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LUNGevity is excited to partner with Savor Health to address nutrition for people diagnosed with lung cancer in a new blog. Savor Health is a provider of personalized nutrition solutions designed exclusively for cancer patients based on evidence-based science and clinical best practices and provided by a team of oncology-credentialed registered dietitians. You can submit your questions here and the experts at Savor Health may answer it in an upcoming blog!
LUNGevity Foundation has launched Patient FoRCe, the first-ever critical bridge to connect the voices of lung cancer patients — a significant population — with health care professionals, regulators, policymakers, and developers of drugs. “Lung cancer is the #1 cancer killer, taking the lives of 157,000 Americans every year. LUNGevity is leading the way in changing the paradigm of cancer treatment ─ from assuming patient wishes to evidence-based conclusions about what patients value,” said LUNGevity Chairman Andrea Stern Ferris. “Through Patient FoRCe, lung cancer patient voices will be heard and heeded as policy is developed, research is conducted, and treatment decisions are made.” Patient FoRCe, LUNGevity’s Patient-Focused Research Center, will undertake never-before studies of those living with lung cancer, collecting and sharing robust qualitative and quantitative data about lung cancer patients’ preferences and experiences to inform treatment, as well as relevant policy and research protocols. Patient FoRCe’s immediate focus will include continuing a study of patient preferences and experiences regarding access to care, treatment and diagnostic options, and the impact of symptoms on daily living, as well as conducting studies to facilitate patients’ access to biomarker testing, which is essential to implementing precision medicine. Patient FoRCe will also initiate a study into increasing adherence to lung cancer screening protocols for people at high risk for lung cancer. Additional projects will be based on stakeholder input and the guidance of an external advisory board of survivors, academic and community clinicians, industry partners, patient advocacy groups, and community partners. LUNGevity formally announced Patient FoRCe at the American Association for Cancer Research’s 2017 Annual Meeting in Washington, DC, on Sunday, April 2. Andrea Stern Ferris spoke to the urgency of the initiative, saying, “For too long, public policy, the practice of medicine, and drug development have not adequately integrated the viewpoint of patients. LUNGevity is determined to change that paradigm. By incorporating the patient’s voice into every step of the process – in policymaking, in trials, in treatments – we will improve outcomes for those diagnosed with lung cancer.” “Our goal is to uncover gaps in information, misperceptions about patient attitudes, and areas of unmet patient need,” explained Dr. Upal Basu Roy, Director of Patient FoRCe. “LUNGevity is the only organization driving this type of change for the lung cancer community, and we anticipate that our findings will shape the future of lung cancer care.” For more information about Patient FoRCe, visit www.LUNGevity.org/patientforce. Click here to read the full press release.
LUNGevity Foundation Partners With CancerCare to Launch Lung Cancer HELPLine Free Service Addresses Emotional, Practical, and Information Needs of Lung Cancer Patients FOR IMMEDIATE RELEASE Media Contact: Amanda Greenfield firstname.lastname@example.org 212-561-7430 WASHINGTON, DC (January 19, 2017) – LUNGevity, the nation’s leading lung cancer-focused nonprofit organization, today announced the launch of the LUNGevity Lung Cancer HELPLine, a free phone service through which a team of professional oncology social workers will be available to address the emotional, practical, and information needs of people diagnosed with lung cancer, their families, and caregivers. This year, more than 240,000 people in the U.S. will be diagnosed with lung cancer, which means that hundreds of thousands of lung cancer patients, family members, and caregivers will be responsible for navigating a disease that is likely unfamiliar to them. The LUNGevity Lung Cancer HELPLine will serve as a vital resource and source of support for all affected by the disease. LUNGevity has partnered with CancerCare®, the leading national organization providing free, professional support services and information to help people manage the emotional, practical, and financial challenges of cancer. CancerCare’s team of professional oncology social workers are uniquely qualified to address these needs. For nearly 73 years, CancerCare has provided free support services to cancer patients aimed at alleviating distress, helping them to obtain the best possible outcomes from their treatment. Those seeking assistance can call LUNGevity’s new toll-free HELPLine, 844-360-LUNG (5864), from 9:00am – 5:00pm ET, Monday through Friday to: Receive immediate access to reliable educational resources and programs Get personalized information about lung cancer and treatment options Learn effective ways to cope with cancer including managing emotions such as depression, anxiety, or sadness Improve communication with their health care team and loved ones Get referrals to financial assistance resources for needs including pain medication, homecare, childcare, medical supplies, transportation for treatment, and copayment assistance related to chemotherapy and targeted treatment therapies. (Provided to those who meet CancerCare’s eligibility guidelines; subject to funding availability.) Depression, anxiety, strains on relationships, loss of motivation, and financial burdens are commonly experienced by lung cancer patients and can compromise a patient’s ability to complete treatment. LUNGevity developed the Lung Cancer HELPLine to help patients, their caregivers, and families combat these symptoms by offering direct and personalized support for callers across the nation. “Providing lung cancer patients, their families, and caregivers with the resources and tools they need to address every phase of this disease is a priority,” said Andrea Ferris, President and Chairman of LUNGevity Foundation. “Our goal in setting up this HELPLine is to add dimension to these efforts and provide an additional resource to individuals affected by lung cancer to ensure that no one has to navigate this disease alone.” The HELPLine will join a number of other critical resources LUNGevity has created to support the needs of lung cancer patients, their caregivers, and loved ones, including Clinical Trial Finder, LifeLine Support Partners, and the recently launched Lung Cancer Navigator Mobile App. Charitable funding for the HELPLine was generously provided by Bristol-Myers Squibb Company and Genentech. For more information on LUNGevity, please visit www.LUNGevity.org. Click here to read the full press release.