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Found 15 results

  1. Hello fellow survivors and caregivers. I have a difficult decision to make and would appreciate your feedback. Can I avoid more Chemo? Advice appreciated, details below... This summer I was diagnosed with NSCLC lung cancer (Stage 3B), and I've since been through chemo, radiation and successful surgery to remove my upper left lobe. My oncologist initially said he would be okay with just doing observation (CT scans every 3 months) as a next step rather than adjuvant chemo after my surgery. He said the Tumor Board was split on their opinion of doing more chemo vs observation, and I was within "national guidelines" to just observe since I was re-staged to 2A after surgery. I'm 53, never smoked, and am generally fit and healthy. My oncologist then shared my case with Dana-Farber. They recommended adjuvant chemo (2 treatments) with Carboplatin plus a new chemical I did not have before - Taxol - which will have more side effects that what I've experienced (hair loss) and would set me back in my recovery in some ways. I'm not currently employed and aiming to get back in the job market so losing my hair and looking like a cancer patient is not going to help. See below for details on my case: Diagnosis pre-treatment (June 2019): 5.5 cm tumor in my upper left lobe - Adenocarcinoma NSCLC. Growing for at least 3 years prior to my bronchoscopy. Lymph node detected with cancerous cell during bronchoscopy MRIs and PET scans were negative - no spreading outside the lungs Treatment completed (July-August 2019): 3 doses of Chemo total. 2 doses of Cisplatin + Alimta/pemetrexed, and 1 dose of Carboplatin + Alimta/pemetrexed 30 rounds of radiation - 54 Grey Doses total. Aimed at tumor and lymph nodes. Surgery completed Oct 7th: Upper left lobe resection along with removal of all local lymph nodes. VATS technique. Went well. Results: Tumor margins were clear. All lymph nodes negative. Tumor shrank from 5.5 cm to 4.2cm due to treatment. Genetic testing: EGFR Exon 20 mutation found, no others present. Aftercare - Dec 2019: Oncologist says it's "my option" if I want to get more chemo "just in case" it helps a prevent recurrence. However, he can offer NO data on if more chemo will help or not. It's a leap of faith. The reason for switching to Taxol is my tumor only shrank from 5.5 cm to 4.2 cm after chemo/radiation. Also, the tumor was more than 10% alive upon resection. I already have side effects of tinnitus from the Cisplatin (which is why they switched me to Carboplatin for the 3rd cycle), plus neuropathy in my feet. I really don't want to suffer hair loss (which Taxol causes) as I'm looking for a job and don't want to look like a cancer patient while interviewing. I believe 2 treatments of Taxol+Carboplatin would set me back 4-5 months before I get back to "normal". Plus it could increase my existing neuropathy. TLDR: I want to get back to my normal life and avoid additional chemo (especially Taxol) if possible. I also don't want to relapse, but my oncologist says there is no data on the effectiveness of doing more chemo. It's my option. I need to decide soon - it's about 2 months after surgery. What would you do?
  2. As I shared with the group a short time back, after a year of NED (no evidence of disease), I was diagnosed with a local, limited recurrence of Small Cell Lung Cancer (I.e in the same location as original disease with no regional or distant Mets) I received 4 , 3 day cycles of concurrent Chemo (Carboplatin & Etoposide) and Immune Therapy (Tecentriq - day 1 of each cycle only) with three weeks between each cycle. Findings from post treatment PETCT on May 1, found complete regression/response to treatment, no new or old nodules and no remaining areas of suspect FDG uptake. One of the cleanest scans I’ve ever had. Will see Medical and Radiation Oncologists next week to review results, any next steps (preventative) and begin maintenance immunotherapy on Tecentriq. Will continue to keep you posted. - Looking forward to my “scanxiety” free weekend! Happy to provide any further details that may be helpful to anyone.
