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  1. I recently read a quote from a cancer survivor about online support. "When I stumble, there are so many virtual hands to catch me.” This is the same sentiment that has been expressed about LUNGevity’s Lung Cancer Support Community and the many support groups on Facebook. People impacted by lung cancer can come online and be embraced by others who have walked the same journey and who understand what they may be going thru. There is power in the written word and from receiving support from a group of people. Building a community of support can help you feel less alone in the cancer journey. But there are times when people need more. For example, newly diagnosed patients and their families often feel overwhelmed with the medical process, uncertainties and fears and they need additional support. Some people are not active social media users. Some people need more than virtual hands to catch them. What they need is a strong hand to hold onto. Those are the people who benefit from the personalized support of LUNGevity’s LifeLine Support Mentor Program. The program, originating from the Lung Cancer Support Community “Support Buddy Program”, is in its 14th year of helping people. Based on individual needs, LifeLine has supported people online, through email and by telephone. A personalized match is made between a survivor mentor and a patient and they begin their supportive relationship based on commonalities whenever possible, like age range, gender and stage and type of lung cancer. LifeLine also matches caregivers and family members to other more seasoned caregivers and family members. Oftentimes caregivers and families bear the brunt of the responsibility of caring for their loved ones physical, emotional and financial needs and neglect caring for themselves. Those caring individuals we call co-survivors need support too. We’ve matched survivors, patients and caregivers from across the country. We’ve matched people at our annual HOPE Summits and we are a resources for many hospitals, clinics and social workers. Here’s what one support seeker said. “It’s amazing. I never knew anyone with a lung cancer diagnosis, now I’m matched with someone like me who has survived these same treatments. She gives me so much hope.” If you or someone you know has been impacted by lung cancer and would like to request a LifeLine Support Mentor or if you would like to volunteer to become a LifeLine Mentor, please visit www.lungevity.org/lifeline Visit our website here if you would like to request materials.
  2. SU2C Lung Cancer Dream Team Launches Website for KRAS-positive Lung Cancer Patients LUNGevity President Andrea Ferris presents new site at SU2C Scientific Summit FOR IMMEDIATE RELEASE Media Contact: Aliza Bran abran@susandavis.com (202) 414-0798 WASHINGTON, January 29, 2016 - LUNGevity President Andrea Ferris, a member of the Stand Up to Cancer Lung Cancer Dream Team, presented the team’s newly launched website, a patient-centric resource that enables users to be active, informed participants in their diagnosis and treatment, at a poster session at the 2016 Stand Up to Cancer (SU2C) Scientific Summit. Ferris is an advocacy representative on the Lung Cancer Dream Team, created in April 2015 to address treatment options for patients with KRAS-mutant lung cancer. She helped create the patient-friendly website and guided its December launch. The resource will help patients understand their disease and treatment options, report on the Lung Cancer Dream Team’s research progress, and inform patients of open clinical trials. “This patient population has never seen significant progress,” noted Ferris. “Our goal in creating this website was to provide hope to people diagnosed with KRAS-mutant lung cancer. We designed the site with the patient in mind, so that they can be informed participants in their health care decisions.” “While there have been meaningful steps forward in lung cancer research, treatments for patients with the KRAS mutation have seen little success,” said Jeffrey Engelman, MD, PhD, member of the Lung Cancer Dream Team’s Scientific Research team. “To be successful, it’s crucial that our team connect the science to the patient, and connect the patient to the science through enrollment in clinical trials. We can’t accomplish these goals without advocates who ensure that the patient voice and needs are incorporated.” To learn more about the SU2C Lung Cancer Dream Team and its work in KRAS-mutant lung cancer, visit www.lungcancerdreamteam.org. For more information on LUNGevity Foundation, please visit www.LUNGevity.org. About Lung Cancer 1 in 15 Americans will be diagnosed with lung cancer in their lifetime More than 221,000 people in the U.S. will be diagnosed with lung cancer this year About 60%-65% of all new lung cancer diagnoses are among people who have never smoked or are former smokers Lung cancer takes more lives than the next three leading cancers (colorectal, breast, and prostate) combined Only 17% of all people diagnosed with lung cancer will survive 5 years or more, BUT if it’s caught before it spreads, the chance for 5-year survival improves dramatically http://www.lungevity.org/about-us/media-resources/news-from-foundation/su2c-lung-cancer-dream-team-launches-website-for-kras
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