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  1. Sleep! I am fortunate, very fortunate, to be a long tenured lung cancer survivor. There is however, a nightly battle, a cyclic war, a nocturnal struggle that holds vast consequences - falling asleep. As a young man I could sleep anywhere. As a soldier, I learned to sleep whenever possible and got quite good at it. As a lung cancer survivor, sleep deserted me; what was once easy, requiring no thought, has become difficult in the extreme. Why? There are a multitude of reasons and all of them are related to my lung cancer treatment. All huddle under the general heading of chro
  2. After a Lung Cancer diagnosis, it is normal and expected for even habitually calm people to worry about their futures. But what happens when those worries begin to “take over”, interfering with your ability to enjoy your life? Most of us are familiar with the quote by Barbara Cameron, “Worry about tomorrow steals the joy from today”. However, as cancer patients, our relationships with worry are usually more complicated than that. Worry, like any uncomfortable feeling, is often a signal that you have a need that has not been met. So, when you have a thought connected to a specific worry
  3. MY STEPS TO SURVIVING A LUNG CANCER DIAGNOSIS Step 1 – Invest in sophisticated diagnosics before diagnosis If you smoke, were a long-term smoker, or are in an occupation that exposes you to carcinogenic toxins (asbestos removal, auto mechanic, painter, etc.), I suggest getting a computed tomography (CT) scan, often called a CAT scan, of the chest once a year. Insurance now covers it and CT will detect tumors far earlier than a chest x-ray. Early detection of small tumors dramatically enhances your survival chances. I had a chest x-ray in January 2004 and was diagnosed with stage 3b, n
  4. The nature of the World Wide Web is the essence of its creators. We’ve made a conduit of ideas and information that chronicles every facet of human behavior and lots of non-human behavior. One can find a searchable version of the bible and then click to something that would be an embarrassing find in the bible. The Internet is encyclopedia, newspaper, entertainment, and abstraction all available with only one precondition, access. I was diagnosed with late-stage lung cancer in 2004. The Internet existed but people-to-people interactions were limited to mostly email. Nevertheless, the Inte
  5. Lisa Haines

    Covid and me

    This is story I did with LUNGevity - I was very honored to be given the opportunity to share my how Covid has changed my life, especially as a Lung Cancer patient. I'm sure most of you can relate. COVID and Me By Lisa Haines When I was diagnosed with Stage IV lung cancer in 2015, I was extremely sick and my prognosis was pretty grim. I decided then, with the time I had left, I was going to live each and every day to the fullest. I wanted to do all the things that my husband and I had always talked about doing when we retired, such as travel and spend more time with family an
  6. I just finished reading a CBS news interview about the symptoms of COVID-19. (Google Search "NH Doctor Believes Pulse Oximeter Could Help Patients Get Ahead of Coronavirus"). In summary, the doctor states that people show up with shortness of breath symptoms with oxygen levels at "50% of normal but no sensation of difficulty breathing." "This disease kills by silent hypoxia and patients should understand that shortness of breath is a late sign." Apparently the disease has two phases: a "silent hypoxia" where oxygen levels are drifting down but you feel ok, and the second phase where your
  7. I'm 66 years old and lived a very reckless life that should have ended in death many times before now. That doesn't mean I am going to lay down without a fight. Still trying to put it all together and perhaps find others nearby working their way through it as well.