  3. Good morning - I just posted to the new member site My name is jenn. My mom has newly diagnosed iiia lung ca. No symptoms. Otherwise healthyexcept some hypertension. She starts cisplatin / gemzar today. 1st cycle / 1st treatment with hopes of shrinking for surgery. About me: 35 y/o daughter ... currently 6 months pregnant, working full time, raising a toddler with my hubby an hour away from her 😥 I read forum about joining her for her long treatments (no one wants prego at the infusion center), my OB really doesn't want me doing 1hr each way. I'm just so torn. How can I help her and take care of myself? She has my dad and friends but I want to help but feel so limited - like I'm choosing my baby over her. If she does have surgery (praying!) ... it will he 2hours away so I'm not sure I can go with being so close to delivery. I dont want to stress her out but she us so stuck in her head right now sometines i think her (and my dad) forge rim pregnant. I understand they hhcaveca big problem on tgeit hands but u have a big worry too! Any suggestions to help copeor get to assist her/ him
  4. Anyone have experience dealing with stage 4 non small cell lung cancer, KRAS mutation and low PDL-1 expressor? My husband had surgery just over a year ago where a tumour was removed in lower and middle right lung. He now has 10+ micro nodules in his left lung. I realize this is a long shot. I’m new to this forum. thanks.
  5. Keytruda Vs. Chemo & Radiation... I can't decide! This is for my mom - age 74 with numerous health issues just diagnosed in December with Primary Lung Adenocarcinoma, though the stage is not confirmed - they're guessing stage 4. She has a general oncologist locally, and a lung oncologist's second opinion with the best credentials at MD Anderson, but frankly, we're unhappy with both oncologists, but it's a toss up between which treatment regimen is best to try at least first - these are the facts: Her current health issues: Mild-moderate COPD with a bit of wheezing (though she doesn't feel like it bothers her at all - it's just her throat making a weird noise when she talks) once a month or so for a few days smokes 8 cigarettes a day still (had one right after returning home after her lung biopsy) facet arthritis in neck and vertebrae esp. lower back, stenosis, dextroscoliosis fell down 1/29/19 on right hip which causes her immense pain daily vascular degeneration small vessel disease causing confusion and early signs of dementia - brother died of alzheimer's - massive anxiety and depression but refuses medication/anti-depressants degenerative disc disease varicose veins in legs, right carotid artery blockage around 70% (not enough for surgery yet given all of her other issues, but she did have a mini-stroke in 2015) Slight colonic inflammation (as viewed on PET in 12/2018 - Gastro doc says doubtful it's cancer) Aortic valve leak from previous radiation 21 years ago causing loud heart murmur Prior breast cancer from 21 years ago (both mother and sister passed from same cancer) - stage 3B or so - told her 1-2 years to live, had full mastectomy of left breast & FAC Chemo & Radiation (she had 0 symptoms except hair loss, and felt almost no poisoning or weakness at all, amazingly at age 53) ...alive 21 years later - she had a strong will to live as I was 12 years old, and father died when I was 8 - only child. General local oncologist: (same one from 21 years ago) 12/2018 - found 2.8 cm tumor in left lobe on ER visit for chest pain (in 2015, it was 1.1 cm and too small to worry about at that point) along with a few very small nodules on the other lobe and a mediastinal mass, oncologists scheduled numerous diagnostic work-ups, thinks it 'may' be in the rib bone and chest lymph nodes but no brain or other organ mets, ordered a lung biopsy, which was inconclusive and did not retrieve any malignant cells from a needle biopsy through the back (radiologist #1) **I took her to a musculoskeletal oncologist to rule out bone mets, and he said he thinks it's just arthritic inflammation, not cancer - so he wouldn't stage it as 4 for bone. 2) 1/2019 - referred her to a thoracic surgeon for a thoracoscopy to get a biopsy, however after the pre-op cardiologist found the aortic valve leak which could lead to a heart attack under general anesthesia... 