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  1. MY STEPS TO SURVIVING A LUNG CANCER DIAGNOSIS Step 1 – Invest in sophisticated diagnosics before diagnosis If you smoke, were a long-term smoker, or are in an occupation that exposes you to carcinogenic toxins (asbestos removal, auto mechanic, painter, etc.), I suggest getting a computed tomography (CT) scan, often called a CAT scan, of the chest once a year. Insurance now covers it and CT will detect tumors far earlier than a chest x-ray. Early detection of small tumors dramatically enhances your survival chances. I had a chest x-ray in January 2004 and was diagnosed with stage 3b, n
  2. The nature of the World Wide Web is the essence of its creators. We’ve made a conduit of ideas and information that chronicles every facet of human behavior and lots of non-human behavior. One can find a searchable version of the bible and then click to something that would be an embarrassing find in the bible. The Internet is encyclopedia, newspaper, entertainment, and abstraction all available with only one precondition, access. I was diagnosed with late-stage lung cancer in 2004. The Internet existed but people-to-people interactions were limited to mostly email. Nevertheless, the Inte
  3. Lisa Haines

    Covid and me

    This is story I did with LUNGevity - I was very honored to be given the opportunity to share my how Covid has changed my life, especially as a Lung Cancer patient. I'm sure most of you can relate. COVID and Me By Lisa Haines When I was diagnosed with Stage IV lung cancer in 2015, I was extremely sick and my prognosis was pretty grim. I decided then, with the time I had left, I was going to live each and every day to the fullest. I wanted to do all the things that my husband and I had always talked about doing when we retired, such as travel and spend more time with family an
  4. Good morning. I am new to this group. I was diagnosed with stage IV lung cancer last August 2018. Mets to brain, bone and adrenal gland. First line treatment was cisplatin, alimta and keytruda. Started maintenance in January so now on alimta and keytruda with someday every 3 months. Still processing all of this and trying to stay informed and educate myself. I feel great with no symptoms. After treatments I feel tired which leads to emotion, which is the only time I am reminded I have cancer. I remain optimistic however sometimes overwhelmed at how much information there is out there and how t
  5. LUNGevity Foundation, the nation’s leading lung cancer-focused nonprofit organization, announced today the recipients of its 2018 Career Development Awards (CDA) for lung cancer research. These coveted awards fund critical lung cancer research projects and offer the recipients world-class mentorship by LUNGevity’s prestigious Scientific Advisory Board. “We are excited to support these exceptionally talented new investigators. Interestingly, all three of these projects involve liquid biopsy-based approaches to detecting and optimizing treatment of lung cancer. These new projects may defin
  6. Here is the weekly clip report: OncLive “Dr. Larner on Integrating Radiation Therapy With Immune Checkpoint Blockade in NSCLC” https://www.onclive.com/onclive-tv/dr-larner-on-integrating-radiation-therapy-with-immune-checkpoint-blockade-in-nsclc Diagnostic Imaging “Low Dose CT Lung Cancer Screening Program Findings Similar to National Trial” http://www.diagnosticimaging.com/di-executive/low-dose-ct-lung-cancer-screening-program-findings-similar-national-trial Targeted Oncology “Immunotherapy and Chemotherapy Combos Are the New Standard of Care for NSCLC, Says Konduri” h
  7. Here is the weekly clip report: Cure “Lung Cancer Care Becoming More Personalized and Trials will Too” https://www.curetoday.com/articles/lung-cancer-care-becoming-more-personalized-and-trials-will-too Cancer Therapy Advisor “Lurbinectedin Receives FDA Orphan Drug Status for Recurrent Small-Cell Lung Cancer” https://www.cancertherapyadvisor.com/lung-cancer/lung-cancer-nsclc-lurbinecedin-fda-oprhan-drug-status-treatment/article/786009/ U.S. News – Health “What to Know about Lung Cancer Screening Guidelines” https://www.nga.org/governors/addresses/ Healio “Minimal
  8. LUNGevity Foundation, the nation’s leading lung cancer-focused nonprofit organization, is pleased to announce the launch of a new lung cancer awareness campaign – 234. The 234 social media campaign utilizes graphic animation to engage the public in understanding the true facts about lung cancer. Approximately 234,000 Americans are diagnosed with lung cancer every year, 422 people die of lung cancer every day, and lung cancer kills more people than the next 3 deadliest cancers combined. The campaign encourages the public to get engaged to make a difference (be the 1). “Our goal with the 23
