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Found 5 results

  1. I was diagnosed with Stage IV Lung Cancer on September 19, 2016. The doctor told us that it was inoperable and radiation was not an option. It felt as though I’d been punched in the stomach. I immediately began thinking of my children and my wife, Lisa, and that my time here on Earth was very limited. I had no words that day, only utter despair. As the initial shock wore off, and the option of getting selected for a trial medication was offered, I realized that I may have a chance at fighting cancer and not letting cancer "fight" me. I’m ALK positive, so I was able to start taking a targeted therapy drug. It was shortly after the diagnosis and when I had no choice but to accept this as my fate, that I made the decision to fight this disease by becoming proactive in my care. I have always been a man of strong faith, and God has not failed me yet. Sometimes it takes something so big to appreciate waking up each day to your family and the people you love! I pray to God every night to give me another day. I was looking for an organization that focused on spreading awareness about lung cancer and funding research. I also liked that LUNGevity provided so many different types of support. We created a team for Breathe Deep Boca Raton, a 5K walk and run that raised lung cancer awareness and funds for LUNGevity for research and support programs. My wife and I are very active in our community, so we started reaching out to people to encourage them to come out and support the event. We advertised in local restaurants and reached out to local schools and youth recreation programs, and got some things going. My kids and I used social media to spread the word and I followed up with phone calls to remind people to show up. A friend of mine is in a band, so we asked them to come out and play live music at the event. Parts of the event are more somber, when we’re honoring the people we’ve lost to this disease, but other parts are uplifting and hopeful when we talk about research and the progress being made. I think the impact in the community is two-fold. First, it helps to raise awareness about lung cancer. I felt so strongly about making sure people realize that lung cancer isn’t only for smoker. And it also brings awareness about LUNGevity and that this a specific organization to help people impacted by lung cancer. I’m grateful for the research and medication and for the support of my family, friends, and the community. I hope the fundraising goes toward research to help find more targeted therapies. We need to fund research for treatment options that increase survival rates and help contain and manage the disease. I’m ALK positive, and there are treatments for that specific mutation, but I’d like them to find treatments for other mutations as well. I still look at the glass half full, because today, I am still here. My loving wife and children stand with me every day in this long, tedious, sometimes unbearable cancer journey. Through my positive energy and prayers we stay strong, and in September 2017, we celebrated my one-year cancerversary!
  2. Here is the weekly clip report: PR Newswire “LUNGevity Foundation Kicks Off New Public Service Campaign to Alter View of Lung Cancer Diagnosis” https://www.prnewswire.com/news-releases/lungevity-foundation-kicks-off-new-public-service-campaign-to-alter-view-of-lung-cancer-diagnosis-300583589.html Baylor College of Medicine “Immunotherapy Treatment Gives Lung Cancer Patient Second Chance” https://blogs.bcm.edu/2018/01/22/immunotherapy-treatment-gives-lung-cancer-patient-second-chance/ Variety “Allison Shearmur, ‘Rogue One,’ “Hunger Games’ Producer, Dies at 54” http://variety.com/2018/film/news/allison-shearmur-dead-dies-star-wars-hunger-games-1202670745/ South Fine Arts Blog “LUNGEVITY Arts Coffee House” http://southfinearts.blogspot.com/ EurekAlert! “Leading Medical Organizations Update Lung Cancer Guideline” https://eurekalert.org/pub_releases/2018-01/iaft-lmo012318.php PR Newswire “Biomarck Announces the Start of a Phase 2 Clinical Trial of BIO-11006 for Non-Small Cell Lung Cancer (NSCLC)” https://www.prnewswire.com/news-releases/biomarck-announces-the-start-of-a-phase-2-clinical-trial-of-bio-11006-for-non-small-cell-lung-cancer-nsclc-300586095.html Cleveland Clinic “Immunotherapy Triggers New Lease on Life for Lung Cancer Patients” https://newsroom.clevelandclinic.org/2018/01/22/immunotherapy-triggers-new-lease-on-life-for-lung-cancer-patient/ OncLive “Dr. Garon on Sequencing of Agents for Advanced Lung Cancer” http://www.onclive.com/onclive-tv/dr-garon-on-sequencing-of-agents-for-advanced-lung-cancer EurekAlert! “International Organizations Partner to Spread Awareness of Revised Lung Cancer Staging Criteria” https://www.eurekalert.org/pub_releases/2018-01/iaft-iop012318.php University of Chicago Medicine “Targeted Treatments Halt Spread of Advanced Non-Small Cell Lung Cancer” https://www.uchicagomedicine.org/cancer-articles/targeted-treatments-halt-spread-of-advanced-non-small-cell-lung-cancer HealthDay “New Treatments Tackling Tough Lung Cancer” https://consumer.healthday.com/cancer-information-5/lung-cancer-news-100/new-treatments-tackling-tough-lung-cancer-730442.html Cancer Therapy Advisor “Lung Cancer: FDA Collaboration Highlights Real-World Immunotherapy Treatment Patterns” https://www.cancertherapyadvisor.com/lung-cancer/lung-cancer-fda-collaboration-immunotherapy-treatment-patterns/article/739081/ The ASCO Post “Ceritinib in ALK-Positive Metastatic Non-Small Cell Lung Cancer” http://www.ascopost.com/issues/january-25-2018/ceritinib-in-alk-positive-metastatic-non-small-cell-lung-cancer/
  3. A clinical trial is a type of research study that tests how well medical approaches—screening, prevention, diagnosis, or treatment—work in people. Clinical trials can provide access to new approaches to lung cancer patients. However, most lung cancer patients do not participate in clinical trials. Please complete this survey about clinical trials by answering from your personal experience. The survey is 100% anonymous. THANK YOU for your time! Survey for Survivors: https://www.surveymonkey.com/r/Survivor_Clinical_Trial_2017 Survey for Caregivers: https://www.surveymonkey.com/r/Caregiver_Clinical_Trial_2017
  4. For the first time, cancer researchers are offering patients with early stage lung cancer either surgery or stereotactic ablative radiotherapy (SABR) and comparing the results in a phase III clinical study called the Stablemates Trial. SABR is a specialized form of radiation that has evolved in recent years to treat patients with just a few sessions – in this case just three treatments spread over eight days or less – using advanced imaging to deliver a higher dose. An early study has shown that SABR could be as effective as surgery among patients who did not qualify for surgery. The primary objective of this study is to test the hypothesis that the 3-year overall survival in high risk operable patients with Stage I NSCLC is greater in patient who undergo SAbR as compared to standard sublobar resection (SR). The new study now offers the same treatment to patients who are eligible for surgery but are at high risk for complications. To learn more and see a list of participating institutions, visit the trial web site.
  5. “LUNGevity’s new Clinical Trial Finder allows people to be proactive in their diagnoses, providing access to critical information that can change outcomes for patients and allow those patients to participate in the research process,” noted Charlie Rudin, LUNGevity Scientific Advisory Board Chair and Professor and Chief of Thoracic Oncology Service at Memorial Sloan Kettering Cancer Center. “Clinical trials often offer patients access to the most advanced treatments that could help extend their lives." http://www.lungevity.org/about-lung-cancer/lung-cancer-101/treatment-options/clinical-trial-finder
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