3) 2/2019 - we decided to pursue another needle biopsy requesting it from the front, and that led to a successful diagnosis almost 2 months later (radiologist #2). So he delayed everything by a month asking for a procedure, which was unnecessary due to the fault of the previous radiologist who told him he was confident another needle biopsy would not work. 4) 3/2019 - Mutation panel came back - 100% positive for PD-L1 on all tumor cells, and negative for all other mutations = strong contender for Keytruda, so his recommendation is to treat solely with Keytruda as he believes chemo at her age with her conditions would be more detrimental to her health. My concern is with all of her other issues, the COPD and arthritis especially, that if the immune system attacks healthy tissue, pneumonitis, colitis, or even lung collapse could happen, and we'd have to be watching her like a hawk for so many potentially fatal side effects, yet the nurse says most of her patients have no issues with keytruda other than minor flu-like symptoms. Medicare and supplemental BCBS covers all of it, and she is ready to go with it any day now once we decide. MD Anderson Lung Oncologist with amazing background credentials: 3/2019 - He wants to order another diagnostic procedure, a bronchoscopy, to insure the lymph nodes are malignant in order to better stage the cancer. This will delay treatment further, could have issues with the anesthesia propofol causing respiratory depression with her COPD, and my question is what is the point at this stage -- there is a mass there in the mediastinum - it's probably malignant being so close to the lung and the heart - what else would it be? It seems like a waste to do this procedure, when the targeted therapy with 100% mutation could treat the entire system. - Depending on if it's malignant, he says chemo and radiation - radiation only if a radiation therapist says she is eligible given her chest being scarred from 21 years prior. If not malignant, just chemo for the nodules in the lungs.... So... chemo is toxic, radiation would be damaging to her already damaged organs... and I don't think chemo on its own has a higher chance of survival with lung cancer vs. targeted therapy with that percentage mutation. But then again 21 years ago before all of her other issues popped up, she did amazing with the most aggressive chemo there is I'm told - FAC But he is the best oncologist credential-wise and is at MD Anderson, which is supposed to be the best. I think maybe he steers away from immunotherapy because of the unknown risk of damaging and lasting side effects to the body vs. chemo, once you're done, you're done... but with her age and all her issues, it's just so difficult to decide on what to pick. Neither of them mentioned doing a combo of immuno/chemo, so it's either one or the other at this point in terms of what they'll order.
  6. Hi guys, My dad was diagnosed with NSCLC(Squamous cell) on October.In my state where we live (Kosovo), is really difficult to find a PET scan machine.So in this way, we didn't want to lose time.Doctors said that our best option is to do an MRI to check if there the cancer has spread to other parts.Thank God, the result showed that the cancer is only in left lung and the size of tumor is 33mm.The tumor is near big blood vessels and is difficult to do a pneumonectomy.In this case the doctor suggested my father to start a neoadjuvant chemotherapy with 3 cycle (Carboplatin + Paclitaxel) and after that we have to do a PET scan outside Kosovo to check if the tumor to check how many lymph nodes are affected and how much the tumor shrinked.Now he is in second week of third cycle of chemotherapy. During the chemotherapy, he gained 10 pounds.I know this might sound weired, but yes, he gained 10 ! During chemotherapy, he didn't feel any of chemotherapy effects, expect hair loss.Even his half lung is blocked, he never had problems with breath.He told me that he can breath better now.We have run a lot of times on mountain and the didn't have any problem. His blood test are just amazing ! He even has better test blood than me ! His heart result are also perfect.He Now I have a questions for you. What is the impact of this chemotherapy combination on mediastinal lymph nodes ? After all these good signs, is his body trying to "tell" us, that the chemotherapy is helping him ? Best regards from me !
