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Found 7 results

  1. Hi, Thank you for letting me join this group. My husband was diagnosed with Stage IV Adenocarcinoma in October. This has really been a whirlwind! He has fluid on his lung and I drain it at home. He had mild dementia before he began treatments, but it seems to be getting worse. I am wondering if anyone else has had the same experience as we are. His oncologist seems to be ready to stop treatments and put him on hospice due to the dementia. I had always heard that oncologists always have another plan...they always have another treatment. He has not re scanned my husband to see if the Keytruda is working. I am reluctant to stop treatments...he has only had 2! I am caring for him in our home, by myself. I am wondering if this is because of his age? I am really at a loss. The doctor wants us to come in tomorrow and talk. Any advice is appreciated! Thank you! Deb
  2. Hello, My mother is recently diagnosed with Stage IV Adenocarcinoma, Positive to EGFR Exon 19 deletion mutation test. She has a primary tumor in left lung, which metastasized to several locations including: spinal cord (three small lobes) , left arm (one) and left leg (one) and neck (one). Her oncologist prescribed Tagrisso - 80 mg, once a day. She has been on medication since 8 days. She is also a Type 2 diabetic patient, so she has Diabetes medication, pain medication and some calcium medication. Her oncologist said that she is a non-smoker, he anticipates that Tagrisso response will be good. If anyone is on Tagrisso, can you please let me know if she has to watch out for any specific side effects or if she has to follow any specific diet. We do not have any family history of Cancer, my mom is a very active person and she always is on a healthy diet. I do not understand how she has lung cancer or the associated mutation. Any information and prayers would be very helpful.
  3. Good morning all, My brother was diagnosed with cancer last week right after Christmas. He is a 48 year old healthy, strong man who never smoked or drank, but took care of his body and ate healthy. In Oct. 2016, while at the gym, he thought he hurt his shoulder while lifting weights. He had muscle pain so he went to the doctor and was prescribed pain medicine and physical therapy. He did all of that and it didn't work. Then the pain started to run down his spine and lower back and all around his neck. He went to the doctor again and they prescribed stronger pain medication and it also didn't work. He then insisted that his doctor do an MRI. The doctor then called my brother on the phone Dec. 28th and told him it looked like cancer. Dec. 29th went to the oncologist and on Dec. 30th he did a MRI and PET. On Jan. 3, oncologist confirmed it was cancer and metastasized to his bones and specifically his spine. That's what was causing the pain. We checked him into the hospital to get the process started immediately and that day they did a full body MRI and MRI of the brain. That very same night they told us that it had spread to his brain and all along his spine. On Jan. 4, they did the biopsy of the lung tumor which is about the size of a quarter. Yesterday we found out it was non small adenocarcinoma of the lung stage 4 and it's very aggressive. They sent off a sample to see if there is any mutation. Today we received news that it has spread to his liver and they will begin target radiation on the tumor in his spine on Monday so he could at least walk without pain. He has never had any medical problems and he was fine last month and now he's in a hospital and the doctors are saying that his days are numbered. This has been the hardest news ever but if anyone out there could give us some hope, we would greatly appreciate it. I know we can fight this horrible disease. I will update and let everyone know of the treatments and hope there could be wise counsel for us since this disease doesn't run in our family. Thank you.
  4. Hello, my name is Christine. My, 71 yr old, Mother was diagnosed in Nov 2016 w/ Stage IV metastatic adenocarcinoma NSCLC (primary: right lung, spread to both adrenal glands, brain & right proximal tibia). At diagnosis she was given an estimate of 6-12 months to live, which was quickly adjusted to 6 months after they discovered 13 brain mets opposed to the 3 they originally saw. She had surgery to remove the tumor in her right tibia, which they filled with bone cement to stabilize the bone. She has completed whole brain radiation, radiation to the right tibia & 2 rounds of chemo: Paraplatin (Carboplatin), Alimta (Pemetrexed) & Avastin (Bevacizumab). The chemo was unsuccessful. The cancer spread to multiple bones in her left leg, her pelvis & spine. They stopped chemo & started Opdivo last week. It is too soon after completing whole brain radiation to do another brain scan to know if it helped. I'm sorry for the information overload....I'm just trying to give as much info as possible to see if anyone here has a similar situation & could offer some words of wisdom, offer a glimpse of hope or suggest ways I can help her. Thank you in advance for your help.