  8. As I suspected....sleep still evades. Still reading older posts and following older journeys. But what strikes me (this is not very profound) is that it really is Anxiety and fear and lack of knowledge and Impatience (and shock) which dominate many posts, especially early posts. You can almost feel these feelings abating as more test results come, treatment options understood, plans made and action taken. It entirely mirrors my own experience. Less fear of death, resignation, depression and fatalism than I had expected. Bless all of you..past and present..who contributed (and co
  9. Quick synopsis. In 2004 during an exam for suspected walking pneumonia the X ray found a small circular mass in lower right lobe. Had recently lost my brother to lung cancer and was a smoker so the Dr suggested a PET scan. As they say..it did not light up so watched it for two years with no change and I forgot about i t. Fast forward to last October and again I thought I had walking pneumonia. After two round of antibiotics I still had a wheeze and felt fatigued. I suggested to my NP to have a look at my right lung. Had a CT scan late December and got a call on the Friday after New Years
  10. Hello, my name is Becky, my husband was diagnosed with lung cancer about a year ago. At that time stage 3, now stage 4, having metted to the bone (sacrum, T1 vertebra and left ribs) and it appears, to his brain as well. His choice was to go into hospice care, back when he was still in his right mind, and he is now home with me. I'm not sure I can do this. He's suffering from agitation, occasional hallucinations, and paranoid delusions. The other night he was convinced I was trying to kidnap him, and climbed out the window. The Ativan they gave me at the hospital only seems to make it wor
  11. Hello friends, After reviewing my PET & CT scans taken in April & reviewing with multi-disciplinary cancer team, my thoracic surgeon has scheduled my lung surgery on Wednesday, May 22, at 11:50. Game plan so far. Step 1 - perform a "robotic-assisted wedge resection & lymph node biopsy" of the small nodule in my middle right lung that lit up on the PET at a rather high level (SUV 6.3). Because the needle biopsy in Apr failed, we have to get to this one to biopsy it on the spot. If it is cancer, he'll excise nodule & lymph. Step II - examine two considerably
  12. Hello everyone - I am very glad to have found this forum. My husband was diagnosed on 4/1/19 with adenocarcinoma in his right lung. They caught it early and he is scheduled to have his right upper lobe removed on 4/23/19. We found an amazing cardio-thoracic surgeon who can use VATS. My husband is 61 and extremely active - he has never smoked. Needless to say, we are both a bit overwhelmed and scared. You go from normal life to being handed this diagnosis and it is a bit hard to wrap our heads around it. We are both as positive as we can be - but I know that he is afraid he will turn into this
  13. I am a 59-year-old resident of the Metro DC area. I was diagnosed with stage 3 NSCLC ALK+ adenocarcinoma in February 2013, which after three years metastasized to my brain. I've had chemo and radiation for the lung cancer and surgery and two rounds of radiation for the brain cancer. Through it all, I have remained generally healthy, active, and in good spirits. I have a full-time job and try to stay active with several community organizations. I love to travel, sometimes just to see new places, and sometimes for ski and bike trips. I have supportive friends and family but have gone through muc
  14. I had a small lesion removed from my upper right lobe in May 2012. It was an adenocarcinoma, Stage 1a, so I considered myself super lucky. Surgical cure, no radiation or chemo. I have had CTs every year to look for any recurrence or other issues. All was well until my scan on 11/12 - my pulmonologist emailed me that there is a new 'focal area of concern' to watch. This spot has doubled in size in the past year. Coincidental to doubling my methotrexate dosage. I have RA and take methotrexate and a biologic, Simponi. 7 years ago when the first lesion was discovered the doctors advised to
  15. I am stage 4 nsclc adencarcinoma, only mutation MEK (non useful at this time) diagnosed 9-6-18 when I broke my right femur. LC was an incidental finding on pre sure X-ray, I was and still am non symptomatic. Started chemo in Oct., Keytruda, Alitma, carboplatin, have had 4 infusions. Pet scan done Friday 1/4/18, got results yesterday before chemo, doc said he had good news and nd bad news. Good news and bad news. The tumors and nodes in lungs somewhat shrunk but now there are new areas in the lungs/nodes that are small but lighting up. There are several areas in my right leg femur bone and
  16. Hi guys, My dad was diagnosed with NSCLC(Squamous cell) on October.In my state where we live (Kosovo), is really difficult to find a PET scan machine.So in this way, we didn't want to lose time.Doctors said that our best option is to do an MRI to check if there the cancer has spread to other parts.Thank God, the result showed that the cancer is only in left lung and the size of tumor is 33mm.The tumor is near big blood vessels and is difficult to do a pneumonectomy.In this case the doctor suggested my father to start a neoadjuvant chemotherapy with 3 cycle (Carboplatin + Paclitaxel