  7. Here is the weekly clip report: OncLive “Dr. Larner on Integrating Radiation Therapy With Immune Checkpoint Blockade in NSCLC” https://www.onclive.com/onclive-tv/dr-larner-on-integrating-radiation-therapy-with-immune-checkpoint-blockade-in-nsclc Diagnostic Imaging “Low Dose CT Lung Cancer Screening Program Findings Similar to National Trial” http://www.diagnosticimaging.com/di-executive/low-dose-ct-lung-cancer-screening-program-findings-similar-national-trial Targeted Oncology “Immunotherapy and Chemotherapy Combos Are the New Standard of Care for NSCLC, Says Konduri” https://www.targetedonc.com/news/immunotherapychemotherapy-combos-are-the-new-standard-of-care-for-nsclc-says-konduri OncLive “Dr. Jotte on the Optimal Frequency of Lung Cancer Screening” https://www.onclive.com/onclive-tv/dr-jotte-on-the-optimal-frequency-of-lung-cancer-screening Targeted Oncology “Immunotherapy Combinations Are Changing the Frontline Treatment of Patients With NSCLC” https://www.targetedonc.com/publications/targeted-therapy-news/2018/August-2018/immunotherapy-combinations-are-changing-the-frontline-treatment-of-patients-with-nsclc Cancer Therapy Advisor “Heterogeneity of Drug Resistance in EGFR-Mutant Non-Small Cell Lung Cancer” https://www.cancertherapyadvisor.com/lung-cancer/lung-cancer-nsclc-heterogeneity-drug-resistance-egfr/article/786470/ Speciality Pharmacy Times First Checkpoint Inhibitor for Previously Treated Patients with SCLC Approved by FDA https://www.specialtypharmacytimes.com/news/first-checkpoint-inhibitor-for-previously-treated-patients-with-sclc-approved-by-fda
  8. Hi all, I've been a member for a few months but haven't done a "full" post about my mom as I felt I would jinx the possibility of good news (desperate times call for desperate measures!) I want to write this post to share my mom's journey and possibly relieve someone else's anxiety, while gaining hope and info from all of you. So, here's her story: Overall health: 63 years old, obese, diabetes controlled with diet, sleep apnea, rheumatoid arthritis November 2015 - initial lung cancer diagnosis - NSCLC, stage IIIA. She had shortness of breath which lead to the discovery of a few small nodules. January 2016 - upper right lobe removal - we had to wait so long because my mom has Rheumatoid Arthritis and the meds she was taking at the time had to be out of her system. Surgeon found a few lymph nodes that were involved as well, unable to remove it all. She recovered from surgery quite well. She continues to have pain at the incision site, which we are told is normal. Overall breathing was better than it had been in years (she had a lot of emphysema in the lobe that was removed). February 2016 - 6 weeks of weekly chemo (can't remember which kind) and daily radiation - lost hair, pretty bad acid reflux which became controlled with meds. Some fatigue. Scans & more scans - she received the 1 year "all clear" in April 2017. We thought everything was going well. My mom's pulmonary specialist left, so she met with a newly established specialist. He was looking over her old scans because she was having trouble breathing. He suggested he scope her bronchi and he saw a concerning area he wanted to biopsy. Long story short, she has cancer on the back of her trachea that is hard to see in chest x-rays and CT's. We are thankful someone actually saw it, but frustrated it wasn't found sooner. They are calling it a recurrence, but several doctors aren't convinced it wasn't there the whole time and just did not respond to treatment. Possibility of repeat radiation??? This was an important question I wanted answered because I had seen differing answers during my research. About half of the new mass on her trachea is in the original radiation area. The radiologist says that he can do radiation again in the same area since enough of it is out of the original radiation zone but the likelihood of having severe side effects is very high. I asked about radiation seeds and internal vs. external beam therapy - he said they can all have the same result of increased side effects. He is one who believes the mass was there the whole time and did not respond to treatment in the first place. So he suggested radiation as a last resort if other treatments did not work. July 2017 - trachea stent put in to open airway (mass had airway closed 70%). Surgery was a breeze, she can breathe well. Mom was in and out of hospital after surgery with severe mucus build up. Still has mucus build up. July 2017 - Treatment plan - 8 rounds of Keytruda (she has the PD-L1 mutation), the first 4 with chemo - alimta carboplatin, every 3 weeks. New treatment info: Adding chemo to the Keytruda at the beginning of treatment is having better results than Keytruda alone. This information was released in June 2017 at a national cancer conference. It supposedly brings the effectiveness from 30-50% up to a flat 55%. We will take every small piece of help we can get!!! CT scan will be after the first 4 treatments to see how things are going. Keytruda and Rheumatoid Arthritis: her oncologist is unsure how her RA will react. Her RA has never been under control, so she deals with a lot of pain anyway. They are assuming she will have major flair ups. We will deal with those when they happen. Large doses of steroids and all RA meds can reduce the effectiveness of Keytruda, so we will have to get creative. July and August 2017- My mom is on her 2nd treatment. The biggest side effect is total exhaustion. However, she began her 1st treatment 1 day after spending nearly 3 weeks straight in the hospital. Her oncologist feels that the extreme fatigue is more likely due to recovering from her stent surgery and all of the hospital visits. She still has a lot of mucus and her pulmonary specialist is keeping it "sucked out". She coughs a lot and does not have a voice. We will learn more as we go but so far she's surviving and we feel things will get better with her breathing and fatigue. August 4, 2017 (a day we can (mostly) breathe) - PET scan results show that cancer has not spread (cue happy dance!!). So what now??? We live day by day. I take part in these forums to find support and to give support. After finally receiving the first bit of good news in several months (the cancer had not spread), yesterday was the first day I didn't break down bawling. We are finding our new "normal". She is being silly and laughing more. And in October, we are going to see Jimmy Buffett for the millionth time! I plan to update this post periodically with information that I think is important to share for those looking for information and when I need some advice or a bit of support. I appreciate each and every one of you for your kind words to all that reach out and for fighting to live so we all can have a little more hope at the end of the day.