  5. Susan Cornett

    Mantra

    We've all experienced that sucker punch to the gut when we, or a loved one, are diagnosed. But several physicians have told me and others on this forum that a positive attitude is so important in this fight. There are so many wonderful survivors on this forum that gave me, and continue to give me, hope. I read this today and think it applies to all of us on this forum: Don't die before you are dead. So, I move on with life and have decided not to die before I'm dead. Cancer be damned - I'm going to Hawaii in 4 months.
  6. Hi all, I am was dx in March 2016 with Non small Cell Lung Cancer, Stage IV. I had a pleural effusion on my lung, bone mets on brain, spine and pelvis. Started Tarceva in April and Cyberknife radiation to my brain and spine. Most of the tumors have disappeared or shrunk by 70%. Meanwhile, an abnormal lymph node has shown up in my last PET scan and continues to grow a fraction of a cm. It was on the original PET scan but because lung cancer is more life threatening, my oncologist did not worry about it. In 2005, I had Large B Cell Lymphoma, Stage IV. After 6 rounds of CHOP and rituxan, I was in remission and stayed that way for over 10 years. I belong to a group called Inspire and really love it. Just recently, I found out about this group. If there is anyone out there with my similar lung/lymphoma cancers, it would be great to hear from you. Most days I feel great, lead a normal life and feel grateful for the advances in cancer treatments. Anna
  7. Hi, my name is Marc and I am 38 years old. June 1st, 2016 I was diagnosed with Stage IV Lung Cancer. I have a beautiful wife and two awesome boys, Bailey 17 and Landon 13. April 2015, I ran my first full marathon, which was the single biggest achievement of my life. I was so proud... In July 2015 I changed jobs and moved into a very stressful position, which did not support my running life style, so I pulled back. I still ran, but not nearly as much as I had been or wanted to. In Nov 2015, I ran the first race since my marathon, which was the Rock n' Roll 1/2 marathon in San Antonio, TX. After that run I felt like I had hurt something in my right upper leg (pulled muscle or something). From that point on I felt like my body wasn't healing. I would push myself to run and it would get worse. Some days I would just walk thinking that would get me to a better place. In February 2016, I ran the New Orleans Rock n' Roll 1/2 marathon. I had a decent race, coming in under 2 hours, but barely. Again, it took me several days/week to overcome my soreness. But I kept at it... In March I ran a relay race from Austin, TX to Houston, TX (20+ miles). Felt ok... Fast forward to Memorial Day 2016, I was rough housing with my son on what should have been a fun and memorable day. I stepped back on my right leg and felt a pop. I was down for the count. After a day of sitting on the couch watching TV, I got in to see my family Dr. My normal Dr wasn't there so I saw another Dr at the practice. He gave me an exam and said It was definitely in my hip (not knee where i thought) and gave me two options 1) go home and rest 2) move forward with X-ray and MRI to find out what was going on. That day I made a decision I normally would not have made. I made the decision to get to the bottom of what was going on. That same afternoon I had an X-ray which came back negative, which the Dr thought would be the case if it was muscle related. On Friday, June 3rd I went for an MRI. I was a little nervous, but went by myself thinking ok, this will tell me whats wrong and we can move on. After waiting the weekend, Monday and most of the day Tuesday, I was getting restless... So I started calling the Dr office trying to get answers. I wasn't in any real pain, but I had jumped through all the hoops to get an X-ray and MRI, I wasn't letting go until I had the results in hand and could put this behind me. So... the moment I had been waiting for... My Dr (now back from vacation) called me. He said Marc, the MRI confirmed you have a fractured hip and a slight tear in you muscle... (and then the bomb dropped) He went on to say, but we see numerous lesions in your pelvic/femur/lower spine area, which we need to explore further. My heart sunk... So, the next day I went in for a physical exam. The Dr felt it was necessary