  17. My husband started immunotherapy treatment for metastatic cancer on October 15th, which spread from kidney cancer. It is renal cell carcinoma and he has several small tumors in each lung and one affecting a lymph node by his adrenal gland...which is near where his affected kidney was before it was removed. He didn't get to start treatment right away, because doctors wanted his kidney out first and he needed to heal before starting the immunotherapy. My husband had his first CT scan on December 13th, but it showed about 30% growth of all of the tumors. They told him it could be becaus
  18. I am not a statistics wizard; an engineer, I value the predictive power of statistics. Indeed, if one can precisely control variables, a statistics-based prediction of the future is remarkably accurate. The joy of predicting end strength for a new carbon-nanotube concrete mix design melts the heart of this engineer. But, concrete is a thing with but 4 variables to control. Human beings have perhaps millions of variables, thus predictions about people are vastly more complicated and inaccurate. Statistically-based predictive power has a foreboding downside. The methodology is used by
  19. LUNGevity Foundation, the nation’s leading lung cancer-focused nonprofit organization, announced today the recipients of its 2018 Career Development Awards (CDA) for lung cancer research. These coveted awards fund critical lung cancer research projects and offer the recipients world-class mentorship by LUNGevity’s prestigious Scientific Advisory Board. “We are excited to support these exceptionally talented new investigators. Interestingly, all three of these projects involve liquid biopsy-based approaches to detecting and optimizing treatment of lung cancer. These new projects may defin
  20. Here is the weekly clip report: OncLive “Dr. Larner on Integrating Radiation Therapy With Immune Checkpoint Blockade in NSCLC” https://www.onclive.com/onclive-tv/dr-larner-on-integrating-radiation-therapy-with-immune-checkpoint-blockade-in-nsclc Diagnostic Imaging “Low Dose CT Lung Cancer Screening Program Findings Similar to National Trial” http://www.diagnosticimaging.com/di-executive/low-dose-ct-lung-cancer-screening-program-findings-similar-national-trial Targeted Oncology “Immunotherapy and Chemotherapy Combos Are the New Standard of Care for NSCLC, Says Konduri” h
  21. Here is the weekly clip report: Cure “Lung Cancer Care Becoming More Personalized and Trials will Too” https://www.curetoday.com/articles/lung-cancer-care-becoming-more-personalized-and-trials-will-too Cancer Therapy Advisor “Lurbinectedin Receives FDA Orphan Drug Status for Recurrent Small-Cell Lung Cancer” https://www.cancertherapyadvisor.com/lung-cancer/lung-cancer-nsclc-lurbinecedin-fda-oprhan-drug-status-treatment/article/786009/ U.S. News – Health “What to Know about Lung Cancer Screening Guidelines” https://www.nga.org/governors/addresses/ Healio “Minimal
  22. Early on, we learn Algebraic equations with only one solution. Then we encounter equations with two solutions -- Quadratic Equations. Consider: x2 + 3x – 4 = 0. This has two solutions: x = -4 or x = 1. Both are correct; one is negative and one is positive. Algebra students get very comfortable with solutions having a positive and negative outcome -- lung cancer survivors are less comfortable! The positive outcome for lung cancer is extended life. But like quadratic equations, there can be negative outcomes that are less desirable. Mine is chronic pain. So to the question, how does one
  23. My lung cancer diagnosis came as quite a shock to my family, my doctors, and me as I’ve always maintained a healthy lifestyle. I exercised regularly, ate healthily, never smoked, and enjoyed a variety of outdoor sports and other activities with my husband and our three children. I worked as a learning specialist for children ages K-8 and loved my job. Everyone I was close to commented that I was “the healthiest person they know.” But in March 2011, after worsening back pain, I visited my physiatrist who ordered an MRI. I figured I had a disc issue with my back or created an injury from to
  24. LUNGevity Foundation, the nation’s leading lung cancer-focused nonprofit organization, is pleased to announce the launch of a new lung cancer awareness campaign – 234. The 234 social media campaign utilizes graphic animation to engage the public in understanding the true facts about lung cancer. Approximately 234,000 Americans are diagnosed with lung cancer every year, 422 people die of lung cancer every day, and lung cancer kills more people than the next 3 deadliest cancers combined. The campaign encourages the public to get engaged to make a difference (be the 1). “Our goal with the 23
  25. For the past 11 years, I’ve helped treat lung cancer patients as an RN in a cardiothoracic practice. Then last October, I developed a bad cough that lasted over a month. It was cold season, and my co-workers and I thought it might be pneumonia or even bronchitis. No one suspected it could be lung cancer, since I’m a nonsmoker and haven’t been exposed to common risk factors like asbestos, radon, or pollution. I had a chest ray taken, which showed fluid around my right lung. The tests of the fluid didn’t uncover anything extraordinary. I didn’t look sick, but I felt fatigued and at times, I
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