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  1. Are there any survivors who attribute their success to any supplement of ANY kind? I can find dozens of studies for dozens of supplements that all say it retards lung cancer growth. But so far I haven't found any strong forum testimonials for any. For example, if EGCG is really as effective as the studies say, someone here should be seeing good results by pounding 10-20 grams a day. Liver toxicity aside. I assume that when people here are taking supplements, they are overdoing it. I know I sure as heck would. One capsule a day ... to heck with that. I'd be trying like, 20. My father is having a biopsy to confirm stage 3+, next week, and we're not expecting good news.
  2. New health care legislation was recently introduced in the United States Senate, and if passed, it would roll back major provisions of the Affordable Care Act. The Graham-Cassidy Bill could have important and negative implications for lung cancer patients, survivors, and their families, including higher costs and reduced access to health care coverage for the sick and low-income. Below are several areas of our concern: The bill prohibits pre-existing condition provisions; however, it allows states to permit waivers to health plans allowing them to charge different, increased, premiums based on a variety of factors. This could make health insurance unaffordable for lung cancer patients and their families. States would be able to waive the minimum essential health benefits that health insurance companies are required to provide currently, this includes prescription drug coverage, and could affect lifetime and annual limits on these benefits. Medicaid expansion and reduced funding for the Medicaid population would be affected under this legislation, which would likely result in less affordable health care for lower-income Americans. Experts say there is a chance this legislation could pass, and we need your HELP. Please TAKE ACTION by contacting your Senator TODAY and ask them to vote NO. Call (844) 257-6227 to directly connect to your Senator’s office.
  3. until
    The National HOPE Summit takes place each Spring and kicks off Lung Cancer HOPE Month in May. This year At HOPE Summit, participants learn, collaborate, advocate, and share their stories about living with lung cancer. The summit features inspirational speakers, medical expert forums, lung cancer survivor-specific sessions, and opportunities for lung cancer survivors to connect with other survivors. There are sessions for both those in active treatment and those out of treatment to address their specific needs. In addition to lung cancer survivors, caregivers and medical professionals wanting to learn more about lung cancer survivorship are also welcome to register. Click here to learn more about National HOPE Summit!
  4. LUNGevity Foundation Partners With CancerCare to Launch Lung Cancer HELPLine Free Service Addresses Emotional, Practical, and Information Needs of Lung Cancer Patients FOR IMMEDIATE RELEASE Media Contact: Amanda Greenfield [email protected] 212-561-7430 WASHINGTON, DC (January 19, 2017) – LUNGevity, the nation’s leading lung cancer-focused nonprofit organization, today announced the launch of the LUNGevity Lung Cancer HELPLine, a free phone service through which a team of professional oncology social workers will be available to address the emotional, practical, and information needs of people diagnosed with lung cancer, their families, and caregivers. This year, more than 240,000 people in the U.S. will be diagnosed with lung cancer, which means that hundreds of thousands of lung cancer patients, family members, and caregivers will be responsible for navigating a disease that is likely unfamiliar to them. The LUNGevity Lung Cancer HELPLine will serve as a vital resource and source of support for all affected by the disease. LUNGevity has partnered with CancerCare®, the leading national organization providing free, professional support services and information to help people manage the emotional, practical, and financial challenges of cancer. CancerCare’s team of professional oncology social workers are uniquely qualified to address these needs. For nearly 73 years, CancerCare has provided free support services to cancer patients aimed at alleviating distress, helping them to obtain the best possible outcomes from their treatment. Those seeking assistance can call LUNGevity’s new toll-free HELPLine, 844-360-LUNG (5864), from 9:00am – 5:00pm ET, Monday through Friday to: Receive immediate access to reliable educational resources and programs Get personalized information about lung cancer and treatment options Learn effective ways to cope with cancer including managing emotions such as depression, anxiety, or sadness Improve communication with their health care team and loved ones Get referrals to financial assistance resources for needs including pain medication, homecare, childcare, medical supplies, transportation for treatment, and copayment assistance related to chemotherapy and targeted treatment therapies. (Provided to those who meet CancerCare’s eligibility guidelines; subject to funding availability.) Depression, anxiety, strains on relationships, loss of motivation, and financial burdens are commonly experienced by lung cancer patients and can compromise a patient’s ability to complete treatment. LUNGevity developed the Lung Cancer HELPLine to help patients, their caregivers, and families combat these symptoms by offering direct and personalized support for callers across the nation. “Providing lung cancer patients, their families, and caregivers with the resources and tools they need to address every phase of this disease is a priority,” said Andrea Ferris, President and Chairman of LUNGevity Foundation. “Our goal in setting up this HELPLine is to add dimension to these efforts and provide an additional resource to individuals affected by lung cancer to ensure that no one has to navigate this disease alone.” The HELPLine will join a number of other critical resources LUNGevity has created to support the needs of lung cancer patients, their caregivers, and loved ones, including Clinical Trial Finder, LifeLine Support Partners, and the recently launched Lung Cancer Navigator Mobile App. Charitable funding for the HELPLine was generously provided by Bristol-Myers Squibb Company and Genentech. For more information on LUNGevity, please visit www.LUNGevity.org. Click here to read the full press release.