  9. “I’m sorry, sweetheart these are tumors in your lungs and a form of lung cancer”. These were the words spoken to a vibrant, healthy 36-year-old female on October 19, 2017, by the thoracic surgeon. I knew that things were probably not good when he came in and asked if I was alone. Unfortunately, I was alone. Looking back, that day seems like a blur. I remember the ladies at the checkout desk asking how I was doing as they ask so many patients all day long. It’s mere customer service, right? I never made eye contact and mustered enough energy to say the word “fine”. I was far from fine, but
  10. The Harvard Business School Kraft Precision Medicine Accelerator, a multidisciplinary initiative that uses collective impact to advance high-priority opportunities in precision medicine, announced today that five leading cancer organizations have come together to share best practices, engage patients, and create synergies to advance precision medicine opportunities across cancers. The organizations include LUNGevity Foundation, the Metastatic Breast Cancer Alliance, the Multiple Myeloma Research Foundation (MMRF), the Pancreatic Cancer Action Network (PanCAN), and the Prostate Cancer Foundatio
  11. Becoming Empowered Advocates My wife, Heather, told me about LUNGevity National HOPE Summit and that she wanted to attend. She received a Travel Grant from LUNGevity and I decided to join her at the conference. It is one of the best things we ever did. The wealth of information about lung cancer available through LUNGevity is not comparable to anything I could find in Canada or through any Canadian organizations. LUNGevity is so caring, thoughtful, and cutting edge. Heather and I attended our first National HOPE Summit in 2016. It was so incredibly inspiring. We got to see first-hand
  12. Join LUNGevity Foundation for a Twitter chat about Palliative Care: What it is and what it isn't. We'll answer questions and dispel myths about palliative care for lung cancer patients. Be part of the conversation on Wednesday, April 4, at 8:00PM ET. Use #LCCaregiver to join or follow the conversation. For more information about palliative care, visit LUNGevity's Lung Cancer 101 website.
  13. Here is the weekly clip report: U.S. News & World Report "From the 'Big C' to Cancer" https://health.usnews.com/health-care/patient-advice/articles/2018-03-21/from-the-big-c-to-cancer Healio “Lower-Limb Arterial Thrombosis May Be Marker of Cancer” https://www.healio.com/cardiac-vascular-intervention/peripheral/news/online/{f342b55f-87eb-4edc-a0eb-608633079467}/lower-limb-arterial-thrombosis-may-be-marker-of-cancer Medscape “How to Improve Diversification of Patients with Cancer in Clinical Trials” https://www.medscape.com/viewarticle/894210 Oncology Nursing Ne
  14. WASHINGTON, DC (March 14, 2018) — LUNGevity Foundation, the nation’s leading lung cancer-focused nonprofit organization, today announced the addition of the President of Vogue International, a Johnson & Johnson Company, Michael Marquis to its Board of Directors. Working together with other global leaders on the Board, Marquis will lend his knowledge and passion to further LUNGevity’s work of changing outcomes for people with lung cancer. “We are excited and honored that Michael is joining our board,” said Andrea Ferris, CEO of LUNGevity Foundation. “His long track record as an innov
  15. WASHINGTON, DC (March 14, 2018) — LUNGevity Foundation, the nation’s leading lung cancer-focused nonprofit organization, today announced that Andre Owens, partner in the Washington, D.C., law office of WilmerHale, has joined the Board of Directors. Together with other global leaders on the Board, Owens will lend his expertise to further LUNGevity’s work of changing outcomes for people with lung cancer. “We are grateful to have someone as uniquely qualified as Andre join our Board,” said Andrea Ferris, CEO of LUNGevity Foundation. “His valuable specialized knowledge coupled with a strong p
  16. My Dad was always my Ironman when I was growing up. In 2004, my dad had a persistent cough. He went to the doctor a few times and was finally diagnosed with pneumonia. A year went by and the cough went away for awhile. When it returned, my dad went back to the doctor. He was diagnosed with Stage IV lung cancer. I was 17 at the time. After he was diagnosed, my Dad signed up for Heather Saler’s Lung Cancer Walk in Pennsauken, NJ, which eventually became Breathe Deep South Jersey. My dad didn’t do the full walk, but he was part of the survivor ceremony. I went with him and that was how we f
  17. Here is the weekly clip report: WRC-TV “Exhibitors Guide: Full List of Exhibitors at the 2018 Health and Fitness Expo” https://www.nbcwashington.com/news/health/Exhibitors-Guide-Full-List-Exhibitors-Health-and-Fitness-Expo-474441813.html Immuno-Oncology News “Bristol-Myers, Nektar Developing Cancer Therapy to Be Used with Checkpoint Inhibitors” https://immuno-oncologynews.com/2018/02/26/bristol-myers-squibb-nektar-cancer-immunotherapy-checkpoint-inhibitors/ Color.com – Blog/Podcast “Adam Klein, Winner of 2016 Survivor, on Becoming a Leading Lung Cancer Advocate” https://b
  18. Let's talk about lung cancer and nutrition with the experts from Savor Health! Join LUNGevity for a special Twitter chat on Wednesday, March 7, at 8:00 PM ET. Use #LCCaregiver to follow or join the conversation. All are welcome!
