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  1. My best bud and daddy had a lobectomy that removed most of his right lung in Hamilton Ontario Canada which is 1hr from where he lives with my mom and 1,5 hr from where I live in Pickering. His surgery went well but he developed pneumonia and a bronch fistula...it’s been a month and he remains in ICU with a tracheotomy...he is still struggling and remains highly sedated..:.i need stories of hope!!!! He is an emotional person and is loosing his will to fight....I’m lucky to have a great friend who is allowing my mom and I to stay at her house but the long days and being away from my husband and
  2. "Hindsight is 20/20!" "You know, in retrospect..." "Looking back now, I'd..." "If I had it all to do over again..." "If I had known then what I know now..." Chances are, if you're a caregiver, you're guilty of saying at least one of these catchphrases at least a little bit often. I know I am. A LOT a bit often! Why is that? Why is it that we never feel prepared to be a caregiver, and always feel like a little of our well-earned wisdom would have been useful at the beginning of our experience? Here's what I think: our loved one's diagno
  3. Join LUNGevity Foundation for a Twitter chat about Palliative Care: What it is and what it isn't. We'll answer questions and dispel myths about palliative care for lung cancer patients. Be part of the conversation on Wednesday, April 4, at 8:00PM ET. Use #LCCaregiver to join or follow the conversation. For more information about palliative care, visit LUNGevity's Lung Cancer 101 website.
  4. LUNGevity is proud to announce that the Foundation is serving on three subcommittees of Sustainable Healthy Communities, LLC, founded by the National Minority Quality Forum. As one of two US patient advocacy organizations on the Diverse Cancer Communities Working Group (CWG), LUNGevity will bring years of expertise in supporting the lung cancer community to the Cancer Index Subcommittee, the Community and Patient Engagement Subcommittee, and the Diversity in Clinical Research Subcommittee. “We are proud to work with LUNGevity on the Cancer Working Group, given the importance of always asking
  5. Let's talk about lung cancer and nutrition with the experts from Savor Health! Join LUNGevity for a special Twitter chat on Wednesday, March 7, at 8:00 PM ET. Use #LCCaregiver to follow or join the conversation. All are welcome!
  6. Hi, SMAs, Here is the weekly clip report: Healio “Targeted Radiation Reduces Mortality for Early-Stage Lung Cancer” https://www.healio.com/hematology-oncology/lung-cancer/news/in-the-journals/{ea2da7d0-cbee-4aba-bba7-5028dde05d69}/targeted-radiation-reduces-mortality-for-early-stage-lung-cancer OncLive “ALK Inhibitors Continue to Reshape Treatment in NSCLC” http://www.onclive.com/web-exclusives/alk-inhibitors-continue-to-reshape-treatment-in-nsclc U.S. News & World Report “Are More People Dying of Cancer?” https://health.usnews.com/health-care/patient-advice/arti
  7. Do you want to learn how to become an empowered, informed lung cancer advocate? Join LUNGevity Wednesday, February 7, for a Twitter Chat about Caregiver Advocacy. Join or follow the conversation using the hashtag #LCCaregiver. Lung Cancer Caregiver chats are hosted the first Wednesday of every month from 8:00PM - 9:00PM ET.
  8. LUNGevity is excited to partner with Savor Health to address nutrition for people diagnosed with lung cancer in a new blog. Savor Health is a provider of personalized nutrition solutions designed exclusively for cancer patients based on evidence-based science and clinical best practices and provided by a team of oncology-credentialed registered dietitians. You can submit your questions here and the experts at Savor Health may answer it in an upcoming blog!
  9. LaurenH

    Nina Beaty

    I was first diagnosed with small cell lung cancer (SCLC) in January of 2014 from a biopsy of the tumor that was sitting on top of my left lung. I had no symptoms I was ill yet I was urged by a radiologist who was a friend of the family to get an early lung cancer detection CT scan of the chest because I had been a smoker years before and grew up in a household of heavy smokers. So for me, it came as a total shock when I was told my diagnosis and “to get into the city for treatment, ASAP. “ For the next two years, I went through the standard treatment for limited stage SCLC, -chemo, radiation
  10. The Lung Cancer Support Community (LCSC) is the largest online lung cancer support network with over 11,000 members. LCSC members are people living with lung cancer, caregivers, medical and health professionals, and advocates, who are unified in our common goal to improve survivorship. Users can safely share information on LCSC. Member-generated usernames help keep information private and for those who wish, remain anonymous. Forum moderators help to maintain the integrity of the site, assisting new members, and participating in discussions to offer peer to peer support. Anyone
  11. We are excited to announce that BridgetO will be a new LCSC Moderator of the Introduce Yourself and NSCLC forums. BridgetO is a survivor from Portland, OR. She joined LCSC in December 2016 after being diagnosed with lung adenocarcinoma, grade 1, stage 1a, with a KRAS mutation. BridgetO is an invaluable member of this community, and we look forward to seeing her shine in her new role as Moderator!
  12. Hello, my dear friends! I. Have. Missed. You! It is so tempting, in my relationship with caregiving, to take on blame. Blame myself for this or that. Plans didn’t go off accordingly? It’s my fault. Time got away from me without my control? Oh, that’s my fault, too. Sign me up! Since my last post, our “best laid plans” were thrown out the window. Forcefully. To be totally real with you, my friends, I had wanted so badly to post about ALL THE HOPE in May. I wanted to fill your inboxes with notifications that there was a new post here every day. I wanted to fill your “Caregiver Qui
  13. Hi everyone, I'm Jessica Meeks and, in December 2012, my mother died due to lung cancer. I've recently (about a year and a half ago) started volunteering for LUNGevity and am interested to know if anyone in the Atlanta, GA area would like to form a support group for caregivers and family members, particularly those who have lost someone to lung cancer. If anyone is interested, please let me know as I would love to get a group together to help us all get through some rough times! Thanks for reading!
