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Found 7 results

  1. Hi everyone! I’m Melissa and I live in Baltimore. I was diagnosed with Stage IV Adenocarcinoma in July of this year after having a nagging cough that would not go away. I have been on Tagrisso and as of October my scans showed the tumors have shrunken by 50%. I am so thankful to be living in an age where Tagrisso is even an option! I have an amazing support system of husband, family, friends and colleagues who have gone above and beyond with help and this has gotten me through 2020. I had lost my job due to COVID about 5 days before my diagnosis so it was a real double punch for life changes. I was so uncertain of what to do next and what I should be doing with myself. My husband and I were ready to find our dream home and I really loved my job. All at once, it felt like our future was ripped away from us. I did make the decision to keep working and was SO fortunate to find employment at a wonderful organization. This has also allowed us to begin the search for a home again. I’m terrified of making such a huge commitment since I don’t know what my next scan holds but I try to read the stories of other survivors and believe that I have many years left. I decided to reach out to the support group because up to now, i haven’t talked to anyone else with my diagnosis and I want to hear stories from people who share my experience. I also feel the need to give my. Are takers a break from my every worry that I have about my health because I know they worry so much too. Thanks for reading my story!!
  2. Hi everyone: I'm Josephine. My mom has stage IV lung cancer, adenocarcinoma, with MPE. Not confirmed yet (pending final cytology report and genetic testing). But with the MPE, and they found a stain matches adenocarcinoma in the initial cytology report, we know what we're dealing with. I was devastated and shocked (my mom never smoked, no cancer in her family). I cried for days, then I thought I had to be strong and be my mom's advocate. Then I found this forum, I'm glad I found you. Tomorrow is our first consultation with her oncologist. This is the appointment where we'll learn what's in the final cytology report and the results of her genetic testing. We live in Los Angeles, our city and our state is dealing with wild fires. The doctor has a family emergency, our appointment was changed from in-person to a video appointment. My mom and I are disappointed, we were hoping to meet with the doctor, assess our chemistry etc. But we understand the situation. I assume tomorrow she'll tell us the treatment plan etc. The appointment is an hour long. If you guys have any advice (what to ask, etc.) please let me know. My mom is with Kaiser. She's been using Kaiser for a good 20+ years. Kaiser has been convenient and effective (my dad had a bypass surgery and a hip replacement surgery there, both were successful), but when I ask around about Kaiser treating cancer, I get somewhat negative feedback. Reading their online resources, it seems they don't offer immunotherapy. Are any of you familiar with Kaiser and can give me advice there? Advice on anything. Open enrollment is coming up. Shall I try to switch and get my mom treated at Cedar Sinai or City of Hope? Is switching to a new medical provider isn't viable as my mom now has "preexisting" conditions. So many questions to ask. Appreciate any information you guys can offer. I'll be a regular here. Talk to you soon. Josephine
  3. Hi, I am new to this forum and recently diagnosed with Stage 4 adenocarcinoma. I have been in treatment with Tagrisso for about 6 weeks and finally might be out of the denial stage of diagnosis. Looking to connect with others for support and guidance. Any help is appreciated. Sincerely, Molly
  4. Hi all, I found a lump in my neck 4 wks ago. That led to a chest Xray, CT scan, bronchoscopy, EBUS, MRI and PET scan. Prior to the PET scan, I was told Stage III adenocarcinoma. The MRI came back clean, but the PET scan showed it was also in my shoulder. The shoulder that I have been undergoing physical therapy for. So now I'm stage IV. Next week, I see a radiology oncologist and will start 10 radiation treatments. We are waiting for results of genetic testing to see what else to do. Stage III, I had come to terms with, I would have chemo and feel awful for a few months but I could fight it. I'm in good shape. I walk marathons. But Stage IV seems so much worse - Fatal. I'm terrified to put it bluntly. The change in stage was today so I'm still processing. Thank you in advance. Jenny
  5. Hi my name is Gessica and my dad was recently diagnosed with adenocarcinoma 3b. He has been through quite a bit the last couple of years. Shoulder surgery, open heart surgery, shingles, double knee replacement, and now this. Despite all of that, he's remained as active is possible. My dad is 63 years old, has 6 kids, and has spent his entire adult life making prosthetic limbs primarily for children. He pours himself into his work and family, both from a places pure love. Back in June he had a scan for a reoccurring pneumonia, during which they found a small tumor. They continued to try to treat the pneumonia for months, unsuccessfully. Despite that, they cleared him for the double knee replacement, after which they performed another scan showing the tumor had grown significantly. Not sure why it took so long but he didn't get a biopsy until this past week ( 01/2020). My greatest fear is that the delay in his diagnosis has greatly decreased his options for treatment. If I'm being completely honest, I'm really mad about the delay but I suppose that's normal. I figured all I could do now is try to be as proactive, supportive, and optimistic as possible. I'm new to this so any and all advice is greatly appreciated.
  6. Hello all. This is my first post on the forum that nobody wants to be a part of. I’m just hoping for some insight. My father who is the Center of my universe was diagnosed with adenocarcinoma stage 4 with Mets to lymph node and chest wall extending into 4th and 5th rib. He just completed radiation to the chest wall on New Years Eve. Radiation was a breeze but with the appropriate heavy duty pain meds. On Friday he was admitted with the most severe pain. Excruciating to watch. CT was done which showed disease progression 1/2 cm. That coupled with a Staph infection. Am I getting too worried? Is it too soon for the radiation to have started working? He starts immunotherapy next week. Thoughts?? Thank you
  7. I had a Ct guided lung biopsy last week and have been diagnosed with adenocarcinoma in situ. The surgeon plans to resect the nodule laparoscopically. Have any of you had this procedure? if so, what was the recovery time? What should I expect? Prognosis? At this time, there is no plan for chemo or radiation post procedure. Does that sound like routine protocol? I have been told the likelihood that this would spread or metastasize is minimal but I read that often times adenocarcinoma does spread. Is metastasis dependent upon the Stage of the cancer? Any information on this topic/diagnosis would be helpful. Thank you
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