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Hi there! I'm Heather and I was diagnosed with Stage IV ALK+ lung cancer at 34 (4 whole years ago!) and after disease progression in 2019, I came away from that experience with a fire to advocate for lung cancer research, to change the face of what it looks like to be a lung cancer patient and to generate discussion about a healthy way to bridging the gap between Western medicine and body, mind + soul wellness. Since then, I started a blog Living Lives with Lung Cancer to foster a space for these conversations with my fellow patients. It's been totally life changing for me to take the things I learned (and I was slow on the pickup) and to share them with anyone and everyone who will sit still. I truly believe that as a cancer patient, you should be invited into your own healing and health journey and that you should continue to grow and evolve and live your life to the fullest as your true authentic self. Body, mind and soul! Looking forward to learning and talking to you all!
Hi, My wife was on Brigatinib when it was in the clinical trial stage. The drug was great for her for over 2 years. Then it stopped working and we've been trying a whole bunch of other treatment since 2017. Has anyone had experience of going back to a TKI (e.g. Brigatinib or Alectinib) after a break (e.g. several months to a year) to find that the tumours respond to the drug again? Thanks, Martin