Candy Posted June 21, 2003 Share Posted June 21, 2003 Finally, we got the scan results. We went to the doctor's office yesterday and it was SO crowded! And because it was so crowded, everyone was running late. We were supposed to see the doctor at 2:45 and we were still sitting alone in his office at 3:45. I know they are busy and usually they are pretty good, but wouldn't you know that it would be on a day that we are waiting for scan results??? So, Hugh's scans looked "good". His liver and bones look good. His lung still has an area of "tissue change" but the doctor thinks that could be scar tissue. His advice was to stop chemo at this time. He said he knew it was a really scary thing to stop but that he thought it was the medically correct thing to do. There wasn't any significant improvement after these last two treatments and the doctor said he wasn't even sure that there was anything to improve. (I think that's good news). The doctor feels that anymore than 8 treatments at this time would really beat Hugh down even though Hugh is handling this stuff really well his counts still get really low after treatment now. There was a moment when the 3 of us just sat staring. I'm not sure what response he was expecting but it seemed like he was waiting for something. Finally Hugh said: In plain English, is this good news or bad news?" The doctor said it was good news and that now the trick is keeping it gone (I love the "gone" word). Hugh will go once/wk for the next 4 weeks for an arenesp shot and then 1x/month for blood work and scans in 3 months. Does that sound reasonable? This IS scary stuff. I hate that we can't feel wildly excited about finishing because the fact that they keep warning us that it almost always returns stays formost in my mind. I did ask him if there was other treatment available if it came back and he assurred us there was. Here is something I thought I should share. The doctor gave Hugh a prescription for Celebrex because he said studies show SOME signs of possible benefit in stopping recurrent tumors. He stressed SOME and POSSIBLE loudly and that this was no guarantee, nothing proven, but he thought it was worth taking it. Its expensive (150 dollars/month and I am still fighting with the insurance company to cover it, but I will pay the monthly bill if they don't. Besides, Hugh has always had a bad back and a sore knee so we figure it will have to help all those other aches and pains. So now I am going to try really hard to enjoy this time of remission without thinking about what-ifs on an hourly basis and pray that it will last a long time. That said, I ran into an aquaintance of ours yesterday who was asking how Hugh was feeling and I said he was doing well. Her reply was "Oh, so it hasn't metastisized anywhere?" I was rather taken back by her bluntness. Its not usually something I share with people on the street, we live in a small town and though Hugh's illness is not a secret I don't want everyone looking at him like he is about to keel over or saying things to him about him dying or one of their relatives that has had that and died. I thought for a minute and figured I had three choices - either lie and say no, embarrass her by saying something about my feeling that it was a rather personal question or tell the truth. I decided the truth is always the best and I replied that yes, it has metastisized but that the chemo was seemingly taking care of it since SCLC was extremely responsive to chemo. She left with this parting sentence: Well, I'll see you later, please enjoy whatever time the two of you have left. You know how there is surgery to have cats declawed? I am thinking of having myself "clawed" Quote Link to comment Share on other sites More sharing options...
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