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Found 22 results

  1. I'm stuck. Often as it turns out, and I'm more than a decade away from active treatment. My veins, or what is left of them, run away and hide when in proximity of one of those IV devices. I'm down to about 4 scheduled draws a year. When in active treatment, I'd get poked that many times a week. What results from all of this mayhem - an irrational fear of blood draws. Needles and injections are a piece of cake. While in the army, we got vaccinated frequently, before every deployment, on a just in case basis. We had a thing called an official shot record that was faithfully recorded
  2. Curious if any body can give me some information on Chemo side effects. It has been a month since my last Chemo treatment yet still have side effects. The one that concerns me the most is that once or twice a week I go thru short periods of vomiting. I'm not nauseated, but it hits suddenly and with little time to react. I am doing radiation but didnt think that was a side effect. The fact it's not constant is what bothers me. Any body else experience something similar. Peace Tom
  3. I forgot to ask this. What should I wear for Chemo? Loose fitting button down? Sweat shirt? Pants? Probably a dumb question and probably too late Tom
  4. Any thoughts/Experience?? High doses of vitamin C to improve cancer treatment passes human safety trial https://www.sciencedaily.com/releases/2017/03/170330142341.htm
  5. TJM

    Question on port

    Question for those who have had ports. Mine was installed on Friday and is still pretty tender. I took off the bandage yesterday per instructions and the wound looks OK. No swelling or real redness but when I touch it or move in a certain way it hurts. I assume this will get better? My first use will be Thursday. I will use it bit think it might be more painful than the IV. Thanks in advance Tom
  6. This post is just to demonstrate use of tags. Peace Tom
  7. Hello fellow survivors and caregivers. I have a difficult decision to make and would appreciate your feedback. Can I avoid more Chemo? Advice appreciated, details below... This summer I was diagnosed with NSCLC lung cancer (Stage 3B), and I've since been through chemo, radiation and successful surgery to remove my upper left lobe. My oncologist initially said he would be okay with just doing observation (CT scans every 3 months) as a next step rather than adjuvant chemo after my surgery. He said the Tumor Board was split on their opinion of doing more chemo vs observation, and I
  8. Hello fellow survivors and caregivers. I have a difficult decision to make and would appreciate your feedback. Can I avoid more Chemo? Advice appreciated, details below... This summer I was diagnosed with NSCLC lung cancer (Stage 3B), and I've since been through chemo, radiation and successful surgery to remove my upper left lobe. My oncologist initially said he would be okay with just doing observation (CT scans every 3 months) as a next step rather than adjuvant chemo after my surgery. He said the Tumor Board was split on their opinion of doing more chemo vs observation, and I
  9. Keytruda Vs. Chemo & Radiation... I can't decide! This is for my mom - age 74 with numerous health issues just diagnosed in December with Primary Lung Adenocarcinoma, though the stage is not confirmed - they're guessing stage 4. She has a general oncologist locally, and a lung oncologist's second opinion with the best credentials at MD Anderson, but frankly, we're unhappy with both oncologists, but it's a toss up between which treatment regimen is best to try at least first - these are the facts: Her current health issues: Mild-moderate COPD with a bit of wheezing (though sh
  10. Hello, this is my first post. My dad was diagnosed with Stage 4 lung cancer, non-small cell, adenocarcinoma the end of July. They found 10-13 lesions in the brain, one area on the adrenal gland , one on the spine , and possibly a small area on the liver. My dad had 2 weeks of radiation on the brain immediately. Before treatment, he got very unsteady and had a drop foot. After radiation, he got most of his coordination back. He had palliative radiation to the place on his spine for pain. Last Monday, my dad's oncologist put my dad on 2 chemo drugs (not sure the names at this time) and ketruda
  11. Hi, I am looking to learn more about holistic treatments that can be combined with traditional chemo and maintenance treatment in patients with Stage IV NSCLC, EGR negative. I have been reading about the benefits of turmeric, frankincense, and maitake mushrooms on different forums and cancer center sites. I was wondering if anyone has any recommendations or knowledge about whether alternative therapies can help with symptom management and cancer regression, and also if anyone knows of negative side effects to be aware of. Thanks! Liz
  12. Hi Everyone! I had a pretty treatment specific question. My Mom's first line of treatment was Carboplatin and Alimta which she handled VERY well and had a great response to as a chemotherapy drug. As her cancer has recently returned, she's just started her second line treatment which is Carboplatin/Abraxane/Avastin. She only received the Carboplatin and Abraxane during her treatment yesterday as they found some blood in her urine so they didn't want to deliver the Avastin without first culturing that to see what was going on. Does anyone have an experience with this cou
  13. I think we can all agree that chemo stinks. I had four rounds of cisplatin/pemexetred last year and I'm 3 weeks into 6 weeks of carboplatin/taxol for a recurrence. Last year, my girlfriends and I decided to have themes for chemo. One session was 80s and the last session was Mardi Gras. We had beads and boas for everyone. We're doing the same thing again this year. We had spring fling, beach fun, and today's pajama party. For some reason, my husband wants no part of the costume concept! I'm sharing this in the hopes that it will inspire you to find a way to get through chemo with a
  14. Jg_miller