  9. Hello, this is my first post. My dad was diagnosed with Stage 4 lung cancer, non-small cell, adenocarcinoma the end of July. They found 10-13 lesions in the brain, one area on the adrenal gland , one on the spine , and possibly a small area on the liver. My dad had 2 weeks of radiation on the brain immediately. Before treatment, he got very unsteady and had a drop foot. After radiation, he got most of his coordination back. He had palliative radiation to the place on his spine for pain. Last Monday, my dad's oncologist put my dad on 2 chemo drugs (not sure the names at this time) and ketruda (immunotherapy drug). His oncologist said this was recently approved by the FDA to give both at the same time? I really haven't seen any info about this. I am just wondering if this is a new thing, or are they throwing all of this at my dad at once thinking he don't have much time and this is his best option? Thanks.
  10. I've endured a total of 18 Taxol Carboplatin infusions in my treatment history. I'm told that is unusual for a change in recipe is often called for when turmors reoccur or return. The first 6 really don't count. They were understrength adjunct treatments administered once-per-week while I had conventional radiation. The last 12 were a nightmare. A recent conversation with one about to undergo chemo for the first time primed a recollection. His doctor asked him if he wanted a port. Mine did also and I declined. That was a mistake. I got to thinking about other lessons learned that might be helpful. Here they are in no particular order. 'Roid Rage - my infusion cycle started with steroids to block side effects during infusion. A total of 6 steroid pills were required every 6 hours starting 12 hours before each infusion session. Then the first bag of stuff infused was steroids. Two side effects resulted: enormous appetite and sleep deprivation. Plan on staying awake the evening after infusion and eating everything in the house. IV Attacks - if offered a port, take one. For me, the absolute worst part of infusion day was finding a vein. I used up nurses like interest accumulates on the national debt. The clinic had a three-try-change-nurse policy. Once, the CT scan technician had to be called upon because I used up every nurse in the place. Charting Side Effects - It took me a while to realize that life goes on after infusion. It would be nice to know when one might venture out to eat without experiencing violent nausea or lower GI distress, always embarrassing at fine eating establishments! Use your smart phone calendar or paper "cancer calendar" to record the day and time of onset and wane of each side effect. Mine were exactly on schedule. Nausea symptoms started the day following infusion but lasted only 24 hours. Joint pain started day 2 after infusion and lasted about a week but the first 3 days were almost unbearable. If I took the anti-nausea medication an hour or so before onset, my symptoms were reduced. The same applied to prescribed pain medication. My doc told me to start taking it 3 hours before symptoms started and it made living with joint pain easier. Managing Side Effects - besides knowing when the start and end time, here are techniques that worked for me. My oncologist prescribed Lidocaine patches and my wife wrapped them around my most painful joints using ace bandages to gain relief to allow me to sleep. Sometimes she's use flexible freeze packs and wrap them to the bottom of my feet to numb them against "taxol toes", again to facilitate sleep. My last infusion cycle was combined with the oral chemotherapy drug Tarcevia. It added diarrhea that laughed at Imodium. A Tarcevia survivor told me to start each day with a bowl of plain steamed rice for breakfast. It worked! Low Counts - Conventional chemo attacks fast growing cells and these include cancer cells but also red and white blood cells. You'll likely receive a blood test 2 days after infusion and if counts are low, will receive injections to boost production of red and white cells. These drugs were Procrit and Neulasta. Unfortunately, both cause joint and bone pain. As a lung cancer patient, you'll be susceptible to chest colds that can quickly become dangerous because of your low white count. Try and stay home during the second week after infusion to limit your exposure and avoid school aged children. My oncologist had me keep a supply of Levaquin on hand and I was to start the medication at the first sign of chest cold symptoms. Infusion Day - my session averaged 6 hours. I devoured the kitchen at breakfast because of hunger caused by my 12-hour 'roid rage but bring something to eat during your infusion. You will also find yourself getting up frequently and dragging the infusion pump to the bathroom. Dress warm, even in the summer. My wife would stay with me during the IV insertion battle, then I'd read or play solitaire on my smartphone. On the way home, we'd stop at Denny's and I'd eat several of their Grand Slam offerings.