  5. LUNGEVITY FOUNDATION INTRODUCES A NEW MOBILE APP TO HELP PATIENTS UNDERSTAND AND MANAGE LIFE WITH LUNG CANCER Lung Cancer Navigator is a Customized Communication Hub that Puts Education, Care Management and Personal Support in the Palm of Your Hand PR Newswire, WASHINGTON, DC (January 11, 2017) Click here to view the multimedia press release. LUNGevity, the nation’s leading lung cancer-focused nonprofit organization today launched a new mobile application designed to make understanding and living with lung cancer less daunting and considerably more manageable. The new Lung Cancer Navigator mobile app provides lung cancer patients with access to the latest medical and treatment information related to their specific lung cancer diagnosis, and serves as a convenient hub for organizing customized care and support networks, asking questions, describing and tracking symptoms, and managing multiple medications. Lung cancer is the second most commonly diagnosed cancer worldwide, with more than 1.8 million new cases diagnosed each year. The LUNGevity Lung Cancer Navigator app provides tools and forums to help those coping with the disease (including caregivers and support network members) communicate important details in real time, while handling care management needs with efficiency, medical guidance and less stress. “When someone receives a lung cancer diagnosis, it can be overwhelming,” said Andrea Ferris, President of LUNGevity Foundation. “Our goal with the LUNGevity Lung Cancer Navigator app is to empower patients and provide them with a forum for connecting to customized information and a support community that helps them navigate life with understanding and much less fear.” While lung cancer can affect anyone regardless of gender or ethnicity, only 18% of people diagnosed with the disease survive five years or more. LUNGevity Foundation strives to change outcomes for people living with lung cancer through research, education, support and advocacy. Through the LUNGevity Lung Cancer Navigator app, LUNGevity Foundation aims to provide patients and caregivers with a greater sense of empowerment, understanding and improved management of personal diagnostic, treatment and appointment information. The LUNGevity Lung Cancer Navigator was developed through an educational grant from Bristol-Myers Squibb. LUNGevity’s Lung Cancer Navigator Mobile App is available as a free download on iOS and Android devices. For more information and to view a demonstration video, visit https://www.lungevity.org/. About Lung Cancer: 1 in 15 Americans will be diagnosed with lung cancer in their lifetime More than 224,000 people in the U.S. will be diagnosed with lung cancer this year About 60% of all new lung cancer diagnoses are among people who have never smoked or are former smokers Lung cancer kills more people than the next three cancers (colorectal, breast, and pancreatic) combined Only 18% of all people diagnosed with lung cancer will survive 5 years or more, BUT if it's caught before it spreads, the chance for 5-year survival improves dramatically About LUNGevity Foundation: LUNGevity Foundation is firmly committed to making an immediate impact on increasing quality of life and survivorship of people with lung cancer by accelerating research into early detection and more effective treatments, as well as by providing community, support, and education for all those affected by the disease. Our vision is a world where no one dies of lung cancer. For more information about LUNGevity Foundation, please visit www.LUNGevity.org. ### Press Contact: Cynthia Inácio 212-561-7476 [email protected]
  6. Triage Cancer and The Samfund have created an online resource called Finances 101: A Toolkit for Young Adults with Cancer. The toolkit guides young adults to the information they need to make important financial decisions in the wake of a cancer diagnosis. This collaboration between Triage Cancer and The Samfund aims to mitigate the financial toxicity we see in our community. Whether at the time of diagnosis, in the midst of treatment, or at any point in recovery, we hope to help young adult survivors find information that is most relevant to them. As you may know, open enrollment for the ACA State Health Insurance Marketplaces began yesterday. We know that healthcare is crucial for young adult survivors and so wanted the first module of the Toolkit to focus on health insurance. Premiums are on the rise and we want our young adults to be able to make the best possible decision when choosing an insurance plan. To access the toolkit, visit www.CancerFinances.org