  19. Alice Shaw, MD, PhD, is a pioneer in the field of targeted therapies for lung cancer—treatments designed to target specific gene mutations that are present in the cells of some patients. Her work was instrumental in earning FDA approval for three targeted therapies for patients with the ALK mutation: crizotinib, ceritinib, and alectinib. She recently presented the results of a critical clinical trial that suggest alectinib could replace crizotinib as the initial treatment for ALK-positive patients. In addition to conducting groundbreaking research, Dr. Shaw is a celebrated thoracic oncologist
  20. Hi, SMAs, Here is the weekly clip report: Healio “Targeted Radiation Reduces Mortality for Early-Stage Lung Cancer” https://www.healio.com/hematology-oncology/lung-cancer/news/in-the-journals/{ea2da7d0-cbee-4aba-bba7-5028dde05d69}/targeted-radiation-reduces-mortality-for-early-stage-lung-cancer OncLive “ALK Inhibitors Continue to Reshape Treatment in NSCLC” http://www.onclive.com/web-exclusives/alk-inhibitors-continue-to-reshape-treatment-in-nsclc U.S. News & World Report “Are More People Dying of Cancer?” https://health.usnews.com/health-care/patient-advice/arti
  21. Here is the weekly clip report: USA Today “Bristol-Myers Squibb Claims ‘Breakthrough’ Lung Cancer Treatment” https://www.usatoday.com/story/money/2018/02/05/bristol-myers-squibb-claims-breakthrough-lung-cancer-treatment/306433002/ Forbes “Genprex Launch IPO for Trials of New Gene Therapy Lung Cancer Treatment” https://www.forbes.com/sites/rodnturner/2018/02/05/genprex-launch-ipo-for-trials-of-new-gene-therapy-lung-cancer-treatment/#167f00d449fd Cure Today “Not All Small-Cell Lung Cancer Treatment is Equal” https://www.curetoday.com/articles/not-all-small-cell-lung-cancer-
  22. Here is the weekly clip report: PR Newswire “American College of Chest Physicians Publishes New Lung Cancer Screening Guidelines” https://www.prnewswire.com/news-releases/american-college-of-chest-physicians-publishes-new-lung-cancer-screening-guidelines-300589650.html The ASCO Post “Durvalumab Takes a Giant Leap into Stage III NSCLC” http://www.ascopost.com/issues/january-25-2018/durvalumab-takes-a-giant-leap-into-stage-iii-nsclc/ EurekAlert! “New Radiation Techniques Could Improve Quality of Life for Lung Cancer Patients” https://www.eurekalert.org/pub_releases/2018-01/
  23. I first became involved with LUNGevity through National HOPE Summit, a survivorship conference in Washington, D.C. Seeing so many survivors and being able to share our stories and gain knowledge made the experience very special. I’m always impressed by the quality of what I learn and what is shared. The fact that the medical researchers can interact with patients in an intimate setting and participate in the roundtable discussions is very inspiring. Going to HOPE Summit has been a springboard for many other volunteer and advocacy opportunities. At my first conference, I learned about the
  24. Here is the weekly clip report: PR Newswire “LUNGevity Foundation Kicks Off New Public Service Campaign to Alter View of Lung Cancer Diagnosis” https://www.prnewswire.com/news-releases/lungevity-foundation-kicks-off-new-public-service-campaign-to-alter-view-of-lung-cancer-diagnosis-300583589.html Baylor College of Medicine “Immunotherapy Treatment Gives Lung Cancer Patient Second Chance” https://blogs.bcm.edu/2018/01/22/immunotherapy-treatment-gives-lung-cancer-patient-second-chance/ Variety “Allison Shearmur, ‘Rogue One,’ “Hunger Games’ Producer, Dies at 54” http://varie
  25. LUNGevity is excited to partner with Savor Health to address nutrition for people diagnosed with lung cancer in a new blog. Savor Health is a provider of personalized nutrition solutions designed exclusively for cancer patients based on evidence-based science and clinical best practices and provided by a team of oncology-credentialed registered dietitians. You can submit your questions here and the experts at Savor Health may answer it in an upcoming blog!
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