  11. Hi Everyone! I had a pretty treatment specific question. My Mom's first line of treatment was Carboplatin and Alimta which she handled VERY well and had a great response to as a chemotherapy drug. As her cancer has recently returned, she's just started her second line treatment which is Carboplatin/Abraxane/Avastin. She only received the Carboplatin and Abraxane during her treatment yesterday as they found some blood in her urine so they didn't want to deliver the Avastin without first culturing that to see what was going on. Does anyone have an experience with this course of treatment (specifically this combination of drugs in 1st and 2nd line treatments)? I'm just curious what she can expect from the Carboplatin/Abraxane combo versus what she experienced with the Carboplatin and Alimta. I know each case and each person is different in terms of how they respond to chemo and what their side effects are (even on the same drug course) and I'm familiar with the side effects that are listed in general from each of these drugs just looking to see if someone here had different experiences with both forms of treatment. I know its pretty specific so I'm not sure that this makes sense, but trying to get a gauge for her from others who have experienced them. Thanks in advance, Maigan
  12. My spouse was diagnosed almost exactly a month ago. Went in for ER visit believing it was a kidney stone causing pain in pelvic area. Through extensive tests and second opinions, it came back as stage 4 non small cell lung cancer (2.6 cm mass) with bone mets to the right pelvic bone (2.7 cm mass). shes currently finishing round 1 of chemo- alimta and carboplatin. The next round will add avastin. Four rounds total followed by radiation. As hopeful as I try to be, she is very doom and gloom. The dr talked at the last visit of when she is remission, and I take that as a sign that the team of Drs wouldn't talk of remission if they didn't believe it was possible. Biopsy of pelvic bone done at ER visit came back as not being The mutation suitable for tarceva, and confirming adenocarcinoma. He talked that if after remission she would relapse the next step would be opdivo. At the initial appointment, she was told that without treatment she would have six months to live. I guess what I am seeking is advice from other spouses/caregivers on how to keep it all together everyday. And if anybody has any survivor stories that they are willing to share- to possibly help her keep hope that there are tomorrows.
  13. Chances are you pay attention to new treatment developments. I was aimlessly scrolling through a social media app when I happened on a dramatic interview. Everything was staged to look legit. The interviewer looked like a TV reporter, the background scene looked like a doctor’s office, and the set up question “doctor, let me talk about cancer a little bit” got my attention. The camera changes views to the doctor as the reporter says, “what are some of the things you’ve seen in terms of your patients?” Then we see the doctor. He looks like a doctor, well dressed with a confident assuring voice. He changes the subject saying “a better thing to talk about“ and his name and titles flash and disappear on the screen: Peter Glidden, BS, ND (note not MD). He cited an unnamed study published in the Journal of Clinical Oncology in 1994, a 12-year program that looked at adults who had developed cancer, further clarifying adult cancer as “the main type of cancer we get here in the United States.” He described the study as a “meta analysis of people all around the world for 12 years who were treated with chemo…and the result?” “Ninety-seven percent of the time chemotherapy does not work.” Dramatically and shaking his head for emphasis, he repeats the same statement, then he asks “so why is it still used?” “Money”, he answers. “Chemotherapeutic drugs are the only classification of drugs that the prescribing doctor gets a direct cut of…the only reason chemotherapy is used is because doctors make money from it…period…it doesn’t work…97-percent of the time.” Continuing, he says: “We have lost the war on cancer in the United States…why…when you try to bring a reductionistic phenomena like drugs and surgery to bear on a holistic phenomena, you will completely miss the boat each and every time.” Further he emphatically states, “if every girl in this country took 200-micrograms of Selenium, in one generation, we’d eliminate breast cancer by 82%; now why aren’t we doing that?” So, let’s take a deep dive into Peter Glidden’s claims and supporting data. First, consider his probability predictions: 97-percent of the time chemo doesn’t work and 200-micrograms