to take a few more steps. He ordered Blood Work and a Bone Scan for the next day. My wife and I were stressed, but glad they were moving quick. The next morning while i was getting ready I received a call from the Dr office. The nurse stated the Dr wanted me to go ahead and get a CT scan while I was in for the Bone Scan, so we did. That afternoon, my wife asked if we could meet with the Dr to get an update on the Blood Work which was taken the day before. He accepted us and we met. Unfortunately... the first words out of his mouth was "its not good". My heart sunk and I immediately felt like I was going to faint. He said there were a few notable things on the CT scan, but nothing major. However the Bone Scan seemed to confirm the MRI findings. After I picked myself we got scheduled to meet with Texas Oncologist the next morning. The next morning came... After worrying, praying, crying all night I was ready. I felt at peace and in good spirits and was on fire for God. Unbelievable peace I had... We went in and talked to the Dr. She said "I don't know if you have cancer, I am not ready to say that". I lit up... I had hope... She then said I want to take Bone Biopsy of you pelvic bone to see what exactly the lesion is (bone island, benign, etc., etc.). So, the weekend was good. I was hopeful once we got the Bone Biopsy we would know what it was. I researched every possible alternative to cancer over the weekend. Monday morning I had the Bone Biopsy, which was a piece of cake. I still had hope and was at peace. Wednesday, June 15th I got a call. The Oncologist's nurse called me to scheduled a follow up appointment for the next day. When she called, I said ok, but couldn't wait for the preliminary results for an entire 24 hrs. She began to read the Dr notes... and she said the work "lung cancer". My heart stopped. I was by myself and thought I was going to pass out. Once I pulled myself together, I texted my wife and asked her to come home as soon as she could, which she did. When she got home, she call the Dr office again and asked for clarity. The nurse confirmed I heard right... Lung Cancer... The Dr agreed to get us in that same afternoon to talk with the Oncologist. She gave me the news and said she was sending the Bone Tissue for additional testing to try and find out what type of Lung Cancer we were dealing with. To date (Monday, June 20th) I have not heard back. I told my kids and parents over the weekend. It was hard, but God gave me peace and just the right words. On the mental/spiritual side... Day 1 I heard God say "Peace, Be Still"... I knew that was in the bible, but I couldn't tell you where, so I looked it up. It was in the book of Mark (how cool is that). It is Mark 4:39. I always thought "Peace, Be Still" was a commandment to the people. However, in reading the story, it unfolds right after Jesus fed the multitudes with the fish and the loaves of bread. Jesus and the disciples were traveling to the other side of the water and during the travel a storm came. Jesus was a sleep... As the storm got worse the waves started to crash over the side of the ship, the disciples went to wake Jesus, saying "Master, carest thou not that we perish?" Jesus got up and rebuked the wind and said unto the sea "Peace, Be Still" and the wind ceased and there was a great calm. Jesus then turned to the disciples and asked them why they were so fearful and how is it they have so little faith. The passage goes on to say... And they were in great amazement... After reading that, I made a decision... The God who calmed the storm can (and will) heal... I want to live... I am going to live... What I am looking for... I want to first impart my love, peace and support into others. And, I am looking for others to connect with as a positive influences. Its probably needless to say, but the internet is filled with horrible things, which many of them do not support a positive outlook. I want to create a revolution of Lung Cancer patients/survivors (all cancer patients/survivors). We deserve to live. We deserve to see our kids grow up. We deserve to grow old with our spouses and love ones. I am going to live. I am here for each and every one of you. I don't know your name, never saw your face or heard you talk, but I am here for you. Marc
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