  7. It’s normal for someone diagnosed with cancer to experience feelings of sadness, fear, anger and grief. It’s when those feelings prevent you from functioning in your everyday life and you feel emotionally paralyzed in your situation for an extended period of time that you need to seek help. Cancer patients experience depression two times more than the general population and studies have shown that mental health and social well-being can affect the success of treatment. Those diagnosed with cancer have life plans that are interrupted, a change in physical activity and ability, role changes in relationships, and career, may experience a loss of self-image or sense of self. They also experience fears about the cancer growing within their bodies, anxiety about the success or failure of treatments, worry over their families and caregivers and may fixate on the possibility that their lives will be cut short from their disease. Those diagnosed with lung cancer have an additional set of issues facing them. Some may experience the stigma associated with the disease and experience anger or guilt, isolation or shame depending on whether or not they had a smoking history and whether or not they feel they are getting adequate medical and emotional support from their local communities. Lung cancer survivors may also feel outrage, anger and a sense of being forgotten because of lack of public awareness and support of the disease in the media, limited treatment options available for the disease and sparse funding that goes to research the disease. Depression is more than just the normal feelings of sadness. Depression is when an individual experiences at least one of the following symptoms for more than two weeks: Feeling sad most of the time Loss of pleasure and interest in activities you used to enjoy Changes in eating and sleeping habits Nervousness Slow physical and mental responses Unexplained tiredness Feeling worthless Feeling guilt for no reason Decreased concentration ability Thoughts of death or suicide Getting help for your depression can help your cancer experience feel less challenging; it may help your relationships with the people around you may give you back some sense of control over certain parts of your life. Visit the National Cancer Institute for more information on depression in cancer patients and call your doctor if you feel like you may be suffering from depression. ______________________ Did you experience depression with your lung cancer diagnosis? Share your tips on how you dealt with your depression by commenting below.
  8. Do you have questions about how a cancer diagnosis might affect you or someone you care about? Join the Cancer Legal Resource Center for a Summer 2016 Webinar Series to learn about important legal issues that stem from a cancer diagnosis in four different webinars. July 13, 2016: 5 Legal Tips for Recently Diagnosed Cancer Patients Join us for a webinar on Jul 13, 2016 at 12:00 PM PDT. Register now! Find out about the various legal issues that can stem from a cancer diagnosis, including employment law, insurance options, and disability insurance, and the laws that protect cancer patients. July 27, 2016: 5 Legal Tips for Young adult Cancer Patients Join us for a webinar on Jul 27, 2016 at 12:00 PM PDT. Register now! Learn about what types of protections are available to higher education students with cancer or students who are cancer survivors both during the application process and once the students have started college, graduate school, and beyond. Additionally, learn about ways for students or alumni with disabilities to manage or possibly discharge their student loans and applying for jobs with cancer history, etc. August 10, 2016: 5 Legal Tips for Advanced Stage Cancer Patients Join us for a webinar on Aug 10, 2016 at 12:00 PM PDT. Register now! Join us and learn about advance planning, SSI/SSDI/compassionate allowances, etc, in addition to estate planning topics such as wills and trusts. We will talk about advance healthcare directives and tools you can use to make sure that your wishes regarding medical treatment are upheld, even when you are no longer able to make decisions for yourself. August 24, 2016: 5 Tips for Caregivers of Cancer Patients Join us for a webinar on Aug 24, 2016 at 12:00 PM PDT. Register now! Find out what your rights are under the Family and Medical Leave Act (FMLA), the federal law that provides caregivers with options for taking time off work, and learn about additional protections available under state law, and about other issues involving caregivers, such as SS survivor benefits, probate, advanced healthcare directives, etc. After registering, you will receive a confirmation email containing information about joining the webinar. For questions about these webinars, please contact the CLRC at [email protected]<script data-cfhash='f9e31' type="text/javascript">/* */</script> or call (213) 736-1100. To Ensure this email does not end up in your junk mail, please add [email protected] to your address book or safe list.