  14. I was diagnosed with lung cancer in August of 2011 out of the blue, totally unexpected. I went for a regular checkup after experiencing some gastric reflux and abdominal pain. The doctor suggested an abdominal CT scan. He called me back into his office and told me that, although the scan was of my abdomen, a part of my lung had been included. A little shadow had shown up there that concerned him. He asked me to undergo a second CT scan, this time of my lungs. That scan revealed a prominent area of masslike consolidation in my left lower lobe. The next day I saw my pulmonologist, who scheduled
  15. We all know that when someone receives a lung cancer diagnosis, it can be overwhelming. LUNGevity designed the Lung Cancer Navigator app is to empower patients and make understanding and living with lung cancer less daunting and considerably more manageable. The Lung Cancer Navigator mobile app puts your entire support network in the palm of your hand. It helps you understand your diagnosis and provides tools and forums for asking questions, detailing symptoms, and managing medications. The app is a great way to communicate with your healthcare providers and to request support from friend
  16. LUNGevity Foundation Partners With CancerCare to Launch Lung Cancer HELPLine Free Service Addresses Emotional, Practical, and Information Needs of Lung Cancer Patients FOR IMMEDIATE RELEASE Media Contact: Amanda Greenfield [email protected] 212-561-7430 WASHINGTON, DC (January 19, 2017) – LUNGevity, the nation’s leading lung cancer-focused nonprofit organization, today announced the launch of the LUNGevity Lung Cancer HELPLine, a free phone service through which a team of professional oncology social workers will be available to address the emotiona
  17. LUNGEVITY FOUNDATION INTRODUCES A NEW MOBILE APP TO HELP PATIENTS UNDERSTAND AND MANAGE LIFE WITH LUNG CANCER Lung Cancer Navigator is a Customized Communication Hub that Puts Education, Care Management and Personal Support in the Palm of Your Hand PR Newswire, WASHINGTON, DC (January 11, 2017) Click here to view the multimedia press release. LUNGevity, the nation’s leading lung cancer-focused nonprofit organization today launched a new mobile application designed to make understanding and living with lung cancer less daunting and considerably more manageable. The new Lung
  18. What Not to Say to a Cancer Patient By: Jane E. Brody What do you think is the most commonly asked question of a person who has, or has had, cancer? If you guessed, “How are you?” you got it right. But as caring as those words may seem, they are often not helpful and may even be harmful. At a celebratory family gathering a year after my own cancer treatment, a distant relative asked me just that. I answered, “I’m fine.” She then pressed, “How are you really?” “Really” I was fine, I told her. But what if I hadn’t been? Would I have wanted to launch into a description of bad
  19. Are you a cancer patient or caregiver struggling with anxiety or depression? Are you worried that your fear, uncertainty or changes to your appearance or mobility will leave you depressed? Join the Cancer Support Community webinar, Frankly Speaking About Cancer: Coping with Anxiety and Depression on Wednesday, November 30 from 2:00pm-3:30pm ET. You will learn about ways to cope with the anxiety and depression that often accompany cancer. A psychologist and a social worker will both present information to help. The webinar features the following panelists: •Diane Robinson, PhD, UF Heal
  20. Hi my name is Terry Gillespie. I am a 13-year lung cancer survivor. I started my lung-cancer journey back in October 2003. In the fall, I am prone to sinus infections, so as usual I got one. It just so happened this time that I let it go a little longer because I had just lost my job and had no insurance. When it got so bad and I coughed so hard that I had a little blood in my sputum, I called the doctor and made an appointment. My doctor prescribed the usual antibiotics, and when I mentioned that this sinus infection was worse than normal, and that I must have hurt my th
  21. Your bone metastasis story can make a difference! If you or a loved one has bone metastasis, sharing your experience can help others. Learn more about the Voices of Experience volunteer network by calling 1-855-894-4352 or [email protected]
  22. Hi all, We have a 77 year old female looking for someone to talk to who has been diagnosed with SCLC. She does not mind if the support mentor is male or female. She just needs some support and encouragement from someone with the same diagnosis. Please let me know if you are willing to offer her an ear to listen. Thank you in advance. Best Regards, Nikole Support and Advocacy Coordinator [email protected]
  23. We are only weeks away from the LUNGevity Columbus, Ohio HOPE Summit! You will not want to miss this amazing opportunity. Please share this! www.lungevity.org/columbushope (The summit is free, however registration is required.)
  24. Help invite people to learn about LUNGevity by taking brochures with you next time you are in a place where other people who have been affected by lung cancer would benefit from them. The brochures have information about LifeLine - A peer to peer support program, advocacy opportunities, information about HOPE Summits, and more! http://www.lungevity.org/about-us/request-materials
  25. MAY 1-3, 2015 Our National HOPE Summit takes place the first week of May, Lung Cancer HOPE Month. The goal of the weekend is to provide a summit for survivors with educational sessions covering topics like research, immunotherapy, ask the oncologist, pulmonary rehabilitation, communicating with your caregivers, managing your medical team, living with lung cancer, nutrition, writing and blogging, becoming an empowered advocate, and sharing lung cancer survivor stories. This 2½ days of celebrating lung cancer survivorship is an experience you won't want to miss. http://lungevity.donordrive.c
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