community event to support people living with lung cancer, is happening Saturday, November 4th and we want you to join us! 

Whether you are in Chicago, New York, Washington, D.C., Boston, Northeastern PA, or ANYWHERE, celebrate the progress that has been made in lung cancer research and come together as a community to kick off Lung Cancer Awareness Month. 

Learn more and register at www.lungevity.org/TOGETHER 

The International Lung Cancer Survivorship Conference is less than a month away! You won't want to miss hearing from the world's leading lung cancer experts at this free, virtual conference on September 22-23.
To see the full agenda and register, visit www.lungevity.org/ilcsc
 

Registration now open!
The International Lung Cancer Survivorship Conference is bringing the world's leading lung cancer experts directly to you September 22-23, 2023.
This free virtual conference is your opportunity to get special access to the top researchers, clinicians, and healthcare providers in the lung cancer space. Connect with others living with your type of lung cancer in breakout sessions and get your questions answered by experts.
Learn more and register here: www.lungevity.org/ilcsc

Dr. Charles Swanton (Francis Crick Institute and Cancer Research Center UK), gives the Welcome and Keynote Address on The Role of Air Pollution in Causing Lung Cancer.
Connect with world-renowned leading experts discussing the latest treatment advancements and scientific progress in lung cancer today. Learn more and reserve your free spot at: www.LUNGevity.org/ILCSC

New lung cancer support group held virtually via zoom. RSVP is required.
4th Tuesday of the month, 12-1pm
More information and RSVP:
Michaela Fitzgerald, MSW, LICSW
202-660-7519
mfitzg25@jhmi.edu
Sibley lung cancer support group.pdf

Looking for one on one support? We can match you with someone that can offer you support, who's walked the same path and understands what you're going thru.
Our LifeLine Support Partners (buddies) volunteer to mentor and offer encouragement, advice, experience and hope to those newly diagnosed and anyone needing additional support through a one-on-one personal connection by email or telephone.
Request a support buddy today OR if you are in a place in your journey where you are ready to mentor others--volunteer to BE a lifeline to someone else today!
https://www.lungevity.org/for-patients-caregivers/support-services/peer-to-peer-mentoring/lifeline-support-partners

Visit our website to register: https://www.lungevity.org/for-patients-caregivers/support-services/virtual-meetups
 
LUNGevity hosts weekly Virtual Meetups for patients, survivors, caregivers, and friends and family members of people with lung cancer to virtually connect face-to-face with others across the country. Whether you are new to your diagnosis or have been navigating the disease for many years, you can find encouragement, valuable information, and true friendship at our Virtual Meetups.
LUNGevity’s Current Virtual Meetup Lineup
 
Tuesday General Meetup: 12 pm ET | 11 am CT | 9 am PT
For patients/survivors
General meetup for those impacted by lung cancer
Register in advance for this meeting
After registering, you will receive a confirmation email containing information about joining the meeting.
Wednesday Oncogene Groups
Oncogene specific meetups
EGFR - 1st Wednesday 12 pm ET / 11 am CT / 9 am PT
Register in advance for this meeting
After registering, you will receive a confirmation email containing information about joining the meeting.
Rare Mutation (RET, ROS1, MET, BRAF) – 1st Wednesday 3 pm ET / 2 pm CT / 12 pm PT
Register in advance for this meeting
After registering, you will receive a confirmation email containing information about joining the meeting.
No Mutation – 2nd Wednesday 12 pm ET / 11 am CT / 9 am PT
Register in advance for this meeting
After registering, you will receive a confirmation email containing information about joining the meeting.
KRAS – 3rd Wednesday 12 pm ET / 11 am CT / 9 am PT
Register in advance for this meeting
After registering, you will receive a confirmation email containing information about joining the meeting.
SCLC – 3rd Wednesday 3 pm ET / 2 pm CT / 12 pm PT
Register in advance for this meeting
After registering, you will receive a confirmation email containing information about joining the meeting.
ALK – 4th Wednesday 12 pm ET / 11 am CT / 9 am PT
Register in advance for this meeting
After registering, you will receive a confirmation email containing information about joining the meeting.
Thursday Caregiver Connection (4th Thursday of the month): 8 pm ET | 7 pm CT | 5 pm PT
For caregivers, family & friends
You don’t need to take on caregiving alone. Connect with others who share common experiences and build your community of fellow caregivers.
Register in advance for this meeting
After registering, you will receive a confirmation email containing information about joining the meeting. 
Thursday Happy Hour (3rd Thursday of the month): 6:30 ET | 5:30 CT | 3:30 PT
For patients/survivors
General meetup for those impacted by lung cancer
Register in advance for this meeting
After registering, you will receive a confirmation email containing information about joining the meeting.
 
Please note that meetups will not be held on holidays and during LUNGevity office closures. Contact support@lungevity.org for more information.
Please visit the LUNGevity calendar to learn more about special meetups and expert speakers. https://www.lungevity.org/events

It's National Chocolate Chip Cookie Day! Do you prefer a regular chocolate chip cookie or one with extra ingredients?
Pumpkin Oatmeal Chocolate Chip Cookies
An anti-inflammatory and anti-oxidant wonder in a delicious cookie!
https://hopecancerconnection.org/journey-support/cancer-survivor/nutrition-tips-recipes/pumpkin-oatmeal-chocolate-chip-cookies/

Looking to connect with others living with lung cancer? Join one of our virtual events this week!
https://www.lungevity.org/for-patients-caregivers/support-services/virtual-meetups

Have you ever heard of an ADC or antibody drug conjugate? This is a new style of targeted medicine for people living with lung cancer. We have a 2 question survey to get a sense about what patients and caregivers have heard, if anything, about ADCs.  This survey is for a medical education program for oncologists that we are partnering on with PeerView Oncology. If you have an extra minute, we would LOVE to have your input.
https://www.surveymonkey.com/r/SNBFDVS

**Please respond by Friday, June 2.
Have questions about a new type of targeted medicine called “antibody-drug conjugates” or “ADCs”? 

LUNGevity is partnering with PeerView Oncology to host medical education for providers on ADCs. The input from the patient survivor community on this new area of lung cancer care is VERY important to give to providers as part of the medical education. We would LOVE your feedback on this 2 question survey to help us and providers know how much the patient survivor community has heard and where more information is needed. 

https://www.surveymonkey.com/r/SNBFDVS
 

Reminder: a relaxing evening of stretching the mind and body is happening tomorrow at a Virtual Coffeehouse from 5:30-6:30 PM ET. Participate in a guided meditation and some gentle stretching to relieve stress, help balance your emotions, and lift your mood. Then enjoy connecting with friends and meeting others in the lung cancer community over conversation.
Register here: https://smithcenter.org/programs-retreat/coffee-house-lungevity-04-26/