  9. The differences between hospice and palliative care. Hospice care and palliative care are very similar when it comes to the most important issue for dying people: care. Most people have heard of hospice care and have a general idea of what services hospice provides. What they don’t know or what may become confusing is that hospice provides “palliative care,” and that palliative care is both a method of administering “comfort” care and increasingly, an administered system of palliative care offered most prevalently by hospitals. As an adjunct or supplement to some of the more “traditional” care options, both hospice and palliative care protocols call for patients to receive a combined approach where medications, day-to-day care, equipment, bereavement counseling, and symptom treatment are administered through a single program. Where palliative care programs and hospice care programs differ greatly is in the care location, timing, payment, and eligibility for services. Place Hospice Hospice programs far outnumber palliative care programs. Generally, once enrolled through a referral from the primary care physician, a patient’s hospice care program, which is overseen by a team of hospice professionals, is administered in the home. Hospice often relies upon the family caregiver, as well as a visiting hospice nurse. While hospice can provide round-the-clock care in a nursing home, a specially equipped hospice facility, or, on occasion, in a hospital, this is not the norm. Palliative Care Palliative care teams are made up of doctors, nurses, and other professional medical caregivers, often at the facility where a patient will first receive treatment. These individuals will administer or oversee most of the ongoing comfort-care patients receive. While palliative care can be administered in the home, it is most common to receive palliative care in an institution such as a hospital, extended care facility, or nursing home that is associated with a palliative care team. Timing Hospice You must generally be considered to be terminal or within six months of death to be eligible for most hospice programs or to receive hospice benefits from your insurance. Palliative Care There are no time restrictions. Palliative care can be received by patients at any time, at any stage of illness whether it be terminal or not. Payment Hospice Before considering hospice, it is important to check on policy limits for payment. While hospice can be considered an all-inclusive treatment in terms of payment (hospice programs cover almost all expenses) insurance coverage for hospice can vary. Some hospice programs offer subsidized care for the economically disadvantaged, or for patients not covered under their own insurance. Many hospice programs are covered under Medicare. Palliative Care Since this service will generally be administered through your hospital or regular medical provider, it is likely that it is covered by your regular medical insurance. It is important to note, however, that each item will be billed separately, just as they are with regular hospital and doctor visits. If you receive outpatient palliative care, prescriptions will be billed separately and are only covered as provided by your regular insurance. In-patient care however, often does cover prescription charges. For more details, check with your insurance company, doctor, or hospital administration. Treatment Hospice Most programs concentrate on comfort rather than aggressive disease abatement. By electing to forego extensive life-prolonging treatment, hospice patients can concentrate on getting the most out of the time they have left, without some of the negative side-effects that life prolonging treatments can have. Most hospice patients can achieve a level of comfort that allows them to concentrate on the emotional and practical issues of dying. Palliative Care Since there are no time limits on when you can receive palliative care, it acts to fill the gap for patients who want and need comfort at any stage of any disease, whether terminal or chronic. In a palliative care program, there is no expectation that life-prolonging therapies will be avoided. It is important to note, however, that there will be exceptions to the general precepts outlined. There are some hospice programs that will provide life-prolonging treatments, and there are some palliative care programs that concentrate mostly on end-of-life care. Consult your physician or care-administrator for the best service for you. Reprinted from “Hospice vs. Palliative Care,” by Ann Villet-Lagomarsino. Educational Broadcasting Corporation/Public Affairs Television, Inc. Reprinted with permission. For additional caregiving information, visit www.CaregiversLibrary.org
  10. https://www.linkedin.com/pulse/connecting-people-hope-katie-brown?trk=prof-post I recently read a quote from a cancer survivor about online support. “”When I stumble, there are so many virtual hands to catch me.” This is the same sentiment that has been expressed about LUNGevity’s Lung Cancer Support Community and our groups on Facebook. People impacted by lung cancer can come online and be embraced by others who have walked the same journey and who understand what they may be going thru. There is power in the written word and from receiving support from a group of people. Building a community of support can help you feel less alone in the cancer journey. But there are times when people need more. For example, newly diagnosed patients and their families often feel overwhelmed with the medical process, uncertainties and fears and they need additional support. Some people are not active social media users. Some people need more than virtual hands to catch them. What they need is a strong hand to hold onto. Those are the people who benefit from the personalized support of LUNGevity’s LifeLine Program. This free program, originating from the Lung Cancer Support Community “Support Buddy Program”, is in its 13th year of helping people. Based on individual needs, LifeLine has supported people online, through email and by telephone. A personalized match is made between a survivor mentor and a patient and they begin their supportive relationship based on commonalities whenever possible, like age range, gender and stage and type of lung cancer. LifeLine also matches caregivers and family members to other more seasoned caregivers and family members. Oftentimes caregivers and families bear the brunt of the responsibility of caring for their loved ones physical, emotional and financial needs and neglect caring for themselves. Those caring individuals we call co-survivors need support too. We’ve matched survivors, patients and caregivers from across the country. We’ve matched people at our annual HOPE Summits (a survivorship conference for people impacted by lung cancer) and we are a resources for many hospitals, clinics and social workers across the country and internationally. Here’s what one support seeker said. “It’s amazing. I never knew anyone with a lung cancer diagnosis, now I’m matched with someone like me who has survived these same treatments. She gives me so much hope.” If you or someone you know has been impacted by lung cancer and would like to request a LifeLine Support Mentor or if you would like to volunteer to become a LifeLine Mentor, please visit www.lungevity.org/lifeline If you would like more information on our regional or national HOPE Summits, the LifeLine Program, or would like to request materials please email us [email protected]
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