    Alimta

    Any body on Alimta? Side effects, success stories, etc. I start next Monday on alimta. First chemo platinum, then opdivo.
  15. Hi, Just a quick introduction of a now 64 year old man with stage 4 lung non small cell lung cancer. I have been arguing with this disease for 4 years now and as I listed the various forms of treatments that I have undergone. I won't bore anyone with the details but would be more then happy to answer anyone's questions about any of the treatments that I have had. There seem to be numerous questions about immunology drugs such as Optivo. If I can help just shout at me (or a soft whisper would do fine).
  16. Looking for small cell lung cancer survivor who quit chemo after having started. Please email [email protected]
  17. My Dad Started chemo on May 12 (Carbo/Taxol). He had treatments once a week for 4 weeks then a week off. The last few visits, his bloodwork wasn't what the Dr thought it should be, so they didn't give him the Carbo, just Taxol. Last week, Dr called out of the blue and said he wanted Dad to get an abdominal ultrasound immediately. The following day, Dr asked us to come to his office. It seems the chemo has caused some damage to Dad's kidneys. Now they've stopped chemo until kidneys recover. Question to anyone is, what does this "really" mean? Are we facing a small blip or hitting a wa
  18. Hello everyone, Here is a great opportunity to make food taste good again during chemotherapy! ________________________________________________________________________________ My name is Jessie Callahan. I am the Marketing Director at Cooking for Chemo. We are teaming up with Gilda's Club Chicago on April 20th @ 6 pm to teach a virtual class on Cooking for Chemo. I am writing to invite you to come to the webinar. The presentation will be held at their clubhouse. Gilda's Club Chicago Wells Street Clubhouse 537 North Wells Street Chicago, IL 60654 The event is 100% FREE
  19. Dad went for 12 week checkup today - has been on Opdivo and has been feeling pretty good. However, he hasn't been on any chemo yet. Everything I read about Opdivo says that it is for "those who have previously been on platinum-based chemo." The doctor, who has been the only oncologist that my Dad has seen, seemed to think that Dad had been on some chemo previously. I'm concerned that the doctor hasn't been paying attention, since he never prescribed chemo, just Opdivo - and I'm worried about what the concequences of having not had chemo on his prognosis. Any thoughts from th
  20. I begin with Carboplatin, alimta, and Avastin one time per week every 3 weeks. Dr put me on folic acid and a steroid taken day before chem for 3days. What are typical things to expect... I heard the nausea comes one to 3 days later? Any tiips, recommendations are welcome.
  21. Not really sure what to say here i have a rare form of cancer that attacks the lungs and other parts of the body its called langerhans cell hystosis.I am 49 and on 6 liters of air andstarting chemo this week for lungs and a brain tumor as well. I am not sure what to expect and doctors are not very forthcoming with information. So here i sit in limbo and terrified
  22. I begin with Carboplatin, alimta, and Avastin one time per week every 3 weeks. Dr put me on folic acid and a steroid taken day before chem for 3days. What are typical things to expect... I heard the nausea comes one to 3 days later? Any tiips, recommendations are welcome.
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