of Selenium eliminates breast cancer by 82% in one generation. These predictions sound authentic, like there was a test to determine outcomes. But, no scientist, doctor, or engineer would ever describe a statistically based probability outcome using just a naked percentage. There is always uncertainty and professionals bound uncertainty with a confidence level. An engineer might say that concrete will achieve a 6,000 psi end strength but will disclose the testing sample size, mean, standard deviation and confidence level that justify the end strength statement. Test results never exactly replicate. The end strength will vary between some acceptable range. But Glidden’s claim is precisely 97-percent. It is unsupported. Moreover, it is debunked in the literature. Here is a good on-line summary about the unsupported claim . But, to even make a 97-percent statement, one would need to know, with certainty, the cause of death of each of the thousands of people who had chemotherapy. Were autopsies performed? Might some have died of natural causes, traffic accidents or other illnesses? A statistically significant record of “meta data of people all around the world treated for 12 years” does not exist. Do they have data in the Fiji Islands, Kenya, Somalia, Bangladesh or North Korea? How about his 200-microgram Selenium cure for breast cancer? He says it would eliminate breast cancer by 82% in one generation. I’m not even sure I know what eliminate by 82-percent means. Think about how imprecise this claim is. How long is one generation? How did you determine it was 82%? How sure are you it is 82%? I could drive a main battle tank through the gates of this claim’s imprecision! Now to his claim that cancer is not a reductionistic phenomena, suggesting that drugs or surgery misses the boat “each and every time.” I’m one of those “each and every time” and my survival from drugs and surgery proves him wrong. Does naturopathic treatment actually cure cancer? I don’t know but neither does Gladden. Here is some interesting reading about Naturopathic Doctors. Peter Glidden’s video extolling a simple nutritional supplement as a cancer cure is compelling. He is dramatic, confident and to a diagnosed lung cancer patient facing an arduous regime of chemotherapy, persuasive. Why bother with the chemotherapy if I can take Selenium and cure my cancer? If you are reading this, you or someone you care about has lung cancer. Time is of the essence. You have but three choices: do nothing, conventional medicine, and holistic medicine or some derivative of the same. Do nothing is the least expensive alternative. You pay nothing and might live. Miracles happen. Conventional medicine and holistic medicine will cost your money. How do I make the choice? I put my money on science-based conventional medicine treatment because treatment outcomes are repeatable. Mark Twain said it best: “It ain’t what you don’t know that gets you into trouble. It’s what you know for sure that just ain’t so.” Gladden is trying really hard to convince us he’s 97-percent sure chemo doesn’t work. It just ain’t so. Stay the course.
  14. I'm a three and a half year survivor of Stage 2 Adenocarcinoma. I wanted to pay forward some of the great support and advice I received from others when I was first diagnosed and wrote a book about getting diagnosed, having my left upper lung removed, going through chemotherapy, losing my hair, and all the various points along the way. I included some terminology since I had no idea how to speak cancer as well as some resources - most of which I learned about after I was done and was researching for the book. Kirkus did a review of the book, (The Cancer Card, Dealing with a Diagnosis) and says: 'Reflective, upbeat, and hopeful; offers honest insight into the real trials and tribulations of a cancer patient as well as valuable advice for those facing treatment.' Here's a link if you have an interest: https://www.amazon.com/Cancer-Card-Dealing-Diagnosis-ebook/dp/B01LX8RIK1/ref=sr_1_1?ie=UTF8&qid=1476363189&sr=8-1&keywords=the+cancer+card+karen+van+de+water Please let me know if I can be of any help at all to anyone going through - it's a lot. I want to help if I can. All my best - Karen
  15. Hello everyone! The Pan Foundation is accepting applications for a Patient Assistance Program for people who are experiencing chemotherapy-induced side effects. For more information, or to apply, click this link http://www.panfoundation.org/index.php/en/patients/assistance-programs/chemotherapy-induced-nausea-and-vomiting Lauren H. LUNGevity Foundation https://www.lungevity.org/support-survivorship
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