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Found 6 results

  1. Hello to everyone and Happy New Year or as I like to say..Happy Day 2020,we are in the roaring 20's now so lets! I have been hearing a lot about the "itchies" caused by Durva, can't say this works for Durva itchies but it has worked for very dry skin that I had in the past, so take 1/2 cup of old fashioned oat meal [ grind the oatmeal] 1 cup of corn starch, 1/2 cup of baking soda, 2 cups non fat milk mix it all together, and use 1/4 cup in a bath, and enjoy, I certainly hope it helps you! As you know I can not tolerate the Durva, and I have many health issues that were caused by it. I am hanging in there. Not having any treatment while there is still a trace [ so they say } of cancer, is very unsettling to say the least. I have 2 daughter in laws that don't even bother to say, " how are you?" and one that says " you are a rock!" she graduates to be a nurse in May. I am not a rock, I am a human being with an emotional side that would love to have some support from family members. I won't say it because then it would be fake, so who needs that? Oh well, it is what it is. Does it bother me, Yes, for sure. Please help me to feel more positive while moving forward and please pray that the cancer hasn't spread that is the most I can hope for, because there are no alternative treatments for Durva, PET scan in March, that's it. Well enjoy today, and I hope that my remedy for itchy skin will help someone today! Love ya's.
  2. Wow! I asked my husband, why does life have to be so hard? He doesn't know. So I ask myself, and it all comes down to the people that are with or not with you in critical moments in life. The journey with cancer has been a complete nightmare unfortunately. I did get a new oncologist at NYU Langone, and she is the difference between night and day. I may not be able to get any help, but I sure will be a lot happier that a "Dr." I had at one time is no longer throwing me in for more durvalumab, while I can not tolerate the side effects. I wish I could, 5 infusion with immunotherapy and it was hell. Not only do I have a lot dealing with the cancer health issues, my family blames me for everything wrong and doesn't do something that will comfort me during this difficult time. Maybe they don't know how. so what about asking? I do the shoe on the other foot test, always been here for anyone in my family for their needs. I shake my head. Thanks for listening and being a support for me at this time, I truly appreciate it and need it so I will carry on. Kate7617
  3. Hoping that everyone is hanging in there! Went to follow up today new Doc, After PET scan on Friday, So good news the "nodule" or perhaps scar tissue or perhaps a lump that has a trace of cancer, perhaps. Hmm Back to square one durva or be checked every 3 months with another PET scan. No evidence of cancer in lymph nodes, Help I am beginning to have not such good feelings towards Doctors. This road is rough and it doesn't get better it seems. I am all ears, thanks!
  4. After CRT with good results, Doc says durvalumab, ok, 5 treatments, very bad side effects. I had to stop treatments. 5 weeks now without treatment, CT scheduled 10/31 follow up with Doc on 11/4. I have PDL 1 negative, so I have a slight chance it may work. 12% chance. Has anyone else had similar problems and done another form of treatment?
  5. Hi Everyone, Got a new Dr and went yesterday, much more of an understanding of what is going on with my cancer treatment and durvalumab as far as moving forward. Dr asked me, " are you the type that wants and explanation of what is going on?" sure, I said, I want to be my own advocate.so then I was told ( which I wasn't told from other Dr) my PDL 1 is negative, and that means very rarely will Durvalumab have any significant cure for NSCC, so Dr said he will, "dismiss" that and want to continue with treatments. Hmm? Sounds like they need a certain amount in the "study" that have PDL 1 negative to see what happens, so with that, I am not a mouse that they are experimenting with. So with that knowledge I said no to Durval, And for the main reason the very harsh and adverse effects it has caused on my health, to me quality is certainly better than quanity. Going for another CT 10/31 because there are these teeny tiny nodules, so small the radiologist says, "inconclusive" needless to say being told my CT scan was "good" on 9/17 and then this, well which is it? I will know more on the 4th of November, so glad I feel 85 % better now, the swelling has gone down in my legs, face, and arms. And I can actually breathe while I walk again. Pullmanry Dr says these teeny tiny nods usually fall off in 6 months. I am carrying on now, I had my med records sent to MD ANDERSON, waiting to see if they can offer me a hope that I can cling too. Thanks to all of you! Wishing all a beautiful day!
  6. RonH

    Intro

    Joined this earlier this year and am just now trying to figure out how to post. I was diagnosed with Stage 3A NSCLC in June of 2018. Last year I completed 7 weeks of Concurrent Chemo-Radiation, then 5 weeks of Consolidation Chemotherapy and as of this week (July 29th, 2019) have now received 17 of 24 immunotherapy infusions of Durvalumab. I have my next CT scan and MRI in a few weeks and am hoping for the best.
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